Silas Cater Medical Expense Benefit

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Silas Cater Medical Expense Benefit Silas is an 8 year old boy from KDH that has been diagnosed with idiopathic intracranial hypertension, estropia and papilladema. He is in remission!

Our son Silas is in need of ongoing medical treatment for a condition that is rare in children, known as Idiopathic Intracranial Hypertension (IIH). This is a condition of unknown etiology that causes chronically elevated intracranial pressure (ICP), and the most important neurologic manifestation is papilledema, which may lead to progressive optic atrophy and blindness. Silas was finally diagnosed in May of 2012, but the doctors believe he has suffered from this condition for several years. Silas is a 4 year old boy from an upstanding native Dare County Family needing assistance from neighbors, friends, and the community due to lack of insurance. He had an MRI and Spinal Tap at CHKD Norfolk in August, and an MRV and Spinal Tap at Duke University Medical Center in September. Silas continues to be seen at Duke for weekly examinations to see if the medication is effective. At the last visit the doctors found the medication to be ineffective and may decide at his next visit that surgery is necessary. Silas has been a trooper while undergoing these painful and scary procedures. Any donation would be welcomed to assist in covering the medical bills, travel expenses to Duke, medications, lodging, and loss of income due to hospital visits. A fund has been set up at the Outer Banks Relief Foundation in Silas Cater’s name to assist with the unexpected expenses. Outer Banks Relief Foundation
Silas Cater Fund
PO Box 545
Nags Head, NC 27959

Contact Heather Cater for more info 252-599-6018, heather.r.cater@gmail.com. The Cater Family and Silas in particular appreciate any donations for this cause. On 11/2/12 Silas had his 3rd spinal tap and is waiting on a surgery date for a cranial shunt. The Dr believes it will be within the next 2 weeks, depending on scheduling. The Doctors decided his pressure was too high to put a shunt in his skull, and are planning to put a shunt in his spine on December 5th. He is currently taking prednisone along with the Diamox in hopes we can avoid the surgery. His follow up appointment on 11/28 should let us know if the meds are working, or if the surgery will go ahead as planned. Duke wanted to install a lumbar shunt last week. We have heard and read of many complications with those types of shunts, and delayed having the surgery. We traveled to a neuro in TN for a 3rd opinion and he increased his prednisone dose. We are trying to avoid any type of surgery, and can only hope to have answers soon. We have a wonderful support system of family, friends, and an amazing community. After several weeks on the prednisone, along with continued diamox, Silas' papillidema is almost completely gone in the right eye, and the left has improved. The eye muscle movement is still not as it should be, so they will be doing surgery on the eye muscles 2/1/2013. He will also have optic nerve fenestration done on his left eye during the surgery. We are very pleased our fight appears to have been worthwhile, but know the war is not over. We have continued to travel to Duke weekly, and are not sure what post surgery visits frequency will be.

05/08/2016

Had a great check up at Duke. No change in eye prescription and optic nerves are still looking good! No trips required till February 2017! God is good and we are blessed with the love and support of our families and friends, near and far.

On our way to Duke for a check up! Typical road trip.
04/08/2016

On our way to Duke for a check up! Typical road trip.

This is first and last day of second grade! He's grown so much, please slow down
16/06/2016

This is first and last day of second grade! He's grown so much, please slow down

I know I've been slack about posting, life's been keeping us busy. Silas finished second grade and is heading to 3rd! Ti...
16/06/2016

I know I've been slack about posting, life's been keeping us busy. Silas finished second grade and is heading to 3rd! Time is flying by and I'm not sure I'm ready. He will go back to Duke in August and I am sure we will get another great report. Here's what he's been up to lately

03/02/2016

Silas heads to Duke tomorrow for his check up. Please send good thoughts and prayers!

Good story! Parents, trust your gut.
25/11/2015

Good story! Parents, trust your gut.

Tylenol wouldn’t be enough to ease the 4-year-old’s headaches. Not nearly enough.

Silas' new haircut! Growing up too fast!
21/11/2015

Silas' new haircut! Growing up too fast!

Halloween 2015 had a large payout!
02/11/2015

Halloween 2015 had a large payout!

Silas' 2nd grade fall photo. He's doing great, loves skateboarding, reading, arts and crafts, and math. Thanks for all t...
12/10/2015

Silas' 2nd grade fall photo. He's doing great, loves skateboarding, reading, arts and crafts, and math. Thanks for all the support and thoughts and prayers!

Great check up at Duke Eye Center today! We don't have to go back for 6 months and everything is still looking good. Sil...
30/07/2015

Great check up at Duke Eye Center today! We don't have to go back for 6 months and everything is still looking good. Silas gives it a thumbs up.

Silas lost his second tooth on Monday! He is having a fun summer and looking forward to second grade. We go back to Duke...
01/07/2015

Silas lost his second tooth on Monday! He is having a fun summer and looking forward to second grade. We go back to Duke in August for new eye glasses prescription and check up and then we will only have to go every 6 months to a year!

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3408 S Virginia Dare Trl

27959

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