07/12/2025
July 11, 2018 Today was my 7 year anniversary!I knew it was coming, and yet it snuck up on me. My lesions are stable, no progression. But old lesions continually play new tricks.It took seven years to grow all this hair, seven years and I don’t look like I’ve gotten any better mobility wise. But I’ve actually gotten feeling back in my right leg, the partially paralyzed one...that’s huge. I learned from my niece Margaux that it takes 240 muscles to walk and I think I am at least at 205 now, maybe 215. But fatigue and spasticity still keep me prisoner, plus, the new tricks. I still clean up pretty good, but most days I look like a bum lol. If anyone asks, though, do it. If you’re considering HSCT, get it done as soon as possible. I may have learned about it just a little too late for it to “save” me, but it saved me…my blood work is damn near perfect, and I don’t know where I would be if I hadn’t gotten HSCT done when I did. I’m forever grateful to Dr. F and his team at Pirogov. 💜Move, Live, Prosper