It was a difficult decision we faced as a family to make the choice of rotation plasty, but we are hopeful and excited to see CJ's life change - he will walk again. Not only walk, but we look forward to seeing him run, play basketball, baseball, and all of the things he has only dreamed of doing. Cj was born with two types of bone diseases, multiple osteochondromas (non-cancerous bone tumors), and proximal femoral focal deficiency (PFFD) a rare, non-hereditary birth defect that affects the pelvis, particularly the hip bone, and the proximal femur. The disorder may affect one side or both, with the hip being deformed and the leg shortened. Throughout his life, he has had 7 surgeries to remove remove extra bone growth. He has spent the majority of his life in a wheelchair. This page is dedicated to his journey, his perseverance, strengh, and bravery to overcome the obstacles. Cj will be having a surgery called,"Rotation Plasty". The procedure will be to fuse his knee to his pelvis, creating an up and down motion. The knee will act as a hip. His leg will be rotated, and his heel will act as his knee. He will wear an prosthetic leg, from the heel down. The surgery will be done in West Palm Beach, Florida, by Dr. Paley, at St. Marys Hospital. September 27th, and it will be approximately 14 hours in length. We will be in Florida anywhere between 4-6 weeks for surgery, recovery, and rehab. CJ's goal is to be able to walk the 3k here in Kansas City on Thanksgiving Day. For any information please contact Joel Hebert via email at joelhbrt@yahoo.com or Rochelle Hebert at shell.hebert@yahoo.com.
