HDSA Indiana Chapter

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HDSA Indiana Chapter

HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families

11/10/2025

🌸🌿Pre order your Amaryllis now, and give a gift that blooms this season!

Pre order yours now! Deliveries begin next week, November 18th.

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together.

Click: http://HDSA.fpfundraising.com to learn more.

11/06/2025

🌸🌿 Give a gift that blooms this Amaryllis season!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Pre order your Amaryllis now! Deliveries begin November 18th.

Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together.

Click: http://HDSA.fpfundraising.com to learn more.

11/04/2025

🌸🌿 This November, Amaryllis season is in full bloom!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together.

Click: http://HDSA.fpfundraising.com to learn more

11/03/2025

uniQure AMT-130 Update

Today, uniQure shared a press release with some disappointing news regarding the FDA regulatory process for their investigational gene therapy, AMT-130.

HDSA remains steadfast in our commitment to transparency and ensuring families have accurate, timely information as this situation evolves. We are in close contact with uniQure and will share updates as soon as new information becomes available.

To our HD families, caregivers, and advocates, we urge patience, compassion, and continued unity. The road toward treatments is rarely straightforward, but every step, even the hard ones, brings us closer to that goal. 💙

If you need support, reach out to HDSA’s National Helpline at info@hdsa.org or (800) 345-HDSA (4372).

🔗 Read uniQure’s full statement & Community Letter: https://hdsa.org/news/uniqure-provides-regulatory-update-on-amt-130-for-huntingtons-disease/

10/31/2025

Watch our newest webinar: What the AMT-130 news means for the HD Community, now available on our YouTube channel.

This video features:
A conversation with Dr. Arik Johnson, PsyD (HDSA), Dr. Walid Abi-Saab (uniQure) and Dr. Sarah Tabrizi (UCL), covering what the recent uniQure news on gene therapy means for HD families and what to anticipate next.

To watch the full video, visit: https://www.youtube.com/watch?v=CR3ipoAT5bw

10/30/2025

Join us TODAY, Thursday, October 30 at 2:00 PM ET for a Conversation about the uniQure AMT-130 Announcement.

The recent uniQure news on gene therapy for Huntington’s disease has generated excitement and questions across the community.

This event will feature:
A conversation with Dr. Walid Abi-Saab (uniQure) and Dr. Sarah Tabrizi (UCL)

Followed by Q&A with HDSA's own Dr. Tam Maiuri, MaryAnn Emerick, and Allison Bartlett, Esq.

To register, and learn what the results mean for HD families and what to anticipate next, visit: https://hdsa-org.zoom.us/webinar/register/WN_lsxS7Pq_RFeOaOwyvrNnig?fbclid=IwY2xjawNvJJJleHRuA2FlbQIxMABicmlkETFHUkxIazRzbkNaZFFjZ2ZKAR73nMuqs0PS-2pdmksk3vhNIfHmOhAbWq0tzRFzuYYMrlt_SJp5jxxdO1GYbw_aem_i7HjSystgRsBPXg_gVArBg #/registration

10/29/2025

The recent uniQure news on gene therapy for Huntington’s disease has generated excitement and questions across the community.

Join us TOMORROW for a Conversation about the uniQure AMT-130 Announcement.

📅 Tomorrow, Thursday, October 30 | 🕑 2:00 PM ET

This event will feature:
A conversation with Dr. Walid Abi-Saab (uniQure) and Dr. Sarah Tabrizi (UCL)

Followed by Q&A with HDSA's own Dr. Tam Maiuri, MaryAnn Emerick, and Allison Bartlett, Esq.

To register, and learn what the results mean for HD families and what to anticipate next, visit: https://hdsa-org.zoom.us/.../WN_lsxS7Pq_RFeOaOwyvrNnig

10/27/2025

🌸🌿 Amaryllis season is in full bloom!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together.

Click: http://HDSA.fpfundraising.com to learn more

10/26/2025

Join Us for a Conversation about the uniQure AMT-130 Announcement
The recent uniQure news on gene therapy for Huntington’s disease has generated excitement and questions across the community.
📅 Thursday, October 30 | 🕑 2:00 PM ET
This event will feature:
🎥 A conversation with Dr. Walid Abi-Saab (uniQure) and Dr. Sarah Tabrizi (UCL)
💬 Followed by Q&A with HDSA's own Dr. Tam Maiuri, MaryAnn Emerick, and Allison Bartlett, Esq.
Register at https://hdsa-org.zoom.us/webinar/register/6917612418591/WN_lsxS7Pq_RFeOaOwyvrNnig to learn what the latest results mean for HD families and what to expect next.

10/23/2025

🌸🌿 Amaryllis season is officially HERE!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together
http://HDSA.fpfundraising.com

10/20/2025

We hope to see you again this year to celebrate the amazing research developments recently announced!! Please register while tables are still available!

11/15 at Half Liter in Broad Ripple.
Dinner, band, auction, comraderie.
$75/ticket or a table for 8 for $500.

Please share! Invite your friends and family 💙

https://indiana.hdsa.org/events/2025-celebration-of-hope-indiana

Address

P. O. Box 40464
Indianapolis, IN
46240

Website

http://indiana.hdsa.org/

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