EDS Zebra Articles

02/27/2026

2026 A comparison of reverse shoulder arthroplasty and glenohumeral arthrodesis for end-stage shoulder instability

02/27/2026

2026 Health experiences and outcomes of autistic and non-autistic adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder

Background Previous research has indicated an association between hypermobility and autism. This study examined whether being autistic affects diagnosis, symptoms, and health experiences of people with hypermobility, including hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum diso...

02/27/2026

2026 TikTok as a Platform for Patient Education and Health Information in Rare Genetic Diseases: Cross-Sectional Study

Background: Rare genetic diseases pose significant diagnostic and therapeutic challenges, often leading to delayed diagnoses, misinformation, and patient isolation. Social media platforms have emerged as prominent spaces for health information dissemination and community building among patients with...

02/25/2026

2026 Bend the fingers: Ehlers Danlos syndrome and the associated disorders that impact treatment of chronic musculoskeletal pain

Ehlers Danlos and related hypermobility syndromes underly chronic, recurrent, and multiple-site pain in a small number of persons. By making the diagnosis, clin...

02/11/2026

2026 Tenascin-XB plays a role in the infiltration of immune cells in tumor microenvironment

We previously showed that tenascin-XB (TNXB) contributes to tumor suppressor function. The present study aimed to assess the tumor-suppressive mechani …

02/11/2026

2026 S*x Differences in Aortopathy, Arteriopathy, and Mortality in Vascular Ehlers-Danlos Syndrome

Vascular Ehlers-Danlos Syndrome (VEDS) is a rare autosomal dominant disorder due to pathogenic alterations in type III collagen structure and production which results in increased risk of aortopathy and arteriopathy. Given the documented sex-related differences in aortic and other arterial aneurysms...

02/11/2026

2026 Intercostal nerve radiofrequency ablation for slipping rib syndrome: a case report

Slipping rib syndrome (SRS) is an underdiagnosed condition causing chronic debilitating thoracic wall pain due to hypermobility of costal cartilage and irritation of intercostal nerves. Conservativ...

02/11/2026

2026 Prevalence and management of mental health comorbidities in a German cohort of patients with Ehlers-Danlos syndromes and a generalized hypermobility spectrum disorder

The objective of this study was to examine mental health comorbidities and their management in individuals living in Germany with generalized symptomatic h

02/11/2026

2026 Development and evaluation of a vision pose-tracking based Beighton score tool for generalized joint hypermobility in individuals with suspected Ehlers-Danlos syndromes

The proposed system can objectively screen individuals for possible GJH and also screen out those without GJH during the referral process, reducing the burden on specialized EDS clinics while providing early diagnostic triage. Future research will focus on deploying the tool as a mobile application.

02/04/2026

2026 Kyphoscoliotic Ehlers-Danlos syndrome associated with superior mesenteric artery aneurysm and abdominal aortic rupture: a case report

Kyphoscoliotic Ehlers–Danlos syndrome (kEDS) is a rare autosomal connective tissue disorder characterized by progressive kyphoscoliosis, congenital muscular ...

02/04/2026

2026 The role of perceived social support for outcomes for the long-term health condition hypermobile Ehlers-Danlos syndrome

Social connection is a key health determinant yet remains under-researched in long-term conditions marked by isolation such as hypermobile Ehlers-Danlos Syndrome (hEDS). Individuals with hEDS are especially vulnerable due to the condition's complex and often misunderstood symptoms. This study presen...

02/02/2026

2026 [Open Thoracoabdominal Aortic Replacement for Midaortic Syndrome and COL3A1 Variant]

Midaortic syndrome (MAS) is a rare vascular disorder characterised by segmental hypoplasia or stenosis of the thoracoabdominal aorta and possible involvement of renovisceral branches.In the case presented here, a 19-year-old female patient with thoracoabdominal aortic hypoplasia combined with multip...