Terry Lynn Arnold, founder, The IBC Network Foundation

Terry Lynn Arnold, founder, The IBC Network Foundation https://youtu.be/yumZD-hxYJg?si=g_eimyu7z3Sbdsre
I would love to share my story with you. Hope always. ❤️

02/19/2026

Everyone is welcome to come regardless of location!

Sometimes I feel like a very proud parent....when I see the growth! I'm so grateful for all the donors, the volunteers, ...
02/11/2026

Sometimes I feel like a very proud parent....when I see the growth! I'm so grateful for all the donors, the volunteers, the patients, the researchers and doctors.My gratitude is deep as the deepest sea!!!

IBC Network Foundation at the 2025 San Antonio Breast Cancer Symposium General | 0 comments Co authors: Terry Arnold and Stephanie Pilkinton Every December, the global breast cancer community gathers in San Antonio, Texas, for the San Antonio Breast Cancer Symposium (SABCS) — the largest breast ca...

02/06/2026

Such exciting news!

Just something a little lighthearted after a long day.And the chat wrote the sweetest poem about me.Did y'all do this?Di...
02/04/2026

Just something a little lighthearted after a long day.

And the chat wrote the sweetest poem about me.Did y'all do this?Did it write a poem?

Terry's story

Her eyes are kind but sharp — the eyes of a woman who has loved deeply, lost fiercely, and still believes. One eyebrow is always slightly raised, because Terry does not suffer fools, bad doctors, or injustice quietly.

Behind her is a garden, not perfect, but wildly alive. Roses spill everywhere, thorns and all — because beauty with no thorns is not the kind she trusts.

A small sign in the soil reads:
“Faith. Family. Fierce.”

And tucked in the corner, almost like a secret, a tiny banner:
“More than cancer.”

Because even though illness tried to claim her story, it only got one chapter.

The rest of the book is Terry:
Mother.
Grandmother.
Wife.
Believer.
Advocate.
Rose-tender.
And the woman who keeps holding the world, one baby at a time. 🌹

Please share your pics!

A familiar story that needs more conversation. https://www.mdanderson.org/cancerwise/austin-breast-cancer-survivor--why-...
02/01/2026

A familiar story that needs more conversation.

https://www.mdanderson.org/cancerwise/austin-breast-cancer-survivor--why-i-went-to-md-anderson-for-my-lymphedema-treatment.h00-159780390.html?fbclid=IwdGRjcAPsPWxleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAwzNTA2ODU1MzE3MjgAAR7QoLILRiiuzG83BKztLwT5XbSLZZPADxK3ngjxxKRSf5AqlLcY6Hsq0eF2TQ_aem_xRiqZStDqDU9GGZKNo3FMw

Stacey Beckworth traveled to MD Anderson from Austin for help with severe lymphedema. Now, she’s a huge fan of its aftercare and looks forward to receiving it at a new location in Austin.

01/30/2026

There's a story that matters.
And that story has saved uncounted lives.

I don't follow a lot of people.But there's just one woman that I just adore, and I found her first on instagram, but she...
01/29/2026

I don't follow a lot of people.But there's just one woman that I just adore, and I found her first on instagram, but she does these little affirming messages every day.And sometimes it's just a shot in the arm I need.

And she took a picture of herself, and she said, this is AI. She took a photo of herself and had it made it to a video, and then combined it with a voiceover of her messages. But I love it because I think a lot of us had very strong senses as children who we wanted to be. I know I did. But I was constantly being shut down...And this just somehow gave me a lot of comfort that I was right about myself and it felt good. Tks
Paula Fontana - Orator
https://www.instagram.com/reel/DT2thrRjc9D/?igsh=MXI2eHA3YzEzaHhudg==

I spend anywhere from 1 to 2 hours a day, (depending on need) five days a week talking to women who are seeking out to e...
01/27/2026

I spend anywhere from 1 to 2 hours a day, (depending on need) five days a week talking to women who are seeking out to either will out or confirm a diagnosis of inflammatory breast cancer.

One of the challenges that makes it so difficult is many of them are quite young.And they are dismissed.But what makes it even more difficult is often a mammogram will miss it.And alterson will show many things.But let me show you what it looks like to see inflammatory breast cancer on an MRI.

