Living Strong With Epilepsy

Living Strong With Epilepsy Living Strong With Epilepsy is a supportive community for people living with epilepsy (and the people who love them).

We share real-life tools, encouragement and practical guidance to help you feel safer, steadier, and more empowered—one day at a time. 💜 Our mission is to provide better epilepsy awareness and education to the world! To break the epilepsy stigma and to continuously seek out a cure to end epilepsy. Our goal is to help each other overcome the obstacles we are faced with enduring a disorder that never rests. Whether you’re a fighter, family member, caregiver or supporter, we can share in the same journey together and help each other as we deal with the daily obstacles that confront us each day.

02/08/2026

What’s the most hurtful thing someone has said to you about epilepsy—because they didn’t understand it?

02/08/2026

It’s Super Bowl Sunday 🏈💜
What’s one thing you do to feel safer watching big games or being around a lot of lights/noise?

02/07/2026

Would you use an AI / smartwatch seizure alert if it could warn you or your loved ones during a seizure?

With The Advisor With Stacey Chillemi – I just got recognized as one of their top fans! 🎉
02/07/2026

With The Advisor With Stacey Chillemi – I just got recognized as one of their top fans! 🎉

01/31/2026

Tired of doing all the "right" self-care things but still feeling burned out? You're not broken — your nervous system might be stuck in survival mode. In this live, I break down why traditional self-care often fails trauma survivors and how to actually regulate your nervous system for real healing.

You'll learn the science behind why your body resists rest when it's been in fight-or-flight, plus practical somatic tools that work with your nervous system instead of against it.

Perfect for entrepreneurs, caregivers, and anyone who feels like they're doing everything right but still exhausted. Join me for actionable nervous system regulation that actually works.

01/31/2026

“Going live now on YouTube to talk about Why You're Still Stuck In Fight Or Flight Despite Daily Meditation

01/30/2026

What’s the hardest part of epilepsy that people still don’t understand, because you “look fine”?

🎧 Extra Support Between PostsIf you’re navigating trauma, anxiety, or emotional healing, you don’t have to do it alone.M...
01/30/2026

🎧 Extra Support Between Posts

If you’re navigating trauma, anxiety, or emotional healing, you don’t have to do it alone.

My podcast, The Advisor with Stacey Chillemi, shares gentle conversations and practical tools for calming the nervous system and healing emotionally — at your own pace.

Listen on Apple Podcasts.
(Link in comments)

💜 Take what helps. Leave what doesn’t.

01/30/2026

What’s the emotional effect of epilepsy that people don’t see?

01/29/2026

What’s one small accommodation that would make your life with epilepsy easier right now?

01/28/2026

What’s the hardest part of epilepsy that people don’t see?

01/27/2026

What’s one thing about epilepsy that completely drains you having to explain over and over?

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Freehold, NJ
07728

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