02/20/2023
Please don't scroll by without reading this. Over the next few weeks, while I'm raising money for Donations for Lupus Advocacy Summit in Washington DC to better learn how to be an advocate for lupus patients and their families, I will be sharing information about what lupus is, and how it affects patients, the treatments and research efforts.
Lupus is a very unpredictable and often misunderstood autoimmune disease. It is difficult to diagnose, sometimes taking years to be correctly diagnosed. Lupus is hard to live with, and a challenge to treat. Lupus has a wide range of symptoms and frequently strikes without warning. I know what living with lupus is like because I've lived with it for a while now.
Lupus is a complicated disease, and it affects different people in different ways. For some, lupus can be mild - for others it can be life threatening. And it can go from mild to life threatening in a split second.
Right now, there is no cure for lupus and there is only one drug that is designed to threat lupus specifically. But with continued research efforts a cure can be found, or at least, better drugs to treat it. As of now, there is not enough research going on and that's where you and I come in. By supporting me and donating to help pay for my trip to Washington, I can learn to be a better advocate. Being an advocate means that I will frequently speak directly with our state representatives regarding how they can support research and development of medications to treat lupus. I will also help in raising the public awareness of what lupus is.
Please help fund my trip to Washington, so that I can help others. Please be aware that this is not a pleasure trip, as we will be in seminars all day on Monday and then on Tuesday, I will be meeting with my State Representative and Senator.
Thanks so much for your time and your donations.
https://gofund.me/f163186e