HDSA Indiana Chapter

HDSA Indiana Chapter HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families

On Monday, April 13, we are calling on you to help ensure that members of Congress hear directly from the Huntington’s d...
04/06/2026

On Monday, April 13, we are calling on you to help ensure that members of Congress hear directly from the Huntington’s disease (HD) community by phone and/or email.

How You Can Take Action Today:
Submit a Letter to the Editor to your local newspaper.
Use the sample Letter to the Editor to help raise awareness in your local community and encourage public support for families impacted by Huntington’s disease.
CLICK HERE:https://hdsa.org/advocacyhome/TakeAction/?vvsrc=%2fBlogPosts%2f8626

Find out more about the Huntington’s Disease Day of Action, here: www.hdsa.org/hddayofaction

Thank you to everyone who donated, sponsored, attended, shared, and volunteered for our HD Bowl-A-Thon! We raised over $...
03/25/2026

Thank you to everyone who donated, sponsored, attended, shared, and volunteered for our HD Bowl-A-Thon! We raised over $11,000! We appreciate all you do so that we can give back to our local HD communities and fund research on a national level. If you have photos you’d like to share, please post in the comments!

Make sure you subscribe to HDSA Indiana emails for information about our July Statewide Team Hope walks and our November Celebration of Hope. If you’re interested in volunteering, please let us know!

Special thank you to our event photographer, Dennis Yohler and event emcee, Scott Mills!

We acknowledge HD Gene Discovery Day as a moment to reflect on how far the Huntington’s disease community has come since...
03/23/2026

We acknowledge HD Gene Discovery Day as a moment to reflect on how far the Huntington’s disease community has come since 1993.

This is a time to recognize the progress made possible through the strength, courage, and partnership of families, researchers, clinicians, advocates, and volunteers across the HD community.

For more than three decades, families impacted by Huntington’s disease have helped move this work forward in deeply meaningful ways — by sharing their stories, participating in research, supporting one another, raising their voices, and continuing to show up for this community again and again.

Because of that collective commitment, we know more now than we did in 1993. We have made meaningful progress, and we continue to move forward together with purpose and hope.
At HDSA, we are honored to stand with this community as we continue working toward better treatments, better care, and a better future for all families impacted by Huntington’s disease.

To read the full article, visit:https://hdsa.org/wp-content/uploads/2026/03/Researchers-Locate-Gene-That-Triggers-Huntingtons-Illness-The-New-York-Times.pdf

‼️ Registration will be closing at 4pm today!If you are wanting to attend our bowling event and haven’t registered yet, ...
03/13/2026

‼️ Registration will be closing at 4pm today!
If you are wanting to attend our bowling event and haven’t registered yet, please do so today! We can’t wait to see you there!

www.indiana.hdsa.org/bowl26

Address

P. O. Box 40464
Indianapolis, IN
46240

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