Team Grace Talley

Team Grace Talley Follow Grace's fight against Spinal Muscular Atrophy Type 1 (the #1 genetic killer of infants) receiving the 1st ever treatment of SMA approved Dec. 2016!

Grace Talley, was born 9 months ago. As she grew and developed, her parents noticed she began to miss developmental milestones such as lifting her head and sitting up unassisted. After seeing a neurologist Grace was diagnosed with a devastating terminal disease called Spinal Muscle Atrophy Type 1. SMA is a genetic disease that affects the motor nerve cells of the spinal cord, taking away the ability to walk, eat or breathe. It is the number one genetic cause of death in infants. SMA affects approximately 1 in 10,000 babies, and about 1 in every 50 Americans is a genetic carrier. (To learn more about SMA visit curesma.org.) Besides being a terminal disease, the most heartbreaking aspect of SMA is there is no cure and no current treatments available to fight it. Treatments and therapies are currently being developed but there is nothing available yet. Grace is the only child of Justin and Kalie Talley, a young couple in their early 20's who live in the small town of Livingston, Montana. Both have full time jobs to make ends meet. In order to give Grace the best life possible and allow Kalie to spend the most of what time Grace has taking care of her, the funds for this campaign would help pay bills so Kalie can work less and spend more time caring for her sick baby. In addition, the funds would be used for travel expenses to children's hospitals in neighboring states for upcoming necessary procedures such as feeding tube and Gtube insertion, etc.

11/14/2025
Grace went to her very 1st concert last night! Started her concert adventures with Pentatonix Christmas in the City tour...
11/14/2025

Grace went to her very 1st concert last night! Started her concert adventures with Pentatonix Christmas in the City tour!! A few videos to follow!

Its been awhile since we posted to Graces page. Heres a Spring/Summer 2025 photo dump.
11/07/2025

Its been awhile since we posted to Graces page. Heres a Spring/Summer 2025 photo dump.

03/18/2025

1st time skiing!!

SMA won't stop her!! My little speed demon got in some time on the slopes today. A HUGE thank you to the volunteers with...
03/18/2025

SMA won't stop her!! My little speed demon got in some time on the slopes today. A HUGE thank you to the volunteers with Eagle Mount that helped us get her set up in a Bi-Ski and helped her have a BLAST! One more lesson in a couple weeks and then our school Ski PE trip!!

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Livingston, MT

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