Emmy is a Star

Emmy is a Star Emmy went without oxygen at birth. The result was a brain injury that has left her with many challenges. After six long weeks in the NICU, she finally came home.

But we fight for her every day and we hope you will join us. On Feb. 12, 2011, Emerson Grace (AKA Emmy) came into the world by crash C-section. She was not moving or breathing, she was silent and she had no color. . .but she had a faint heartbeat, and that was something. We weren't given much information, other than we'd have to "wait and see". Unfortunately, it was evident from the very beginning that she hadn't escaped unscathed. We still aren't certain of her future, but we know where she has been and how far she's come. Although a baby's brain is very resilient, she has suffered significant setbacks. But she is working very hard to progress and has captured our hearts and the hearts of many others along the way. Emmy is one hard working little girl and keeps a crazy schedule. . .vision therapy, occupational therapy, physical therapy, developmental therapy, feeding therapy and a slew of other alternative therapies are all part of every week. . .she usually has 12-15 hours of therapy every week. She also has a team of doctors including a Pediatrician, a Pulmonologist, two Neurologists, a Gastroenterologist, an Otolaryngologist, an Opthamologist, an Audiologist, a Urologist and an Orthopedist. She's endured multiple hospital stays in her short life thus far and somehow manages to spend every birthday in the hospital. We're hoping to change that this year! Her current diagnoses include: Hypoxic Eschemic Encepalopathy (HIE), Cerebral Palsy (CP), Epilepsy, Cortical Vision Impairment (CVI), Chronic Lung Disease, Dysphagia, Failure to Thrive (FTT) and GERD. Despite all of this, we have hope for her future and will do anything for her. She has already come a long way. . .not on the typical milestone chart. . .but in her own special way. Stay tuned to this page for updates on Emmy's therapies and progress. Thank you for following and supporting us on our journey!

34 days to Christmas! 🎄
11/22/2025

34 days to Christmas! 🎄

Tuesdays = six hours of school + two hours of therapy. And she loves it! 🩵
11/19/2025

Tuesdays = six hours of school + two hours of therapy. And she loves it! 🩵

Still smiling despite the rain. ☔️
11/15/2025

Still smiling despite the rain. ☔️

Making something beautiful! 🫟🖌️Anyone else see a dog (left) and a girl (right) in this painting?! 🫨
11/12/2025

Making something beautiful! 🫟🖌️
Anyone else see a dog (left) and a girl (right) in this painting?! 🫨

11/11/2025

Day one using the new xStep non-invasive spinal electrical stimulation device. xStep (developed by Spinex) is a pioneering technology that has proven successful in accelerating rehabilitation, improving mobility and enhancing overall outcomes. We experienced the power of this technology first hand when Emerson participated in initial trials four years ago. We are thrilled to finally have the opportunity to use it again consistently to boost the impact of all her hard work.

low-key sunday. 🥀
11/09/2025

low-key sunday. 🥀

Swipe ⬅️ to learn more about this girl in her own words. 🍫🦮👙⭐️🥓
11/06/2025

Swipe ⬅️ to learn more about this girl in her own words. 🍫🦮👙⭐️🥓

Dia de los mu***os 🌺💀🦋🌸
11/02/2025

Dia de los mu***os 🌺💀🦋🌸

Happy place.🖤
10/30/2025

Happy place.🖤

10/29/2025

This 🌈 popped up in an unexpected place this morning to remind us of our friend Rylan’s 11th birthday. We miss you and will never forget you and your magical smile, Ry!

10/26/2025
It was an I-Dance,Springsteen, backyard hang with the dogs kind of day.
10/26/2025

It was an I-Dance,Springsteen, backyard hang with the dogs kind of day.

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