Dementia Remembers

Dementia Remembers Helping professional and family caregivers succeed in dementia care and communication

Dementia Remembers is a consulting company specializing in education, training and care counseling for family caregivers, healthcare professionals, non-professionals and first responders. Cyndee is proficient in teaching/training how to listen and communicate with people in all stages of dementia, including Early Onset Alzheimer's. She is skilled in presenting information, from first hand personal and professional experience, to demonstrate complementary communication techniques that can enhance relationships of family members, friends and loved ones who are caring for someone with dementia in their own home. Her expertise in leadership development, employee engagement and coaching to improve and sustain performance improvement and competitive advantage in a professional environment is exemplary. She is certified as a Validation Worker and is one of less than 300 Certified Validation Group Practitioners in the United States.

https://gaylewells.org/reframing-the-language-of-alzheimers/Also, check out the link at the end of the article: Language...
11/03/2022

https://gaylewells.org/reframing-the-language-of-alzheimers/
Also, check out the link at the end of the article:
Language Guidelines – Reframing for Respect

Reframing the Language of Alzheimer’s Posted on November 2, 2022November 2, 2022 by Laura Sutherland Written by: Emily Sutherland “Dehumanizing always starts with language.” —Brené Brown   Our words matter. Whether we are nurturing a child’s development or communicating with anyone in ou...

So nice to meet you Brandy. It was a memorable night in many ways
05/14/2022

So nice to meet you Brandy. It was a memorable night in many ways

Christina Wells · Song · 2019

So excited about the fundraiser tonight for the Gayle Wells Foundation for Early Onset Alzheimer's and Care!
04/09/2022

So excited about the fundraiser tonight for the Gayle Wells Foundation for Early Onset Alzheimer's and Care!

Please join us! I am looking forward to this event and sharing a wonderful evening together while supporting the Gayle W...
03/22/2022

Please join us! I am looking forward to this event and sharing a wonderful evening together while supporting the Gayle Wells Foundation!

02/03/2022

For those with family members/friends living in a residential setting.
Updates from CMS and CDC:
Further Clarification of Visitation Guidance;
Addition to Definitions of Vaccination Status;
and More
The Centers for Medicare and Medicaid Services (CMS) and the Centers for Disease Control and Prevention (CDC) have made updates to their COVID-19 guidance.

On February 2, 2022, CMS updated their Frequently Asked Questions (FAQs) which clarify their November 2021 revised Nursing Home Visitation Guidance. They continue to emphasize that visitation must be permitted at all times, in accordance with residents’ rights, with very limited and rare exceptions.

Important updates include:

States may require visitors to be tested prior to entering a facility; the facility must provide the rapid test to the visitor. Visitors are not responsible for obtaining a test, and if the facility does not provide a rapid test, visitors cannot be required to test before entering. Visitors must be allowed to enter if they do not have COVID-19 symptoms or meet the criteria for quarantine (e.g., a positive COVID-19 test result).
CMS suggests best practices for improving air quality during visitation. Facilities can employ multiple strategies to manage airflow, and funding is available to facilities for environmental changes to reduce COVID-19 transmission. Facilities can request up to $3000 of Civil Money Penalty Reinvestment funds to purchase portable room air cleaners with HEPA filters and portable fans to increase and improve air quality.
Read the full FAQs.

Additionally, while the CDC describes fully vaccinated as having completed the first series of COVID-19 vaccines, it has added a definition for being “up to date” with COVID-19 vaccines. A person is “up to date” with their vaccinations when they have received all recommended COVID-19 vaccines, including any boosters for which they are eligible.

This new definition impacts who is required to quarantine in healthcare settings, according to the CDC. Quarantine is now recommended for patients who have been in close contact with someone with COVID-19 if they are not “up to date” with their COVID-19 vaccine doses – unless they have recovered from COVID-19 in the past 90 days.

Learn more on the CDC's website.

Updated CDC guidance also emphasizes that older adults in congregate settings are at high risk of illnesses such as COVID-19 and that it is critical to have a strong infection prevention and control program to protect residents and health care workers. As nursing homes resume normal activities, they must continue with their infection prevention and control practices in order to prevent spread and protect residents and health care workers from severe infection, hospitalization, and death. For more information, visit the CDC's website.