This is a classic view of inflammatory breast cancer on an MRI. And just for full disclosure, this woman had a clean mammogram and a clean ultrasound.

https://theibcnetwork.org/diagnosing-inflammatory-breast-cancer/

This is why I keep telling women, they have to go back until it's either ruled out or confirmed IBC. .Unfortunately, the tests that work very well for other types of breast cancer do not work well from inflammatory.

Sometimes it can be found on a mammogram, as ten percent of women with inflammatory do present with a lump. It's sometimes there's little hints on an ultrasound, but it's not something that the technicians are trying to look for because it's quite subtle, like skin thickening. .So again, these are some of the unique challenges that we face with what is rare and agressive disease.

Please share this post.This knowledge might make it easier for someone else and as talking about it is going to help spread education.

A very brief overview of some common challenges to diagnosis inflammatory breast cancer and MRI.

Dear friends traveling into Houston for treatment in the medical center.  This is the most respected weather anchor in H...
01/24/2026

Dear friends traveling into Houston for treatment in the medical center. This is the most respected weather anchor in Houston, and he also talks about airport travel. So fyi, he is definitely the one I would follow if I were you.

In brief: In today’s post we discuss the ongoing forecast with a winter storm that is due to arrive in Houston about 36 hours from now. With this update we list some things we know, and some …

MD Anderson in Houston, Texas is announcing emergency storm closings.https://www.facebook.com/share/17it1FM5DD/
01/23/2026

MD Anderson in Houston, Texas is announcing emergency storm closings.

https://www.facebook.com/share/17it1FM5DD/

THIS POST IS OUTDATED. PLEASE SEE OUR LATEST UPDATE ON OUR FACEBOOK PAGE.

Freezing temperatures are expected across Texas and the Houston area this Saturday, Jan. 24 through Monday, Jan. 26, with the potential for ice, hazardous road conditions and power outages. Your safety is our top priority.

We are canceling all outpatient appointments scheduled for this Sunday, Jan. 25. We continue to monitor the forecast for Monday, Jan. 26 and plan to delay the start of our operations at our locations in The Woodlands and Northwest Houston on Monday, with patient appointments starting at noon due to the potential for hazardous weather or road conditions. We will resume normal operations at our other campuses on Monday morning, if it is safe to do so.

If you have an affected appointment this weekend or early next week, MD Anderson will notify you directly to reschedule appointments or convert your appointment to a virtual visit, if appropriate. Monitor your MyChart messages for updates. Patients with travel concerns should reach out to their care teams via MyChart.

EMPLOYEES: We are activating ride-out teams on Saturday, Jan. 24, at our Texas Medical Center Campus to ensure adequate staffing to care for our patients and facilities. Managers are coordinating staffing for ride-out teams in critical areas. Employees should check their MD Anderson email and other organizational communications for more information. Contact your supervisor directly if you have concerns about your specific situation that may impact your ability to work during this weather event.

We encourage patients and employees to make plans to protect themselves, their families, their pets and their homes, and monitor road conditions before traveling this weekend and early next week.

Address

Houston, TX

Alerts

Be the first to know and let us send you an email when Terry Lynn Arnold, founder, The IBC Network Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Terry Lynn Arnold, founder, The IBC Network Foundation:

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram

Some of my story, to be continued...

It was in May, just about the date of my birthday in 2007 when I woke up and realized one breast was different. Everything about my life was changed from that moment.

It might surprise you to think that I am naturally a private person, but my desire to do something for women living with IBC has forced me to step outside my comfort zone and be very public with what I lived through. I do this because I don't want others to have to suffer months of misdiagnoses, or receive inadequate care, or know that physicians and researchers who wish to study this disease can't, due to lack of funding. I would have never thought 11 years later, I would not only would still be here, but that my life would put me in a place that could have such an impact on the world of inflammatory breast cancer.

In the last 11 years, I have joined in celebrations of great joy and I have witnessed the deepest of suffering. In the last 11 years I have been to more funerals than anyone should ever have to endure and I have seen miracles.