APS Foundation of America, Inc.

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APS Foundation of America, Inc.

The APSFA is bringing awareness to Antiphospholipid Syndrome (APS). Founded in 2005, APS Foundation of America, Inc.

(APSFA) is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Syndrome (APS), the primary cause of multiple miscarriages, thrombosis, young strokes, and heart attacks. We are a volunteer-run, community-based 501(c)3 non-profit Public Charity organization. We are dedicated to fostering and facilitating joint efforts in education, support, public awareness, research, and patient services. The APSFA’s Medical Advisory Team includes nationally & internationally recognized experts on Antiphospholipid Syndrome.

*Disclaimers*
The Founders, Administrator (s), Assistant(s), Helper(s), Greeter(s) & Staff of this forum are not medical doctors. This forum's Founders, Administrator(s), Assistant(s), Helpers, Greeters & Staff are not medical doctors. APS Foundation of America is not intended to replace standard doctor-patient visits, physical examination, and medical testing. Information given to members is only an opinion. All information should be confirmed with your personal doctor. Always seek a trained physician's advice before seeking any new treatment regarding your medical diagnosis or condition. Any information received from the APS Foundation of America is not intended to diagnose, treat, or cure. This site is for informational purposes only. Additionally, while APS Foundation of America, Inc. frequently updates its content, medical information changes rapidly; therefore, some information may be outdated when you read it.

**If you think you may have a medical emergency, call your doctor or 911 immediately.**

If you use this page, we want you to know that you are solely responsible for your communications, the consequences of posting those communications, and your reliance on any communications found in those areas. APS Foundation of America, Inc., and its licensors are not responsible for the consequences of any communications in the forum, chat room or page. If you give your personal information to a host or other member and later threaten to hurt yourself or others, we reserve the right to contact appropriate authorities; however, no guarantee is made that someone will contact emergency personnel for you. We are not equipped to handle these types of crisis situations. You should contact your local law enforcement agency right away. Members agree to accept personal liability for any medical advice they provide to another member. Furthermore, anyone who accepts and applies medical advice from another member agrees that they are doing so at their own risk and will hold APSFA, its affiliates, employees, and volunteers harmless.

**All posts are moderated 24/7 and are subject to deletion for any reason.**

Medical journal articles do not constitute medical advice. Please share these with your medical care team. Page rules can be found here:http://apsfa.org/new/wp-content/uploads/2022/01/APSFA-Rules.pdf

05/11/2025

03/11/2025

Credit to Battles those with a chronic illness face that you don’t see 🤎

You truly can never understand what someone goes through until you go through it yourself, and when it comes to those with a chronic illness, there are so many more battles we have to face besides “just being sick” ⤵️

🤜🏻 constant fear of flare-ups, especially during an important event
🤜🏻 guilt of needing to cancel plans and being inconsistent
🤜🏻 fighting ableism, both internal and external
🤜🏻 fear of new symptoms arising
🤜🏻 loss of future goals and your old life
🤜🏻 losing friendships, relationships and often feeling alone
🤜🏻 the fight for basic healthcare
🤜🏻 fear of judgement from those around us
🤜🏻 always having to put our health first, even when it’s inconvenient

Having a chronic illness is a full time job and often overtakes many aspects of our lives, its inevitable. You may feel alone and feel as if no one understands how you feel, but always remember there are others out there in the chronic illness community that can empathize with you! 💗🫱🏼‍🫲🏽

What else would you add to this list? ⬇️

03/11/2025

Credit to Recognizing the signs of a blood clot and acting fast can save your life. If something doesn’t feel right, don’t wait to get the care you may need. Know the symptoms and trust your instincts.

03/11/2025

Credit to People think chronic illness is just fatigue or pain.

But they don’t see the grief — the loss of identity, freedom, and ease.

If this resonates with you, know this: grief is part of healing.

You’re allowed to miss your old life and build a new one at the same time.

💬 Save this for the hard days.

💙

03/11/2025

Credit to Did you know that inherited genetic factors can increase your risk for developing a blood clot, especially when combined with other risks like hormonal contraceptive use? Watch our short video to learn more about genetic clotting disorders and why awareness matters: https://youtu.be/KhdLM2ZzQzI

03/11/2025

Credit to Did you know there are many factors that can increase your risk of developing dangerous blood clots (thrombosis)?⁠
⁠
Some of the risks include:⁠
✈️Long periods of sitting or immobility⁠
🏥Surgery, injuries, or trauma⁠
❤️‍🩹Health conditions like cancer, heart disease, or diabetes ⁠
🧬Hormonal birth control, pregnancy, and family history of clotting⁠
⁠
⁠
Knowing the risks can help you take steps to protect your health. Talk to your doctor if you have questions or concerns!

03/11/2025

You might be experiencing medical gaslighting if…�You’ve heard one (or all) of these lines and left appointments questioning your own reality.
🙃 It’s not “just anxiety.”�🙃 You deserve to be heard.�🙃 Pain is valid even when it’s invisible.�🙃 You’re allowed to advocate for yourself.

✨ If this hits close to home, know this:
* You’re not overreacting.
* You can ask for second (or third) opinions.
* Keep records, bring support, and trust your gut.
* It’s okay to change providers (when possible).
* You’re not alone in this.

03/11/2025

Grief is not just an emotion, it's a heavy companion that shapes my every day. 💔 It’s still here, lingering like an uninvited guest, no matter how many smiles I wear or how much time passes. Some days feel lighter, yet the love and pain coexist within me, and I embrace both. To those who share this journey, how do you carry your grief? 💕 Share your thoughts below.

03/11/2025

What is autoimmune disease? 🤔

The immune system protects the body by attacking harmful invaders like viruses and bacteria. Normally, it knows the difference between foreign threats and the body’s own healthy cells. But sometimes, the immune system makes a mistake and attacks the body instead.

This misfire can lead to autoimmune disease—a group of conditions where the immune system targets healthy tissues by accident. Autoimmune diseases can affect almost any part of the body, from the skin to the joints, the thyroid to the nerves, and everything in between.

03/11/2025

Yeah. Pretty much

03/11/2025

How do you push through a painful flare-up?

03/11/2025

🔗 Learn more: https://www.science.org/content/article/new-recipe-improves-creation-cells-could-fight-most-autoimmune-diseases

🧬🔬 𝗘𝘅𝗰𝗶𝘁𝗶𝗻𝗴 𝗽𝗿𝗼𝗴𝗿𝗲𝘀𝘀 𝗶𝗻 𝗮𝘂𝘁𝗼𝗶𝗺𝗺𝘂𝗻𝗲 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵!

Nobel laureate Shimon Sakaguchi has developed a new way to create long-lasting “peacekeeper” immune cells called regulatory T cells (Tregs), which could one day help treat autoimmune conditions like APS.

𝗥𝗲𝗮𝗱 𝗺𝗼𝗿𝗲 𝗮𝗯𝗼𝘂𝘁 𝘁𝗵𝗶𝘀 𝗯𝗿𝗲𝗮𝗸𝘁𝗵𝗿𝗼𝘂𝗴𝗵 𝗶𝗻 𝘁𝗵𝗲 𝗰𝗼𝗺𝗺𝗲𝗻𝘁𝘀 𝗯𝗲𝗹𝗼𝘄. 👇

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