Help for Huntington’s KC

12/13/2025

2025 H4HKC Christmas party is in the books! 🎅🏻We had a wonderful time hosting this event last night. Food was great 🌮 hot cocoa bar and dessert was delicious💙 Lots of smiles and holiday fun 🎄

12/07/2025

Don’t forget to RSVP by 12/10 if possible and join us for a night of Christmas fun!!

Improving the lives of Kansas City families affected by Huntington's Disease. We provide care, resources, & compassionate support. Get involved today

11/24/2025

Our 3rd annual Christmas party is right around the corner.
Friday December 12th
Gladstone Mo Community Center
Dinner will be served at 6:00 pm
An evening of fun with food, games, Santa and community with each other!!
This event is completely free!
We do need you to RSVP with number attending to allow for food and seating.
Hope to see all of you there!!
h4hkc.org
🎄🎅🎁🌮

Improving the lives of Kansas City families affected by Huntington's Disease. We provide care, resources, & compassionate support. Get involved today

10/30/2025

Huntington’s Disease Society of America (HDSA) is hosting a special two-part webinar to discuss recent updates from uniQure regarding their gene therapy for Huntington’s disease.
🧬 Webinar: What the AMT-130 News Means for the HD Community
📅 Thursday, October 30
🕑 *2:00–4:00 PM ET (*1:00pm – 3:00pm CST)
The event will include expert perspectives from Dr. Walid Abi-Saab (uniQure) and Dr. Sarah Tabrizi (University College London), followed by a live Q&A discussion with HDSA team members.

10/25/2025

What a wonderful morning it was to spend it celebrating and raising money/awareness for HD! Thank you to all those who came out to participate, shop, eat, volunteer, organize and support! Each one of you made a difference in the lives of those with HD today 💙

10/20/2025

See you Saturday!!!

10/17/2025

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10/15/2025

10/12/2025

International speaker and author Jimmy Pollard is joining us for a special session via ZOOM Monday, October 13 at 7 pm during Iur support group meeting

Jimmy is known worldwide for his engaging talks on Huntington’s disease and for his book Hurry Up and Wait! – a guide that has helped countless families and professionals better understand the challenges people face and how to support them. At this meeting, Jimmy will:

Explore the unique thinking challenges of Huntington’s disease

Share why these challenges can be so hard for the entire family

And is available to answer your questions!

He has visited our group several times over the years - and every time we learn more! You will want to plan to attend in person or via ZOOM, if HD is new for your family or if HD has been in your family for generations!

10/10/2025

Sign up online at HDSA.org/thwliberty 💙Join us for a celebration and do some Christmas shopping 🎄at our auction. Breakfast by Chris Cakes will be served, too 🥞