Praying For John

Praying For John John was born with an extremely rare neurogenetic disease, Type 2 Gaucher's Disease. John and his family need your prayers and support.
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Happy Tuesday, friends! Happy holidays!! ☃️❄️✨️ Welcome to this week's $2 Tuesday! Let's do this! ☃️ ☃️❄️✨️ Because we'v...
12/23/2025

Happy Tuesday, friends! Happy holidays!! ☃️❄️✨️

Welcome to this week's $2 Tuesday!

Let's do this! ☃️

☃️❄️✨️ Because we've had some people message and ask about mail for our children, they absolutely love mail! 🫶🏻
Our mailing address is:

Po Box 13057
Edwardsville, KS 66113

☃️❄️✨️ PayPal:

☃️❄️✨️ Venmo: Johns_Journey

☃️❄️✨️ CashApp: $JohnsGaucherJourney

☃️❄️✨️ Https://gofund.me/ec844d77

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We are so incredibly grateful for this team, and everything they've done for John and our family! ❤️
12/20/2025

We are so incredibly grateful for this team, and everything they've done for John and our family! ❤️

Season's greetings from Team LDRTC! Thank you for an amazing year. Wishing you a happy holiday season and a strong start to the New Year.

Hudson is home! 🥳🙌🏻
12/20/2025

Hudson is home! 🥳🙌🏻

There are truly no words big enough to hold the gratitude in our hearts, but we want to try.

Over these past weeks, our family has been carried by prayers, love, and support in ways we never imagined. Hudson’s journey has been wrapped in the hands of so many—our community, our prayer warriors, our friends, our family, and even complete strangers who chose to love us so deeply without ever meeting us.

To every person who prayed, checked in, shared encouragement, cried with us, or lifted Hudson’s name to Heaven—please know we felt it. We believe with our whole hearts that those prayers moved mountains and covered our sweet boy when we couldn’t.

To those who went above and beyond during this holiday season—who made sure our other children were loved, cared for, spoiled, and supported—thank you. You lifted burdens we didn’t even have the strength to name. You eased stress off mom and dad’s shoulders in the most selfless ways, and we will never forget that kindness.

This season has reminded us just how powerful love and community truly are. When we were exhausted, scared, and stretched thin, you stepped in and held us up.

And today, we get to share the most beautiful gift of all…

Hudson is coming HOME.

There is no Christmas present that could ever compare to that. Our hearts are overflowing with gratitude, faith, and hope, and we will forever be thankful for every single person who walked this road with us.

From the bottom of our hearts—thank you.





Happy Tuesday, friends! ☃️❄️In an effort to pay off this trip as quickly as possible and begin saving for the next round...
12/16/2025

Happy Tuesday, friends! ☃️❄️

In an effort to pay off this trip as quickly as possible and begin saving for the next round of medical traveling in April, while not falling behind on bills and daily life....

Welcome to this week's $2 Tuesday!

Let's do this! ☃️

❄️ Because we've had some people message and ask about mail for our children, they absolutely love mail! 🫶🏻
Our mailing address is:

Po Box 13057
Edwardsville, KS 66113

❄️ PayPal:

❄️ Venmo: Johns_Journey

❄️ CashApp: $JohnsGaucherJourney

❄️ Https://gofund.me/ec844d77

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Infusion Day! 💪🏻 We arrived home last night, and in the chaos of trying to unload the car, care for our children, and ge...
12/16/2025

Infusion Day! 💪🏻

We arrived home last night, and in the chaos of trying to unload the car, care for our children, and get everyone to bed, we forgot to update.

Thank you all for praying for a safe and productive trip for John's appointments. This round of traveling was more exhausting than usual, but we are thankful that all of our appointments went well, and that we have clear plans moving forward.

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Our friend Hudson had a setback today. Please continue to think of him and pray for his recovery.
12/15/2025

Our friend Hudson had a setback today. Please continue to think of him and pray for his recovery.

Sunday 11/14/25 ::

The sweetest boy.
I was really hoping to share a positive update today… but for now, I’m asking for more prayers.

We restarted Hudson on his regular feed regimen today, which unfortunately led to a reflux episode this afternoon. By evening, he began running a fever, and later tonight he had a major reflux episode. I am praying so, so hard that he did not aspirate and that this is not a significant setback.

Earlier today, Hudson was able to wean down to 15L of high-flow oxygen, and we had hoped to trial him on his home vent tonight. After the second major episode, though, he had to be placed back on the ICU ventilator. We’ll regroup and come up with a new plan tomorrow.

This has been such a tough road for our boy—sepsis, organ injury, heavy sedation, withdrawals, seizures, two surgeries, three incisions… and yet somehow, he still finds a way to smile through it all. His strength humbles me every single day.

I would be lying if I said I wasn’t on high alert right now with the sudden rise in Flu A. I am praying hard—for Hudson, for Olivia, Gavin, Jeremy, and myself—that we do not come into contact with any more sickness. I am asking God for a hedge of protection around our entire family.

Please continue to lift Hudson up in prayer. We feel them, and we need them. 🤍

“The Lord will keep you from all harm—
He will watch over your life;
the Lord will watch over your coming and going
both now and forevermore.”
Psalm 121:7–8



Spent the night in Louisville, and heading to St. Louis shortly! John had a great night and is feeling much better today...
12/14/2025

Spent the night in Louisville, and heading to St. Louis shortly! John had a great night and is feeling much better today. 🥰

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John turned 21 months old today! We are thankful for every day of him! 🥰  🦓🧬  💙  🙏  💪🏻  🦓❤️
12/13/2025

John turned 21 months old today! We are thankful for every day of him! 🥰

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Drove from Fairfax VA to Kingsport TN today! Here for just a couple of nights so that we can spend the day tomorrow with...
12/12/2025

Drove from Fairfax VA to Kingsport TN today! Here for just a couple of nights so that we can spend the day tomorrow with our family here.

John did not tolerate the drive today as well as he has been. As we were trying to settle in tonight, he was crying and had a slight tremor, as he always has with any kind of pain. We gave him his respiratory treatments and medicine, and he calmed down and went to sleep very quickly. We hope that he sleeps peacefully and long, and that he is feeling well again tomorrow.

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Summary of Immunology appointment this morning! ☃️ Made a plan to push John's IVIG through insurance. Our pediatrician h...
12/11/2025

Summary of Immunology appointment this morning!

☃️ Made a plan to push John's IVIG through insurance. Our pediatrician has been trying but it seems insurance won't accept from a P*P. This will likely be injections that I will administer at home, as IVIG infusion with a nurse is much harder to get approved.

☃️ John was prescribed a new cream to try to finally get his eczema under control.

☃️ Got a script for a new anti-inflammatory med that will hopefully help improve John's lungs.

We are planning to get some extra rest this evening, and leave DC tomorrow!

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Address

Kansas City, MO

Website

https://www.caringbridge.org/site/8183419c-a51a-11f0-bb11-4f413c8b0edf?utm_source=website_sh

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