01/29/2026
We have been having a hard time with everything. We ask for patience as I have not felt up to updating Rowans page.
We have been spending lots of time watching hia favorite movies, snacking, and cuddling.
We have a small list of things we would like to do.
If we can get make a wish to help we would like to take him to Universal studios, there is a spongebob themed store there. He can meet Spongebob, patrick, and squidward, there is also a small version of spongebobs pineapple with Gary inside. We think he would really enjoy that.
Other things are
Go to the aquarium
Have a glow in the dark party (he loves glow sticks)
Go fishing
Take family photos
Celebrate Rowan party! Invite family and close friends to show Rowan lots of love.
We also want to have lots of arts and crafts nights, movie nights, and family dinners with his favorite meals. We want to make lots of keepsakes to have from Rowan.
I talked with the hospital in Ohio, signed consent forms to give them access to his medical records from nortons. This is for the second opinion. Either they will look over things and decide they agree nothing more can be done or schedule a visit for us to come to Ohio. The oral chemo we were originally considering is one he is allergic to so we are going to try something different. I cant spell it, but his oncologist told me that there isnt much research on it so we dont know how well it will work to give us more time with him.
I also spoke with a nurse from hospice, she was very nice. We are scheduled for them to visit next week, get to know more about what it is they will do. Our hearts are breaking, we are living in a daze, cycling through sadness, anger, denial. We are trying our best to keep him happy and let him enjoy himself while he is still feeling well. This isnt fair.
This cant be real. I keep saying I dont want to do this like somehow we can make it all stop.
My sweet baby Rollie Pollie, he deserves to live a full life. So many children lost to cancer, it doesn't feel like there is enough that can be done, why are the options so limited? Why does it feel like we did not do enough? We don't want to say goodbye.
There is so much we need to get done, but nothing is more important than being in the moment with Rowan. Even at night, when he is sleeping, I cant sleep because I dont want to miss any time with him. Nothing will be the same, there will be a void that cant be filled, he is 4 but he is still our baby. Our last baby. God please give us strength.
I'm sharing his links again, we will need all the help we can get so that his father can take time off work to spend with him. As well as pay for the arrangements when the time comes.
Thank you all for your continued support through all of this. Your prayers have helped more than words can say! We love you all! Rowan loves you all!
https://gofund.me/6468ac46
https://cash.app/$RolliePollie0921