ThorenStrong

ThorenStrong Hi,I'm Thoren.I am 4 years old,I have Down Syndrome & Acute Lymphoblastic Leukemia.

Hey squad sorry for the scare. I do in fact have a failed port so I need to have it removed. Mom is waiting on a call fr...
12/16/2025

Hey squad sorry for the scare. I do in fact have a failed port so I need to have it removed. Mom is waiting on a call from peds surgery so we can figure out when they can fit me in the schedule. Dr. F said no more pentamindine but I have to go to an immunologist to see how I am going to get weekly ivig. I also have to go back up and see my liver team because it was angry again today when I got examined. Im really ready for all this to be over so I can be free as a bird and not have to go to Hopkins every time I get a fever. Thanks for all the prayers and good vibes we will keep you posted as we get dates for all the things. Love, Thoren

12/16/2025

At Hopkins today, he screamed bloody murder all night and early morning. They went to use his port and it isnt working. They shoved fluid in and it piled up on his chest. 3 ivs later we are getting antibiotics and waiting to find out what we do about the port failure. Prayers and positive vibes please 🙏

Did you know Peppa goes to school on Mondays? Yeah me either.......I got to meet mommy pig and baby Evie but Peppa was a...
12/08/2025

Did you know Peppa goes to school on Mondays? Yeah me either.......I got to meet mommy pig and baby Evie but Peppa was away today. Mom and Dad even asked if there was a way to make her appear since she was my wish......there wasn't😪Mom said it will be ok at least we got to visit with Mommy Pig. I will update more photos soon. Love, Thoren

Hey friends 1 more sleep before I meet my hero Peppa Pig. We get to view my special star at GKTW in the morning then we ...
12/08/2025

Hey friends 1 more sleep before I meet my hero Peppa Pig. We get to view my special star at GKTW in the morning then we are off on an adventure to meet Peppa and her family. I'm so excited hopefully we can catch it on video to share with you all. Well its time for my nightime whirlpool bath bath and then bed. Mom says Ive been such a good boy this whole trip so she plans on spoiling me tomorrow😍 Love y'all- Thoren

Hey squad today is Hollywood Studios and oh my do I have a lot to share with you later. Right now we are on the milleniu...
12/05/2025

Hey squad today is Hollywood Studios and oh my do I have a lot to share with you later. Right now we are on the millenium falcon but I have photos and videos of all the people Ive met today.....the cast members have been INCREDIBLE❤️

Hey Squad I was surrounded by princesses today. They were so nice and invited me over for hot chocolate and snowball fig...
12/04/2025

Hey Squad I was surrounded by princesses today. They were so nice and invited me over for hot chocolate and snowball fights. We have been super busy the last couple of days and we have lots more planned. I just wanted to pop on and update you on the excitement. Love, Thoren

Hey squad dont mind the facial expression I was waiting for Dad and Sissy to get off a ride. Today we checked into Give ...
12/03/2025

Hey squad dont mind the facial expression I was waiting for Dad and Sissy to get off a ride. Today we checked into Give Kids the World Village and then we went to SeaWorld. I got to meet and hang out with Cookie Monster and watch the Orca Show. We all came back and ate dinner in town hall and got some ice cream at Starlight Scoops. Tomorrow is a full day in Magic Kingdom so I will have lots to talk about when we get home. Mom said we are getting up early so I already got ready for bed time. I will catch y'all later, Love- Thoren

Hey squad it's me.....today we explored Disney Springs. I got to watch the girls make crystals and then I went to build-...
12/02/2025

Hey squad it's me.....today we explored Disney Springs. I got to watch the girls make crystals and then I went to build-a-dino where I made my new stuffie Dino Dan. We visited a lot of shops and ate lunch at t-rex cafe where the ceiling storms and the animals come to life 😮. When we got done shopping I got to spend some time in the hot tub and the pool. Tomorrow morning we check into GKTW village and hopefully will get through SeaWorld. It's my bedtime( according to Mom) but I wanted to update you on the fun we're having. Talk to you tomorrow- love, Thoren

Hey Squad its Make A Wish trip time! The rocket ship has been busy traveling the roads down south with Dad as the pilot....
11/30/2025

Hey Squad its Make A Wish trip time! The rocket ship has been busy traveling the roads down south with Dad as the pilot. The traffic has been quite heavy but Ive been a good boy the whole way down. We will try to do daily updates but our main focus is going to be having fun and making memories. Love, Thoren

Happy Thanksgiving squad! I hope today was filled with happiness and good memories. Tonight we will watch our annual vie...
11/27/2025

Happy Thanksgiving squad! I hope today was filled with happiness and good memories. Tonight we will watch our annual viewing on National Lampoons Christmas Vacation and continue to thank god that we have each day together. We love all of our squad members and thank you for all that you do and have done for our family. Love ya bunches- Thoren

Hey squad, checking in after an eventful day. Today was my monthly Hopkins check up so MomMom fired up her rocket ship a...
09/10/2025

Hey squad, checking in after an eventful day. Today was my monthly Hopkins check up so MomMom fired up her rocket ship and away we went. I got my monthly antibiotics today and had some lab work done. My thyroid has decided to become super grumpy but my liver numbers improved slightly. They said my platelets are still a little low and they want me to meet with a new nutritionist because growing boys need more calories! Some exciting news is that I get my ankle braces soon and I am officially a bus rider this year😍. I am enjoying walking while holding onto sissy's hands and I love to climb ( just have to learn to climb back down). I am babbling a lot more since starting a new supplement regimen and mom said when I do start to talk Im not going to stop. She thinks I'll talk in my sleep. Kindergarten is going ok so far and I'm excited to be back with my friends and my new teacher. I also stopped and got my first big boy salon hair cut today from Miss Anna, she did a great job with me and MomMom said I only fussed once so I got to get a toy from the store. Anyway it's almost time for bath and snuggle time with Mom but I wanted to hop on and update you all. Love, Thoren

You won't believe these prizes squad....
09/09/2025

You won't believe these prizes squad....

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Madison, MD
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