Hope for Hadley

Hope for Hadley Follow us here for updates on Hadley as we learn to navigate ATRT and the world of childhood brain cancer!

Hadley had a good check up on Tuesday! Her labs looked good, and her liver enzymes were down! She had a good treatment, ...
11/09/2025

Hadley had a good check up on Tuesday! Her labs looked good, and her liver enzymes were down! She had a good treatment, but afterwards was feeling very tired and irritable. This trip was just Hadley and mom, so I’m sorry for the late update! She needed extra cuddles and love that evening. We’ve also picked up a cold, which is part of the reason I think she had such a tough evening on Tuesday. We’re hoping to kick this virus soon so she starts feeling better!

Hadley will head back to St. Jude in about a week for another treatment and lab check! Please continue to pray that her liver enzymes stay down and don’t begin to rise again with the chemo she’s taking at home. She has also started having some pain in her back, so please also pray that we are able to keep her comfortable!

Here’s a picture of the kids all playing on their new play set! We were able to surprise them yesterday with the help of some sweet friends! They are all so excited and it has already helped keep Hadley much more active!

Hadley is back at St. Jude for another lab check and chemo infusion! She’s had the last week off of all chemo, but now i...
11/04/2025

Hadley is back at St. Jude for another lab check and chemo infusion! She’s had the last week off of all chemo, but now it’s time to start again! Please pray with us that her liver enzymes have come down with this week off of chemo, and that she has an uneventful chemo infusion this afternoon! If her liver enzymes continue to rise, we will have to lower the dose of chemo she is receiving. Please pray specifically against that! I will update later this afternoon with how things are going!

Hadley is back at St. Jude and getting ready for her next chemo infusion! She’s currently getting all of her pre-meds to...
10/21/2025

Hadley is back at St. Jude and getting ready for her next chemo infusion! She’s currently getting all of her pre-meds to help with nausea control, and then her chemo will start. Please pray with us that she has an uneventful infusion and doesn’t have any nausea or vomiting this evening. She has been doing so well the last couple of weeks, and we are so thankful! Please also continue to pray that these treatments will help Hadley maintain stability in her tumors so we can have so many more good days!

Hadley has had a tough week. Tuesday, her team added a new medication to help with her nausea and anxiety. It also cause...
09/28/2025

Hadley has had a tough week. Tuesday, her team added a new medication to help with her nausea and anxiety. It also causes her to be very drowsy. She has been sleeping a lot more than normal this week while we work to find the right dose for her. While the new medication has helped tremendously with her vomiting during the night and early morning, yesterday she started throwing up again. We assumed it was due to the med changes being made this week, and went on about our day. But last night, she could not get comfortable in her sleep. She woke up around 2:30 this morning crying in pain and begging for help. We ended up taking her to get checked out at the ED, and she likely has a stomach virus. Her labs were mostly normal, and nothing concerning, but she definitely is not feeling good at all. We’re working on managing her gas pains and the vomiting that returned as soon as we got home this morning. We’re hopeful she will recover quickly and gain her strength back!

We’re not sure if we will make it to the prayer gathering today. If she’s feeling up for it, we will come and just keep our distance from everyone. I’m hoping she will nap soon since we’ve both been awake since 2:30. Some rest will do her some good, and hopefully get us there at least for a little bit!

Come join us this Sunday! We would love to see you there! 🎗️
09/23/2025

Come join us this Sunday! We would love to see you there! 🎗️

We are headed back to Memphis today for a quick check up tomorrow in brain tumor clinic. We’ve taken the last couple wee...
09/22/2025

We are headed back to Memphis today for a quick check up tomorrow in brain tumor clinic. We’ve taken the last couple weeks off of updates just to soak up time with family and get a plan in place. Two weeks ago Hadley started an oral chemo, Etoposide, at home. She will take it for 21 days, and then have a 7 day break each cycle. After two cycles, we will repeat scans to see where we are at. As we’ve said before, this is not to cure her, but to hopefully stabilize her tumor growth and buy her more good days!

She has been struggling with anxiety around taking the new medication, and with nausea in general. We are working closely with her team to do everything we can to help her with this. We’re also planning for some medication adjustments tomorrow during clinic that will help her even more.

Please continue to keep her in your prayers! Please pray that this chemo is keeping her disease at bay, and she begins to tolerate it a little better after a few changes are made.

Sharing our link again for this fundraiser! Scentsy has so many amazing goodies that are perfect for the holidays and ev...
09/13/2025

Sharing our link again for this fundraiser! Scentsy has so many amazing goodies that are perfect for the holidays and even early Christmas goodies!

I’ll help you find your new favorite things as you explore the shoppable online catalog. With so many items I can’t live without, Scentsy is sure to fill your life with fragrance. Let me know if you have any questions!

09/07/2025

Come join us today, or you can watch on Facebook live!

Hadleys scanned showed what is likely tumor progression. The tumors were inflamed, but the growth shown today was much m...
09/06/2025

Hadleys scanned showed what is likely tumor progression. The tumors were inflamed, but the growth shown today was much more than just inflammation. We are heartbroken. We are running out of options, and none of them will cure her. Thank you for your prayers over our family.

Here’s a silly picture from last night of her playing with her apples instead of eating them.

Update!Hadley is now asleep for scans! She has been vomiting the last two mornings, we think due to anxiety around proce...
09/05/2025

Update!

Hadley is now asleep for scans! She has been vomiting the last two mornings, we think due to anxiety around procedures, but because of that, they decided to intubate her for scans. This broke my heart even though I already knew it was likely. Hopefully she will have an uneventful day of napping in the scanner, and we can get her results quickly this afternoon. Thank you all for praying for our girl today! We are believing in her miracle!

Prayer request! 🚨🎗️Hadleys scans are tomorrow morning at 9:30! Please be in prayer with us for the best possible outcome...
09/05/2025

Prayer request! 🚨🎗️

Hadleys scans are tomorrow morning at 9:30! Please be in prayer with us for the best possible outcome on these scans! They will determine her next steps in treatment and when we will come back to St. Jude. But no matter the results, we will be coming home Saturday! We are so ready to get to come home, but we have to make it through tomorrow, first!

Hadley has had a great week playing with friends, napping and saying “see ya laters” to all of her favorite girls in the school and therapy departments. We’ve found rocks and ducks, made tons of crafts, and ate our weight in chips and cheese dip! I’d say this was a pretty great last week here! Hopefully we can finish off strong with great scan results tomorrow afternoon!

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Nanih Waiya
Mississippi

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