Terry Lynn Arnold, founder, The IBC Network Foundation

Terry Lynn Arnold, founder, The IBC Network Foundation https://youtu.be/yumZD-hxYJg?si=g_eimyu7z3Sbdsre
I would love to share my story with you. Hope always. ❤️

One of the comments made in the introductions last night was "When one woman rises, we all rise", and it was so true for...
03/26/2026

One of the comments made in the introductions last night was "When one woman rises, we all rise", and it was so true for me to sit in this room full of close to a thousand people and watch fifty women be honored for their outstanding contributions.

Dr. Bora Lim, was honored for her work. I was so proud to be there with Dr Wendy Woodward and others to celebrate this moment.

I was fortunate enough to be recognized about ten years ago for this honor, and then was able to nominate Dr. Woodward, and then together we nominated Dr. Lim.
I've attached a link to the magazine so you can flip through it and Dr Lim is on page thirty eight.

https://online.fliphtml5.com/lctmo/237280_single-page-no-crops-6zXi/?fbclid=IwdGRjcAQyIpdjbGNrBDIXuGV4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHiF24ZWdw9rT1-FEU7e_q6dFTz56XVzvoVRN85qtzWMpkMGa1_W5W9ewCqnD_aem_rQ1EXns8dGYca46Bx9rFpw

Beverly Denver it was a lovely evening but also what you were doing with your magazine is so amazing! Thank you.

03/25/2026

My day
March 25, 2026

03/24/2026

I want to tell you a little story because it makes me happy to meet nice people and I love it when other people are excited about what we 're doing!!!

03/11/2026

Some times we cry together.

03/09/2026

Clare Cory's services info.

Lab tour and goals setting!With Dr. Dionisia Quiroga and some of her team.
03/06/2026

Lab tour and goals setting!
With Dr. Dionisia Quiroga and some of her team.

I absolutely love the Austin airport! It's small, fast and easy and the staff is so friendly.Can't wait to see you  Colu...
03/05/2026

I absolutely love the Austin airport! It's small, fast and easy and the staff is so friendly.Can't wait to see you Columbus, Ohio and Indianapolis, for meetups this weekend!

Every once in a while, someone comes across your path who really gets it. And this woman really gets it.Stephanie is a n...
03/04/2026

Every once in a while, someone comes across your path who really gets it. And this woman really gets it.
Stephanie is a nurse practitioner who is writing about science and health. And she's focusing heavily on inflammatory breast cancer. She personally was not diagnosed with it, but she gets it because her best friend was diagnosed and passed away. Stephanie was with her for every moment, literally up into the minute she passed.
After taking some time from heal from this experience, if ever you could ever really heal from such an experience, she's taken to writing in focusing heavy on inflammatory breast cancer, and she gets it in a way that is so remarkable
I would love to encourage you to follow her and share her articles because they're powerful and insightful and thoughtful and raw and real and hopeful.

https://open.substack.com/pub/sweetteaandscience/p/no-evidence-of-disease-is-not-the?utm_campaign=post&utm_medium=email

Please read this and share this and again.Thank you, Stephanie for your thoughtful article!

What “No Evidence of Disease” really means for inflammatory breast cancer survivors.

When is it the beginning? And when is it the end?I used to think a sunrise and a sunset looked the same. If you didn’t k...
03/02/2026

When is it the beginning? And when is it the end?

I used to think a sunrise and a sunset looked the same. If you didn’t know whether you were facing east or west, how could you tell? But a dear friend once taught me they are very different.

She taught me to notice the nuances — the subtle shifts that are almost prophetic, and deeply comforting. She was drawn to the sunrise. I have always been drawn to the sunset. Because of her, I see them both more clearly now.

A sunrise carries a fresh clarity in its gentle glow. It warms gradually, brightening with quiet promise as the day begins.

A sunset is different. There is a more definite descent, an awareness that the day is closing. Yet it softens into an embrace, as orange deepens into richer hues, then into blue and purple before surrendering to night. There is something peaceful in that surrender. Something comforting.

Today, as we say goodbye to my dear friend, I find myself thinking about what she taught me. Perhaps what feels like an ending here is also a beginning we cannot yet see. Perhaps the glow simply shifts direction.

I am grateful for the wisdom she shared, for the way she helped me notice light, and for the difference she made in how I see both beginnings and endings.

( A sunrise and a sunset from the same spot in my yard....look so different depending on which direction you're looking)

I am always honored to support Dr. Lim's conference.   The IBC Network Foundation is a sponsor yearly and this year I wi...
02/27/2026

I am always honored to support Dr. Lim's conference. The IBC Network Foundation is a sponsor yearly and this year I will offer a talk on advocacy.
And it feels good to have Carol Mikel here with me once again, in her new role as executive director.
❤️

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Houston, TX

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Some of my story, to be continued...

It was in May, just about the date of my birthday in 2007 when I woke up and realized one breast was different. Everything about my life was changed from that moment.

It might surprise you to think that I am naturally a private person, but my desire to do something for women living with IBC has forced me to step outside my comfort zone and be very public with what I lived through. I do this because I don't want others to have to suffer months of misdiagnoses, or receive inadequate care, or know that physicians and researchers who wish to study this disease can't, due to lack of funding. I would have never thought 11 years later, I would not only would still be here, but that my life would put me in a place that could have such an impact on the world of inflammatory breast cancer.

In the last 11 years, I have joined in celebrations of great joy and I have witnessed the deepest of suffering. In the last 11 years I have been to more funerals than anyone should ever have to endure and I have seen miracles.