Terry Lynn Arnold, founder, The IBC Network Foundation

10/15/2025

Just a quick touching base after what has been a whirlwind of travel.
Some personal, some work, but life is personal.Isn't it?
Hope always.

10/12/2025

Hope lives in the day to day. In the "ordinary" the things that we all assume will just happen, but really are so overwhelming special!
Hope lives in the day to day.

Today will go down as one of the best days in my life.

Thank you Clare and Don for the honor of your friendship.

10/10/2025

I often speak of my up and down relationship with facebook.They were banning us two days ago, but they love us today!

Our bipolar relationship with facebook. They love us today!

10/09/2025

There are two documentaries coming out in the new year that are focusing on breast cancer. One is focusing exclusively on inflammatory breast cancer, inspired by the story of one patient.

There's a second one coming out of an international effort that is going to have a large global view in its presentation.I'm extremely honored to be in both. I want you to watch this link and share it. Please stay tuned for more details as it will be released in the new year.It will be first released in May of 2026 in Australia. The US release date is pending after that.

Check out the official trailer for the upcoming impact film Conquering Breast Cancer. As of the end of 2020, there were 7.8 million women alive who were diag...

10/09/2025

OvernightWe got the alert that some of our p*sts have gone against c*mmunity st*ndards.In the last few days.This is why it is so important that you sign up for our newsletter.So we have your direct contact.If you are not part of our newsletter community, please sign up.Www.theibcnetwork.org

10/08/2025

If you've been following our social media or or a subscriber to our newsletter, you would have heard of John Schulenberg and Marnie's Army.

John's mission is to have a law passed to require IBC education to be taught in nursing school in the state of Mamassachusetts. He just contacted me late last night with this last minute invitation that he was just notified of.

Unfortunately, I can't get there on such short notice due to expense, and a tight schedule, but I would love to see a good turnout. If you're in the Boston area and can join for this event, I think it will lend credence, to what he is trying to do.

To contact John, see link. Home - Marnie's Army https://share.google/uNu1rqXZ70cXlLWsR

10/08/2025

I want to share this big news! I want to also give a shout out how proud I am of them for how hard they have worked and to be so faithful this life-changing cause!

10/07/2025

I've been pondering something after listening to the women over the weekend.Let me know how you refer to yourself.

Past Tense Words

Often, when we think of something in the past tense, it’s because we’re longing for it again.
We say things like, “I remember Grandma’s screen door slamming shut,” or “I miss when we were kids and used to…” — little moments wrapped in nostalgia. Even recalling a favorite meal no one makes anymore brings a wistful ache.

But something someone said recently stopped me cold — hit me right between the eyes.
When I was asking women with inflammatory breast cancer how they refer to themselves after diagnosis — a survivor, a thriver, someone living with cancer — I got all kinds of answers.

One woman said, “I’m a survivor. I was a survivor the day I was diagnosed, because I’m surviving.”
But another woman said something that changed the way I look at the word entirely:
“I can’t think of myself as a survivor, because that word is past tense. And I’ll probably never be a survivor, because I’m still living with cancer.”

I had never thought of it that way — survivor as a past tense word.

Even for myself, though I’ve been well for 18 years, I can’t bring myself to use that word. I’m still living with the consequences — the scars and side effects of treatment. It’s not in the past for me.

There’s only one part of my life where the word survivor truly fits, and that’s being a r**e survivor.
That was a one-time event. I lived through it. I healed. Yes, it left scars and pain, but I can clearly place that in my past.

Cancer isn’t like that.
It’s not something I can ever put behind me. No matter how many years pass, it remains part of my present.

Hearing that woman’s words helped me understand why, for eighteen years, I’ve wrestled with what to call myself. It finally made sense — I’ve never stopped living with it, because it never really leaves.

And maybe that’s the point.
Maybe some things aren’t meant to be boxed up in the past tense. Maybe they shape us in ways that keep unfolding. I don’t have to be a survivor to be strong. I don’t have to close the door on this chapter to live fully.

I’m not past it — I’m present in it.
And that, too, is living.

10/07/2025

A short article with IBC specialist, Dr. Woodward about reoccurrence.

https://www.mdanderson.org/cancerwise/cancer-recurrence--4-questions-to-ask.h00-159780390.html?fbclid=IwdGRjcANSP0BleHRuA2FlbQIxMQABHigLe1FfyU0DowCA9dCKHmTqls39GK4qAIvUHS6mXe2vMnGAWYYhdGbemSuq_aem_nDw9sHujVk7i7LRgaeTDRA

With Wendy Woodward

What happens when cancer recurs? Radiation oncologist and inflammatory breast cancer specialist Wendy Woodward, M.D., Ph.D., explains and shares four questions to ask your care team.

10/06/2025

I put together a little vase of flowers as a thank you to leave to the hotel staff for being so kind to us during the meetup in Nashville, and I can't wait to come here again.But please mark your calendar for the first week in October 2025. We will be having the next ultimateup in Houston, Texas!

10/05/2025

Today is the Jimmy walk in Boston. There is an IBC team walking, and since I could not be there in person.I got my friends to do a shout out, and there will be a donation to follow!

Go IBC research.

If you would like to and you're treated at Dana Farber please tag yourself in this post and share with your family and friends!

10/03/2025

If you are meeting us for the lab tour at Vanderbilt in the morning.The address is:
2220 Pierce ave
Nashville, TN. 37232

Address for GPS: 2311 Pierce Ave, Nashville, TN 37232 Address for Uber/Lyft: 2220 Pierce Ave, Nashville, TN 37232
Parking: Visitor parking is available in the South Garage (2311 Pierce Ave, Nashville, TN 37232), located about a 1-minute walk from the meeting location. The South Garage is across the street from the VICC entrance and attached to the Monroe Carell Jr. Children’s Hospital. You will also see the Vanderbilt Eye Institute on the corner. Enter the South Garage and park in a space designated for patients and visitors. The parking is free of charge.
Walking: Take the elevators down to the Ground (G) floor and walk towards Pierce Avenue (to your left). Walk across the street- the Vanderbilt-Ingram Cancer Center entrance is directly on the corner of Pierce and 23rd Avenue. There is valet parking available directly in front of our building for those with mobility issues or for rideshare drop-off. We recommend giving yourself 10 minutes to park and walk to the Cancer Center.
Meeting Location: The meeting will take place in the Preston Cancer Research Building (PRB), Room 898J (2220 Pierce Ave, Nashville, TN 37232). As you enter our building, you will walk through our security system (metal detectors) – please leave any pocketknives in your car. Due to elevator access restrictions, VICC staff will be stationed in the lobby to es**rt you to the meeting room.