pvreporter

01/01/2026

08/12/2025

ASH 2025: A turning point for MPNs? 🩸

​I’ve had a press pass for this conference for many years, and it's truly an honor, but I’ve never seen a pipeline this crowded. Even fighting off a cold, I made sure to visit the posters that mattered and had excellent meetings with industry partners!

📰 One of ​the most exciting takeaways: There are now at least 5 companies actively exploring new 2nd generation JAK inhibitors. This kind of investment in our disease space is exactly what we’ve been waiting for.

Stay tuned...​more updates to follow on the PV Reporter website.

---> PS - I'm looking to hire a PT social media/marketing person (or agency) to help expand our reach and help implement new programs. If you're interested, please drop me a message here - https://www.pvreporter.com/contact/

14/11/2025

Researchers are evaluating GLP-1 medications for potential benefit in MPN and MDS. Early findings suggest reduced inflammation and improved stability. 🧪

Learn more: https://www.pvreporter.com/glp-1-therapies-may-benefit-mpn-and-mds-patients/

10/10/2025

🧬 New Article: Interferon Treatment for MPNs: What You Need to Know on PV Reporter.

If you're living with an MPN (PV, ET, MF) or supporting someone who is, this article covers:
• How interferon works in MPNs
• Evidence for its effectiveness across disease types
• Common side effects and how patients manage them
• Considerations for younger patients and during pregnancy
• Key questions to discuss with your hematologist

🔗 Learn more: https://www.pvreporter.com/interferon-treatment-for-mpns-what-you-need-to-know/

14/09/2025

I'm sure you can relate, happy weekend y'all! 🤘

09/09/2025

🌍 MPN Awareness Day – September 11, 2025

MPNs are rare blood cancers, but together we can shine a light and support those living with them.

💬 “The human spirit is stronger than anything that can happen to it.” – C.C. Scott

👉 Share this post to spread awareness and hope for the MPN community.

🔗 More info: https://www.pvreporter.com

01/09/2025

🎗 September is Blood Cancer Awareness Month
MPNs are rare blood cancers:

Polycythemia Vera (PV)

Essential Thrombocythemia (ET)

Myelofibrosis (MF)

Learn more & help raise awareness:
👉 https://www.pvreporter.com/september-blood-cancer-awareness-month-mpns/

❤️ Please share to support patients & families.

05/08/2025

Tired of itching after every shower? For many PV patients, aquagenic pruritus isn’t just annoying, it’s debilitating. But what if a simple, affordable supplement could bring real relief?

💬 “No itching after shower for the first time in years.” – Robert

A growing number of people with PV are turning to Beta-Alanine, and seeing results.

We break down the research, mechanism of action, and powerful testimonials in this new article: 👉 https://www.pvreporter.com/beta-alanine-for-pv-related-itching-a-potential-solution

30/07/2025

This is not the official PV Reporter page. The image below is the real page, please follow us or like us here - PV Reporter

15/06/2025

Big News for ET Patients with CALR Mutation!

New trial results show Incyte’s therapy INCA033989 achieved an 86% response rate, with most patients reaching complete platelet normalization.

It’s a major leap forward: this new treatment directly targets the CALR mutation driving the disease, with very few side effects.

Read the full summary: https://www.pvreporter.com/breakthrough-calr-therapy-shows-high-response-rate-in-et/

13/06/2025

Rusfertide Cuts Phlebotomies by 77% in Polycythemia Vera

Key Points

Rusfertide achieved clinical response in 77% of patients compared to 33% with placebo in the Phase 3 VERIFY trial

The drug significantly reduced the number of blood draws needed each year and decreased PV-related symptoms

Rusfertide maintained hematocrit levels below 45% and reduced or eliminated the need for phlebotomy

Safety profile was favorable with mostly mild injection site reactions and no new safety concerns

Rusfertide Cuts Phlebotomies By 77% In Polycythemia Vera | PV Reporter
https://www.pvreporter.com/rusfertide-cuts-phlebotomies-by-77-in-polycythemia-vera/

10/04/2025

"I feel like a prisoner in my own body."

That’s what a woman told me today when we spoke about her polycythemia vera (PV) diagnosis. It hit me hard. Because I’ve felt that way too before. And if you’re living with an MPN, you probably have as well.

She’d been struggling with a long list of issues and hadn’t yet seen an MPN specialist. I urged her to do so. It can make all the difference.

What struck me most? She said I was the first person with PV she had ever talked to. That’s exactly why I do what I do — to make sure no one with an MPN feels alone, confused, or stuck without answers.

Our community is here. There are people who understand what you’re going through. If you’re dealing with PV, ET, or MF — reach out. Talk to someone who gets it.

Let’s keep lifting each other up. ❤️‍🩹