Looking forward to this fundraising event for the Gayle Wells Foundation for Early Onset Alzheimer's and Care. Save the ...
11/23/2021

Looking forward to this fundraising event for the Gayle Wells Foundation for Early Onset Alzheimer's and Care.
Save the date: February 12, 2022!

Schedule of Support Forums &November Forget-Me-Not Education Series"Difficult Conversations"I hope everyone is doing wel...
10/28/2021

Schedule of Support Forums &
November Forget-Me-Not Education Series
"Difficult Conversations"

I hope everyone is doing well, staying safe and healthy as we move into the month of November. It's hard to believe we're entering into the holiday season!

During this time of Covid, the Gayle Wells Foundation for Early Onset Alzheimer's & Care refocused our mission and we have created many new programs and initiatives that will be announced in the coming weeks. We hope you'll share our information with your colleagues, families and friends and invite them to subscribe to our newsletter by clicking on this link: Gayle Wells Foundation Newsletter.

Below is the schedule for our November webinars, which focus on the subject of "Difficult Conversations". We have also provided information for our online support forums, which take place the first Thursday of every month. We plan to begin in-person support forums in January 2022.

Warmest regards,
Laura

Laura Sutherland, LMSW
Founder & Executive Director

November Schedule
Forget-Me-Not Educational Series
Difficult Conversations
Webinars (Thursday)
11:30 am CT / 12:30 pm ET
(Click the webinar title to register)
November 4 - Driving

November 10 - Employment Issues & Concerns
(**Please note this webinar will be held on Wednesday, November 10)

November 18 - Intimacy

November 25 - Thanksigving Holiday - No webinar

Webinar registration can also be accessed at https://gaylewells.org/education


Forget-Me-Not Support Forums
Forget-Me-Not Support Forums are being offered online to provide support and education to those caring for someone with early onset Alzheimer’s disease. These forums create an opportunity to build relationships with others and gain emotional support.

The Forget-Me-Not Support Forums are for individuals whose loved one was diagnosed with early onset Alzheimer's disease prior to the age of 65. They are being offered the first Thursday of every month at 7:00 pm (CT) on Zoom and will last for one hour. Below is the Zoom link for all of the online forums.

Forget-Me-Not Support Forums

Connect with Us - We're Here to Help



We are here to help those living with early onset Alzheimer's disease, their care partners, family members, and friends, as well as those who work in the memory care and healthcare communities.

Please click the link below and fill out our contact form. We provide one-on-one care consultations, education and support. We welcome the opportunity to collaborate with you to ensure the best possible treatment, programs, and services for those living with early onset Alzheimer's disease.
Connnet With the Gayle Wells Foundation

Gayle Wells Foundation
P.O. Box 22437
Houston, TX 77227
(832) 470-9526

Get in Touch
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Gayle Wells Foundation for Early Onset Alzheimer's & Care | P.O. Box 22437, Houston, TX 77227

Education The Forget-Me-Not Educational Series consists of 30-minute webinars every Thursday at 11:30 am CT / 12:30 pm ET. Each month focuses on a theme of issues and concerns experienced by the individual diagnosed with early onset Alzheimer's disease (65 years of age and younger) and their care pa...

09/10/2021

Please read and share. If you have experienced knowing/loving someone who has Early Onset Alzheimer's, please connect with Laura Sutherland, Founder & Executive Director, at laura@gaylewells.org. Please provide name and contact information.

The Gayle Wells Foundation for Early Onset Alzheimer's & Care is working on an exciting new intiative and we need your help.

We are seeking to connect with individuals whose loved one has passed away from early onset Alzheimer's disease and who was involved in the caregiving process. We will schedule one-on-one phone or Zoom calls and we will also provide the opportunity for small group conversations (3-4 people).

