EGE Network

This is an open page for patients and their families coping with EGE, for support and information. Page is open to both adults and teens. Please be respectful.

EGE Network is for patients and their families coping with Eosinophilic Gastroenteritis (EGE), a type of EGID, characterized by having above normal amounts of eosinophils, a type of white blood cell, in the stomach & small intestine. This page is moderated by APFED. The American Partnership for Eosinophilic Disorders (APFED) is a resource for sharing information and support. APFED members, moderators and executive board members do not offer medical advice. The information provided on this page, APFED website, newsletter and message board are designed to support, not replace, the relationship that exists between a patient/APFED member and his/her physician. Please verify any information you receive from APFED with other sources and with your licensed health care provider. Decisions regarding medical care should be made with your healthcare provider. Consumers should never disregard or delay seeking medical advice due to the content of this website. APFED does not control the content posted by members of the group, and therefore, the accuracy, integrity or quality of posted messages cannot be guaranteed. APFED, its moderators, executive and medical boards cannot be responsible for any adverse effects of any actions you take because of materials or information you have received from this group. The APFED executive and medical boards, volunteers and moderators do not assume, and hereby disclaim, any and all liability to any person or entity for any claims, damages, liability or other loss including, without limitation, any liability for injury or other damage resulting from any use of, or reliance on, this service or from the posting of any content or material by any third party.

04/25/2018

Please note that APFED will be streamlining our pages! For the followers of our subset-specific pages (such as EoE Network, EGE Network, etc), please be aware that those pages will be phased out on May 1st. Moving forward, your centralized source for all things Eos will be APFED’s main page: https://www.facebook.com/APFED/. Be sure to “Like” us and “Follow” us to stay connected!

Each subset of eosinophil-associated disease also has a dedicated page on Eos Connections (apfed.inspire.com). This online support community lets you ask questions, connect, and receive support from other patients and caregivers like you. It's a great way to stay connected with the Eos community!

Welcome to APFED! Learn more about eosinophil-associated diseases at apfed.org.

04/05/2018

We’re making it easier for the Eos community to stay connected! Each of the subsets of eosinophil-associated disease now has a dedicated page on Eos Connections (apfed.inspire.com). This is an online support community where you can go to ask questions, make connections, and receive support from other patients and caregivers like you.

Starting next week, we're consolidating news for our community. This Facebook subset page will be phased out, and your centralized source for all things Eos will be the APFED page. “Like” us today at facebook.com/apfed!

In addition, you can join APFED's free e-mail list to stay up-to-date with current events and news of interest to the eos community: https://salsa4.salsalabs.com/o/51119/p/salsa/web/common/public/signup?signup_page_KEY=7958&okay=true

03/13/2018

We’re making it easier for the Eos community to stay connected! Each of the subsets of eosinophil-associated disease now has a dedicated page on Eos Connections (apfed.inspire.com). This is an online support community where you can go to ask questions, make connections, and receive support from other patients and caregivers like you.

We’re also consolidating news for our community. Moving forward, this Facebook subset page will be phased out, and your centralized source for all things Eos will be the APFED page. “Like” us today at facebook.com/apfed!

In addition, you can join APFED's free e-mail list to stay up-to-date with current events and news of interest to the eos community: https://salsa4.salsalabs.com/o/51119/p/salsa/web/common/public/signup?signup_page_KEY=7958&okay=true

11/28/2017

Help our Newman’s Own Foundation $500k Holiday Challenge campaign raise the most this and we could win an additional $50k.

To donate click here:

https://www.crowdrise.com/o/en/campaign/american-partnership-for-eosinophilic-disorders-apfed

04/05/2017

11/08/2016

Patient/Caregiver Survey: Needs Assessment of Individuals Affected by Eosinophilic Gastrointestinal Disorders (EGIDs)
https://redcap.vanderbilt.edu/surveys/?s=YDT4KN4N8X

10/10/2016

Here's a fun way for kids to raise awareness this Halloween season! We’ll be sharing stories and photos on social media throughout Halloween week (October 25-31).

How It Works: Have your child create a sign that shares a fact about eosinophil-associated diseases (EADs) or shares what life is like with an EAD. Take a photo of your child in a Halloween costume holding the sign and email to jforrest@apfed.org by Oct. 25, 2016 with your consent to share via APFED’s social media. Your child may be selected to be highlighted!

07/01/2016

In ONE week, we will be in San Diego for a weekend of education and fun with our Eos family! There is still time to register for APFED’s 14th Annual Patient Conference on Eosinophilic Gastrointestinal Diseases. And if you can't make it to San Diego, consider joining us virtually on Saturday, July 9.

Learn more and register today as an onsite or virtual attendee:

Eos Connection 2016: APFED's 14th Annual Patient Education Conference on Eosinophilic Gastrointestinal Disorders.

06/29/2016

To keep everyone safe, healthy and having fun while on your summer adventures, our latest blog post has helpful tips for traveling with EGIDs:

Summer trips with an EGID can be challenging. We asked for suggestions to ease travel from Colette Martin, The Allergen-Free Baker, and Laura Dean, MA, RD, CD,

06/22/2016

Join us in San Diego without leaving home! Can't make it to APFED's Patient Conference on Eosinophilic Gastrointestinal Diseases (July 8-9)? Register as a virtual attendee, and you can access the general sessions on Saturday, July 9 via live web stream.

There will also be an opportunity to submit questions to our speakers. In addition, virtual attendees will have on-demand access to the recorded sessions for a short period following the conference.

More details are available on our conference registration page. Register now:

http://www.cvent.com/events/eos-connection-2016-apfed-s-14th-annual-patient-education-conference-on-eosinophilic-gastrointestina/custom-113-522b99cce13941ab97c309ab5d63e935.aspx

06/15/2016

Can’t join us in San Diego? Attend virtually! For those who wish they could attend APFED’s EosConnection conference but just can't this year, virtual attendance is a great option.

Learn more: http://www.cvent.com/events/eos-connection-2016-apfed-s-14th-annual-patient-education-conference-on-eosinophilic-gastrointestina/custom-113-522b99cce13941ab97c309ab5d63e935.aspx

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Houston, TX

Telephone

+17134937749

Website

http://www.apfed.org/

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