Endometriosisem

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Endometriosisem

the life of a 20 something living with chronic illness | endo, adeno, hEDS, MCAS, MTS |

03/07/2026

we're just over a week away from our Endometriosis Community Fundraiser benefiting 💛🎗️ 𝐍𝐎𝐖 𝐎𝐏𝐄𝐍 𝐓𝐎 𝐀𝐋𝐋 𝐀𝐆𝐄𝐒 (wristbands required for anyone under 21)

to everyone that has already bought your tickets, we're SO excited to meet you & connect!!

🎟️if you're planning on joining, we have limited tickets due to building capacity, so grab yours ASAP secure your spot!

✨your ticket purchase includes✨

-a goodie bag filled with products from wellness brands we love
- access to hearing from the incredible Dr. Shanti Mohling, a local endometriosis excision specialist
- 2 raffle tickets (a HUGE thanks to our generous donors!!! swipe to check out some names you may see in our raffles👀)
-a free craft station
-some lite bites
-and of course, a space to cultivate community🎗️

https://www.eventbrite.com/e/endometriosis-community-fundraiser-tickets-1982235115591

We hope to see you there💛🎗️

03/04/2026

i've said it before, and I'll continue to scream it from the rooftops: ENDO IS NOT A PERIOD DISEASE!

and you're most definitely not being dramatic❤️‍🩹

endo is a chronic inflammatory condition, which has been found on every major organ in the body (including the brain, yes the brain) and it has the potential to destroy what's in its path

it's incredible (in the worst way) how years of medical gaslighting can take such a massive toll on your connection with your body & how you perceive your very real, lived experiences

unlearning this, and rebuilding my trust & connection with myself is a work in progress, and documentation, like this, helps me to acknowledge and validate my pain

*I had to chop this video up to fit, so it's a bit out of order, but think it gets the point across*

03/02/2026

in honor of kicking off endometriosis awareness month, my endos kicking me in the butt😵‍💫

so here's part 1 of things I think everyone should know about endo- an oldie, but a goodie💛

as always, feel free to share this with your people to help them learn more!

02/18/2026

crazy what people will say publicly with their name attached huh? it's too bad you can't bedazzle a personality🙄

and while I've gotten a LOT better at letting comments like these roll off my back (because tbh babe I pitty you), I know that these things are still being said to so many people around the world

the idea of highlighting these comments, that people consciously chose to type & share online, is to bring awareness to the things that are said to people on the daily... imagine what's being said behind closed doors

perhaps we make this a series? 🤷‍♀️

01/16/2026

just incase you forgot, the normal amount of pain is ✨none✨

which is such a crazy concept for me to wrap my head around, and something I need to remind myself often

01/12/2026

just me, my mobility aids & bags on bags of pain relief against the world!!

getting out & about during my period used to be unheard of.. even getting out of my bed to the bathroom felt impossible for the most part

but I just had my first period of 2026 while on vacation, (a vacation I planned specifically so I wouldn't be on my period but let's be real... I never really know/ have control) and getting out of the house & ~actually~ enjoying my time wouldn't have been possible without my mobility aids, pain relief tools, medications (specifically LDN because i'm 2 months in and never thought a period could be so manageable), taking lots of breaks, making adjustments, and having lots of help from my sisters

but there was a time where i'd rather push through the pain, making it worse, and having to cut the day short, rather than using the tools, like my canes, to add comfort & ease to my days, which allow me to do more of what I love

because if something allows me to do more of what I love, and somebody takes it upon themselves to have a problem with that because they don't understand it? that's on them, not me😚

01/09/2026

sooo, if this has been the most manageable day 1 of my period ever.. then all i'm learning is I must move here..

could it be the LDN + all of my other meds + all my pain relief tools? most definitely! but i'm going with it being the san diego air. I don't make the rules🤷‍♀️

a special thanks to:
my sisterswellness

for making the day possible😚

01/04/2026

an ongoing list of symptoms I experience living with endometriosis & adenomyosis, because they overlap & it can be hard to pinpoint what's causing my pain

comment "community" and i'll send you a link to the Endo Friendos Community, a space open to all- just please read the rules & agree to be accepted💌

I will say, after my endo excision surgery, I know my adenomyosis is far more pronounced than I thought-

my heavy uterus / feeling like my uterus is filled with bricks/ like acid is slowly burning through it, my heavy periods, and intense bloating that seems to linger 24/7? I point that back to adeno

the barbed wire pain, constipation, random stabbing pains throughout my body, chest pain, difficulty breathing, digestion pain, and more intense bloating? I point back to endo

then the leg pain? that's a mixed bag of endo, adeno & may thurners

honestly, most days it's a guessing game.. and I can do everything "right" and still flare up with intense pain- but paying attention to my symptoms has helped me to understand my body more & be a lot kinder to it

Address

Nashville, TN
37201-37250

Website

https://linktr.ee/endometriosisem

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