The criteria is as follows:
* Loved one received an official diagnosis of early onset Alzheimer's disease or other form of early onset dementia (65 years of age or younger).
* Loved one has passed away from the disease or other cause of death (loved one can be older than 65 years of age at time of death).
* Care partner (family member, partner, child, or friend) was involved in the daily care of their loved one.
* Care partners can be located anywhere within the United States.
We will be scheduling conversations between September 21-30, 2021. If you meet these criteria or know of someone who does, please email Laura Sutherland, Founder & Executive Director, at laura@gaylewells.org. Please provide name and contact information. We also invite you to share this message with your friends.
Thank you in advance for your willingness to help.

Important to be informed for yourself or someone you love
06/25/2021

Important to be informed for yourself or someone you love

National Consumer Voice

CMS Updates Nursing Home Guidance with Revised Visitation RecommendationsThe Centers for Medicare & Medicaid Services (C...
03/11/2021

CMS Updates Nursing Home Guidance with Revised Visitation Recommendations

The Centers for Medicare & Medicaid Services (CMS), in collaboration with the Centers for Disease Control and Prevention (CDC), issued updated guidance today for nursing homes to safely expand visitation options during the COVID-19 pandemic public health emergency (PHE).

This latest guidance comes as more than three million doses of vaccines have been administered within nursing homes, thanks in part to the CDC’s Pharmacy Partnership for Long-Term Care Program, following the U.S. Food and Drug Administration’s (FDA) authorization for emergency use of COVID-19 vaccines.

According to the updated guidance, facilities should allow responsible indoor visitation at all times and for all residents, regardless of vaccination status of the resident, or visitor, unless certain scenarios arise that would limit visitation for:

Unvaccinated residents, if the COVID-19 county positivity rate is greater than 10 percent and less than 70 percent of residents in the facility are fully vaccinated;
Residents with confirmed COVID-19 infection, whether vaccinated or unvaccinated, until they have met the criteria to discontinue transmission-based precautions; or
Residents in quarantine, whether vaccinated or unvaccinated, until they have met criteria for release from quarantine.
The updated guidance also emphasizes that “compassionate care” visits should be allowed at all times, regardless of a resident’s vaccination status, the county’s COVID-19 positivity rate, or an outbreak. Compassionate care visits include visits for a resident whose health has sharply declined or is experiencing a significant change in circumstances.

CMS continues to recommend facilities, residents, and families adhere to the core principles of COVID-19 infection control, including maintaining physical distancing and conducting visits outdoors whenever possible. This continues to be the safest way to prevent the spread of COVID-19, particularly if either party has not been fully vaccinated.

“CMS recognizes the psychological, emotional and physical toll that prolonged isolation and separation from family have taken on nursing home residents, and their families,” said Dr. Lee Fleisher, MD, CMS Chief Medical Officer and Director of CMS’ Center for Clinical Standards and Quality. “That is why, now that millions of vaccines have been administered to nursing home residents and staff, and the number of COVID cases in nursing homes has dropped significantly, CMS is updating its visitation guidance to bring more families together safely. This is an important step that we are taking, as we continue to emphasize the importance of maintaining infection prevention practices, given the continued risk of transmission of COVID-19.”

High vaccination rates among nursing home residents, and the diligence of committed nursing home staff to adhere to infection control protocols, which are enforced by CMS, have helped significantly reduce COVID-19 positivity rates and the risk of transmission in nursing homes.

Although outbreaks increase the risk of COVID-19 transmission, as long as there is evidence that the outbreak is contained to a single unit or separate area of the facility, visitation can still occur.

For additional details on the updated nursing home visitation guidance released today, visit here: https://www.cms.gov/medicareprovider-enrollment-and-certificationsurveycertificationgeninfopolicy-and-memos-states-and/nursing-home-visitation-covid-19-revised

A Fact Sheet can be found here: https://www.cms.gov/newsroom/fact-sheets/cms-updates-nursing-home-guidance-revised-visitation-recommendations

Nursing homes have been severely impacted by COVID-19, with outbreaks causing high rates of infection, morbidity, and mortality.[1] The vulnerable nature of the nursing home population, combined with the inherent risks of congregate living in a healthcare setting, have required aggressive efforts to...

Address

Houston, TX

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Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm
Saturday 9am - 5pm
Sunday 8am - 5pm

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+17139078957

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