The Association for Frontotemporal Degeneration

12/11/2025

These are photos of AFTD advocates who secured proclamations and resolutions recognizing FTD in their communities this year. ❤️

Their dedication helps bring earlier diagnosis, better support, and increased awareness to families across the country. You can be part of this change, too.

✍️ Sign up for AFTD’s Action Center to receive alerts, tools, and simple steps to advocate in your state: https://bit.ly/4rRzjia

12/10/2025

AFTD CEO Susan L-J Dickinson recently joined hosts Heather Mulder and Janice Greenough on the Dementia Untangled podcast to discuss FTD, sharing insights about diagnosis challenges, the impact on families, and the vital role of community support.

👉 Learn more: https://bit.ly/48Dljjb

12/09/2025

AFTD has come a long way since 2002, from launching our HelpLine and Comstock Grants to building research partnerships and national advocacy efforts. ❤️

Swipe through to see how far we’ve come, and where we’re heading next with our 2025–2028 Strategic Plan: https://bit.ly/48EVb7K

12/08/2025

In this clip from our 2025 Education Conference, AFTD’s Shana Dodge shares how global research efforts, new gene discoveries, and emerging biomarkers are shaping the future of FTD research and driving hope forward.

Click the link to watch the full FTD 101 session to learn more about where research is headed and how progress is being made: https://bit.ly/4nvvAn9

12/07/2025

Sharing an FTD diagnosis with family can feel overwhelming, especially during the holidays.

This week’s Help & Hope article offers guidance, practical steps, and resources to support meaningful conversations with loved ones, including children and teens.

📌 Learn more: https://bit.ly/48lXv4B

12/06/2025

FTD is a progressive disease, and every FTD journey looks different. For most, life expectancy ranges from 7 to 13 years, but it can vary from 2 to 20 years after symptoms begin.

Understanding these realities can help families plan, seek support, and connect to resources that make a difference.

👉 Learn more about FTD: https://bit.ly/4pKa6o3

Short for frontotemporal degeneration, FTD is the most common form of dementia for people under age 60. FTD represents a group of brain disorders caused by degeneration of the frontal and/or temporal lobes of the brain.

12/05/2025

Curious about the latest in FTD research?

Join our December 10 webinar with Dr. Penny Dacks and Dr. Chiadi Onyike to hear updates from 2025 and learn where the science is headed next.

🔴 Sponsored by Passage Bio
🔗 Register now: https://bit.ly/4rfNmOq

12/04/2025

The FTD community extends its heartfelt support to Bobby Kimball, original lead vocalist of the band Toto, and his family as the world learns more about the singer’s journey with FTD.

The voice of Kimball, 78, propelled “Hold the Line,” “Africa,” and “Rosanna” to Top Ten chart positions in 1979-83, and during his tenure with the band, Toto earned six Grammy Awards.

⚪ Click here to learn more: https://bit.ly/4asZjKq

The FTD community extends its heartfelt support to Bobby Kimball, original lead vocalist of the band Toto, and his family as the world learns more about the

12/03/2025

Yesterday, our community came together in a powerful way to give for families, for care, and for a future free of FTD.

From all of us at AFTD, thank you for your generosity and for supporting our mission on .

You help families navigate a diagnosis today and advance progress toward tomorrow’s breakthroughs.

💝 Didn’t get a chance to give? There’s still time to join us and make an impact: https://bit.ly/4o5NZqM

12/03/2025

As comes to a close, add your reason and your gift to the movement.

There is still time to have your gift matched, thanks to our Board Alumni network (up to $25,000).

❤️ Give for Families. Give for Hope. : https://bit.ly/4o5NZqM

12/02/2025

You make a difference for people affected by FTD, across our support programs, research and education initiatives, and awareness and advocacy efforts.

❤️ Give now, and your gift will go even further. Every donation will be matched up to $25,000, doubling your impact. : https://bit.ly/4o5NZqM