Rochelle Leilani-Living Undiagnosed

09/04/2025

3 minutes from her night routine.

09/04/2025

Changing a patient’s trach could be very intimidating. Nurses are required to wear sterile gloves and every piece of equipment used has to be sterile. I didnt wear gloves because I wash my hands very carefully and apply hand sanitizer. Is it ok? Probably not but this what works for me and my child ☺️. Also, gauze, q tips, trach, must be sterile. Rochelle has had her trach for 5 years and whatever I have been doing, it has worked for us 😌🥹. Practice is a must as This is not easy as if something goes wrong, Rochelle can end up with a hemorrhage and in the ER.

07/20/2025

💖

A while ago, I heard about a letter a dying father wrote to his young children. His message was this—just because this one candle went out in his children’s lives, doesn’t mean the whole world is dark. He asked them not to let the light within them go out.

In his final moments on this earth, he imparted wisdom for his children and also for the rest of us, too.

Bitterness is seducing when one of our candles goes out.
When we lose a relationship,
When a dream gets cut short,
When the unexpected hits,
Or when we lose someone we love the most,
We can believe that life isn’t good or perhaps goodness is meant for other people.

But the goodness of God does not run out.

Perhaps the divine’s goodness isn’t touching our lives the way we want to. Perhaps we have had more candles fade to black than others around us. Perhaps we will never know why.

But the burden of why evil exists falls on those who believe in an all-good God. The burden of why goodness exists falls on those who believe in no higher power.

And if we look around, we see the light all around us.
We see it in children playing and the ocean beating.
We see it in the person always willing to take our calls and in the swaying trees.
We see it in our resilience and the God who somehow wrangles goodness out of our darkest moments.

Just because a candle in our lives goes out does not mean there is no light left. It does not mean that the dimmed light within us won’t come roaring back and illuminate the way towards love once more.

Darkness is here, yes.
And goodness still shines.
May we be the kind of people who never stop looking for it.

07/12/2025

No hay besos mas dulces que los de una alma noble y pura como ella 🩷 A pesar de sus dolores y de todo lo que ella pasa diariamente, no me queda mas que admirarla por su fortaleza y por sus ganas de seguir agradecida diariamente. Sin duda una leccion de vida para todos nosotros. Tiene dias muy dificiles, dias de convulsiones, de dolor de estomago, de calenturas y calofrios, y aun asi te recibe con una sonrisa como no hay otra igual. Mi admiracion para mi angel en la tierra que me ha enseñado ella mas a mi de lo que yo algun dia le pude enseñar a ella. Gracias Dios por un dia mas de poder abrazar este cuerpecito y escuchar su corazon latir que es musica para mi alma. Te amo Rochelle Leilani 🥰. Gracias por escogerme a mi para ser tu madre, tu voz, tus pies y tu fiel protectora hasta el final de mis dias.

07/12/2025

Mi corazon 🩷🩷🩷

04/18/2025

🥰😍🥰😍🥰

04/10/2025

El amor mas puro 😍🥰😘

04/10/2025

No hay nadie que me quiera a tu manera, amor mio! 🥰

04/05/2025

In the younger years with Noah I was always surprised by the volumes of people who never offered a hand. I’d be carrying groceries while trying to push a wheelchair, or pushing a cart and a wheelchair, or lifting a wheelchair into a car (before we had a van)… and everyone looked away. I’d have bruises everywhere that people asked about. Their first assumption was that Chris beat me. Never once did they think about how I dropped an 80lb wheelchair on my leg, or an activity chair weighing a good 100lbs trying to carry it up and down the stairs the arm rest hitting me in the face as a 5 foot me tried to bear hug it down the stairs and up the stairs again. It was me… and only me, because Chris was a semi truck driver on the road and gone long hours. I always wished someone would have said can I help you.

02/10/2025

🥰 God’s masterpiece 🥰

01/12/2025

💞🤓🙏🏻🥰. My precious child. I adore you 💕💞😍. You bring joy to my life 💕🙏🏻🥹.