ThorenStrong

ThorenStrong Hi,I'm Thoren.I am 4 years old,I have Down Syndrome & Acute Lymphoblastic Leukemia.

Hey besties.....happy Wednesday. I thought I would jump on and share some photos from my exciting day in Kindergarten wi...
04/29/2026

Hey besties.....happy Wednesday. I thought I would jump on and share some photos from my exciting day in Kindergarten with my buddies. It's Autism Awareness week at school and I get to dress in whatever makes me comfy, so I decided to go in my footies. My friends just love playing with me even though I may have a tendency to demolish things they build.I sure hope you are all having an AMAZING week! Love always- Thoren

New haircut who's dis??? MomMom took me and sissys over to the salon today and I got a fresh new doo for summer 🤩
04/18/2026

New haircut who's dis??? MomMom took me and sissys over to the salon today and I got a fresh new doo for summer 🤩

Hey besties long time since Ive updated you all. I am having a blast in kindergarten with all my friends. I love to expl...
04/16/2026

Hey besties long time since Ive updated you all. I am having a blast in kindergarten with all my friends. I love to explore the classroom and occasionally disrupt some block buildings that my friends make. I am now going to Hopkins every couple of months for follow-up appointments and I get my IVIG injections from home. Mom and sissy have been giving me a blended diet to boost my calorie intake and I am eating lots of things by mouth. I am even learning to chew cookies and cheezits. I think Im going to have so much fun as the summer approaches and Mom has plans to make me a huge backyard play area to spend my days playing in. Hope you guys are all doing well and I promise to update more frequently😍

Hey besties its been one heck of a week! I started out with what Mom thought was a head cold last Saturday, i took some ...
02/21/2026

Hey besties its been one heck of a week! I started out with what Mom thought was a head cold last Saturday, i took some otc cough and cold meds but I wasn't getting better. On Tuesday I went to the doctor with MomMom and sissy and they gave me an antibiotic for what they thought was a sinus infection. Then on Thursday I got even worse and ended up at Hopkins 😮. They did lots of testing and a chest xray. The xray showed some fluid buildup on my chest and the nose swab popped positive for RSV......so now im home resting and getting meds and fluid around the clock. I sure hope Im back in school with my friends soon so thank you for all the prayers you sent up to get me on the mend!

Hey squad sorry for the scare. I do in fact have a failed port so I need to have it removed. Mom is waiting on a call fr...
12/16/2025

Hey squad sorry for the scare. I do in fact have a failed port so I need to have it removed. Mom is waiting on a call from peds surgery so we can figure out when they can fit me in the schedule. Dr. F said no more pentamindine but I have to go to an immunologist to see how I am going to get weekly ivig. I also have to go back up and see my liver team because it was angry again today when I got examined. Im really ready for all this to be over so I can be free as a bird and not have to go to Hopkins every time I get a fever. Thanks for all the prayers and good vibes we will keep you posted as we get dates for all the things. Love, Thoren

12/16/2025

At Hopkins today, he screamed bloody murder all night and early morning. They went to use his port and it isnt working. They shoved fluid in and it piled up on his chest. 3 ivs later we are getting antibiotics and waiting to find out what we do about the port failure. Prayers and positive vibes please 🙏

Did you know Peppa goes to school on Mondays? Yeah me either.......I got to meet mommy pig and baby Evie but Peppa was a...
12/08/2025

Did you know Peppa goes to school on Mondays? Yeah me either.......I got to meet mommy pig and baby Evie but Peppa was away today. Mom and Dad even asked if there was a way to make her appear since she was my wish......there wasn't😪Mom said it will be ok at least we got to visit with Mommy Pig. I will update more photos soon. Love, Thoren

Hey friends 1 more sleep before I meet my hero Peppa Pig. We get to view my special star at GKTW in the morning then we ...
12/08/2025

Hey friends 1 more sleep before I meet my hero Peppa Pig. We get to view my special star at GKTW in the morning then we are off on an adventure to meet Peppa and her family. I'm so excited hopefully we can catch it on video to share with you all. Well its time for my nightime whirlpool bath bath and then bed. Mom says Ive been such a good boy this whole trip so she plans on spoiling me tomorrow😍 Love y'all- Thoren

Hey squad today is Hollywood Studios and oh my do I have a lot to share with you later. Right now we are on the milleniu...
12/05/2025

Hey squad today is Hollywood Studios and oh my do I have a lot to share with you later. Right now we are on the millenium falcon but I have photos and videos of all the people Ive met today.....the cast members have been INCREDIBLE❤️

Hey Squad I was surrounded by princesses today. They were so nice and invited me over for hot chocolate and snowball fig...
12/04/2025

Hey Squad I was surrounded by princesses today. They were so nice and invited me over for hot chocolate and snowball fights. We have been super busy the last couple of days and we have lots more planned. I just wanted to pop on and update you on the excitement. Love, Thoren

Hey squad dont mind the facial expression I was waiting for Dad and Sissy to get off a ride. Today we checked into Give ...
12/03/2025

Hey squad dont mind the facial expression I was waiting for Dad and Sissy to get off a ride. Today we checked into Give Kids the World Village and then we went to SeaWorld. I got to meet and hang out with Cookie Monster and watch the Orca Show. We all came back and ate dinner in town hall and got some ice cream at Starlight Scoops. Tomorrow is a full day in Magic Kingdom so I will have lots to talk about when we get home. Mom said we are getting up early so I already got ready for bed time. I will catch y'all later, Love- Thoren

Hey squad it's me.....today we explored Disney Springs. I got to watch the girls make crystals and then I went to build-...
12/02/2025

Hey squad it's me.....today we explored Disney Springs. I got to watch the girls make crystals and then I went to build-a-dino where I made my new stuffie Dino Dan. We visited a lot of shops and ate lunch at t-rex cafe where the ceiling storms and the animals come to life 😮. When we got done shopping I got to spend some time in the hot tub and the pool. Tomorrow morning we check into GKTW village and hopefully will get through SeaWorld. It's my bedtime( according to Mom) but I wanted to update you on the fun we're having. Talk to you tomorrow- love, Thoren

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