Caleb's Fight Against Duchenne Muscular Dystrophy

10/31/2024

We hope you will join us in supporting Caleb and his family.

www.calebkapsalisbattlesdmd.com

10/23/2024

Visit Caleb's website for more information.

We hope you will join us in supporting Caleb and his family.

10/21/2024

Caleb was adopted at birth in 2008 and was diagnosed with Autism Spectrum Disorder (ASD) in 2010. In 2013, Caleb was diagnosed with Duchenne Muscular Dystrophy (DMD).

At this stage of the disease's progression, Caleb is only able to move his head, hands, and feet. Medical equipment is needed to lift and move him. Caleb needs us to dress and undress him, feed him, bathe him, bathroom him, and brush his teeth. He needs to be lifted on and off couches, chairs, and beds. At night he cannot roll over so when he needs to change position, someone needs to help him. If he has an itch or needs to wipe his eyes, someone needs to either do it for him or lift his arm and hold it for him.

Caleb’s autism makes caregiving that much more of a challenge.

Caleb’s mom, Cadden, and I love caring for Caleb. He is a joy and an angel. That said, it is stressful, emotional, and exhausting. Over these past few years, it has taken its toll. His mom and I have both been to the ER this past year for issues that have developed from caring for him.

Those who know me can probably imagine that it’s difficult for me to accept help from others. I have always felt I was not only supposed to be capable of handling my challenges but believed I should be the one helping others. Through the gift of Caleb, God has humbled me and changed my life forever. It’s no longer difficult to admit that Caleb needs help, and has dreams beyond what his mom and I can give him.

Caleb turns sixteen this month and twenty percent of DMD patients succumb to the disease by age 18. The fact that he may only have another few years to live has recently overwhelmed me. I want to spend as much time with him now as possible and give him whatever I can, just as soon as I can.

The Bible says in Matthew 5, verses 4 & 7, “Blessed are those who mourn, for they will be comforted …and Blessed are the merciful, for they will be shown mercy.” I am incredibly grateful to my Army Hockey teammate Darryl and the rest of the team for initiating this opportunity to make Caleb’s life all that it can be. Perhaps these efforts and our prayers might not only help Caleb but also assist in helping others and even help find a cure.

Blessings on you and yours,

Always,

Marc

10/01/2024

Fall vacations are the best.

09/23/2024

Posted Fri, Aug 12, 2022

A Burr Ridge company is helping the youth get a wheelchair-accessible bathroom.

09/23/2024

Caleb has been in a wheelchair since age 11 and is now at the point where he can no longer move his arms or sit up unsupported. He basically needs care 24/7. As you can imagine, not only is it heartbreaking for the family, but the level of care Caleb needs has taken a physical, emotional, and financial toll.

Find out how you can help, here:

The Kapsalis family is experiencing life-challenging events, … Darryl MacDonald a besoin de votre soutien pour Support Caleb's Fight Against Duchenne Muscular Dystrophy