PF Warriors - Pulmonary Fibrosis, IPF, other Rare Lung Diseases

02/14/2026

Love is…
Carrying the tank.
Adjusting the tubing.
Holding the hand.
Showing up anyway.

Happy Valentine's Day from all of us at PF Warriors! ❤️💙

02/10/2026

PF Warriors invites patients, caregivers, and loved ones to join us for an upcoming educational webinar focused on understanding rheumatoid arthritis-associated interstitial lung disease (RA-ILD) and autoimmune-related interstitial lung disease.

🗓️ Saturday, February 14, 2026
🕙 10:00 am Central Time (US)
📍 Online via Zoom
🔗 https://go.pfwarriors.org/ED0226

We know many in our community have questions about how autoimmune diseases, such as rheumatoid arthritis (RA), can affect the lungs. This educational meeting is designed to provide clear, trustworthy information and help you feel more prepared for conversations with your healthcare team.

What You'll Learn:
❤️ Understand what RA-ILD is and how autoimmune diseases such as rheumatoid arthritis can affect the lungs
💙 Recognize common symptoms, risk factors, and diagnostic steps used to identify RA-ILD and other autoimmune-related ILD
❤️ Learn how RA-ILD and autoimmune-related ILD are monitored and managed, including the importance of multidisciplinary care and coordination across your medical team

02/05/2026

Our PF Warrior Patient Guide to Living with Pulmonary Fibrosis is a 30-page resource created by PF Warriors members, just like you.

It offers practical advice and shared experiences to help you live your best life with pulmonary fibrosis (PF) and interstitial lung disease (ILD).

Download or keep a copy handy, as some topics may become more relevant over time. While this guide is well-researched, always consult your healthcare team before making medical decisions. Every PF journey is unique.

https://pfwarriors.org/wp-content/uploads/2025/01/PF_Warriors_Patient_Guide_091021.pdf

02/02/2026

February 2 is Rheumatoid Arthritis Awareness Day

Many people know rheumatoid arthritis affects joints. Fewer realize it can also affect the lungs.

In recognition of Rheumatoid Arthritis Awareness Day, PF Warriors is inviting patients, caregivers, and loved ones to join us for an upcoming educational webinar focused on rheumatoid arthritis–associated interstitial lung disease (RA-ILD) and other autoimmune-related ILD.

🗓️ Saturday, February 14, 2026
🕙 10:00 am Central Time (US)
📍 Online via Zoom
🔗 https://go.pfwarriors.org/ED0226

We know many in our community have questions about how autoimmune conditions like rheumatoid arthritis can impact lung health. This webinar is designed to provide clear, reliable information and help you feel more confident when talking with your healthcare team.

What you’ll learn:

❤️ What RA-ILD is and how autoimmune diseases can affect the lungs
💙 Common symptoms, risk factors, and how RA-ILD and other autoimmune-related ILD are diagnosed
❤️ How RA-ILD is monitored and managed, including the role of coordinated care across your medical team

01/29/2026

Before her double lung replacement, Diana Derbas relied on supplemental oxygen to keep herself alive and her lungs functioning while living with primary ciliary dyskinesia (PCD). Her sister also lived with PCD and experienced gaps in access to supplemental oxygen – like many oxygen users across Louisiana and the US.

“Policymakers must recognize the gravity of access barriers to supplemental oxygen and take steps to reform our current system, improve patient access, and streamline inefficiencies that impede the delivery of care,” Diana writes.

Read her letter in the Minden Press-Herald on why lawmakers should support the Supplemental Oxygen Access Reform (SOAR) Act (S.1406/H.R.2902) to ensure Medicare patients get the care they need.

01/28/2026

“The fire in her really inspired me as a caregiver to support her in her mission.” — Laura Dern, caregiver, whose mother Diane Ladd lived with idiopathic pulmonary fibrosis (IPF)

We see that same fire in our PF Warriors caregivers every single day. We see your quiet strength, the steady love, and the way you keep going, even when it is hard.

Thank you to our partner Boehringer Ingelheim, for supporting awareness and education around pulmonary fibrosis.

Actor Laura Dern joins TODAY to talk about how she is honoring her mother Diane Ladd’s life and legacy after she passed away from idiopathic pulmonary fibrosis in November of 2025. She opens up about her new awareness campaign for the disease called Beyond the Scars, how her mother fought the illn...

01/26/2026

Living with interstitial lung disease (ILD), including pulmonary fibrosis (PF), presents unique challenges. Recognizing the early symptoms can lead to earlier diagnosis and better management of the disease.

Our newly designed website has helpful information, shares common symptoms, coexisting conditions and more to learn about.

https://pfwarriors.org/learn-about/symptoms

01/24/2026

We’re encouraged to see this Trevi Therapeutics clinical trial coming to the United States.

For so many living with pulmonary fibrosis, cough is more than a symptom, it’s daily life. Finding meaningful relief can’t come soon enough!

We'll share more information about the trial in the U.S. as it becomes available.

Thank you Naftali Kaminski for sharing with us!! 💙❤️

This randomized clinical trial examines the safety and efficacy of oral nalbuphine in patients with chronic cough caused by idiopathic pulmonary fibrosis.

01/23/2026

Thank you, American Thoracic Society, for sharing this video of PF Warrior Yvonne telling her story!

01/20/2026

Join us for our monthly PF Warriors open question and answer meeting.

🗓️ Date: Thursday, January 22, 2026
🕙 Time: 10:00 am Central Time (US)

This monthly session is led by patients and caregivers. Ask questions and learn more about living with pulmonary fibrosis (PF).

We, as patients and caregivers, are here to support and help each other. Whether you have questions or can contribute answers, your presence is valuable.

https://go.pfwarriors.org/W2W0126

01/19/2026

Caregivers, we see you!

If you care for someone living with pulmonary fibrosis, we have a resource that may help. Our Caregiver’s Guide was written by caregivers in the PF Warriors community. It offers practical information and lived experience. We hope it answers some of the questions you may have and gives you a sense of support.

01/16/2026

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PF Warriors is a global support network that provides education, inspiration, and hope to individuals and families affected by pulmonary fibrosis. Our mission is to help people facing a life-altering progressive lung condition to live their best possible lives after diagnosis.