MIllies HEART Journey

MIllies HEART Journey This is Baby Millie! She’s on the search for a new heart! Sweet Baby’s fighting for her LIFE! ❤️‍🩹 Lets share her Story and show her all our Love!!! 🙏🏽❤️‍🩹

12/24/2025

We got some bad news regarding Millie’s results from her biopsy/heart catheter. Her body is rejecting her heart in two different ways. She has what’s called ACR and AMR rejection. ACR rejection is acute cellular rejection, this means her T-cells are attacking her hearts cells. AMR rejection is antibody mediated rejection, this is when the antibodies attack and injure the blood vessels in the heart hindering blood flow. She is getting admitted immediately to start her on medication to try and help rejection. We are hoping they have caught this early enough, and that she can be back with us home. Please continue all prayers for Millie especially right now. ❤️‍🩹

Sweet girl had a rough night🥺. The hospital ended up sending her to ronald mccdonalds house instead of keeping her due t...
12/24/2025

Sweet girl had a rough night🥺. The hospital ended up sending her to ronald mccdonalds house instead of keeping her due to brother not being allowed to stay overnight with us and because most g-tube patients are good to go home after surgery. Millie Lou threw up every feed last night,and she’s been up since about 3am trying to sleep. She’s finally asleep now and has so far tolerated her morning feed! We are still waiting on her heart catheter results to see if we can go home for Christmas. Fingers crossed we get results soon 🤞🏼😩

Millie’s officially awake (in and out) and will stay overnight in the hospital! She will get discharged in the morning s...
12/23/2025

Millie’s officially awake (in and out) and will stay overnight in the hospital! She will get discharged in the morning so we can go home for the holidays instead of tonight like we had originally thought, she’s in a lot of pain but doing well!

Millie’s officially done! She’s headed up to recovery now and the doctor said if the feed from her G-tube goes well we a...
12/23/2025

Millie’s officially done! She’s headed up to recovery now and the doctor said if the feed from her G-tube goes well we are good to go home for the holidays! The heart catheter results we will not know until tomorrow morning and the results will show us whether or not Millie’s heart is being rejected by her body! I will give an update on those results whenever I receive them! Thank you all for your prayers ☺️

Heart Cath is done! Now time for the G-tube!
12/23/2025

Heart Cath is done! Now time for the G-tube!

Now the waiting begins!
12/23/2025

Now the waiting begins!

Millie Lou is watching Miss Rachel and patiently waiting to go back for surgery #1 & another one right after! Wish her ...
12/23/2025

Millie Lou is watching Miss Rachel and patiently waiting to go back for surgery #1 & another one right after! Wish her good luck today 🥰

Millie Lou gets surgery tomorrow! Prayers for an easy go at things! She’s getting a heart catheter done and a G-tube pla...
12/22/2025

Millie Lou gets surgery tomorrow! Prayers for an easy go at things! She’s getting a heart catheter done and a G-tube placed tomorrow! 🥰

Sweet girl got a bridle yesterday because her NG flew out so much from puking, she also is scheduled to meet with a surg...
12/19/2025

Sweet girl got a bridle yesterday because her NG flew out so much from puking, she also is scheduled to meet with a surgeon still regarding a G-tube! Hoping we can get in for one before Christmas! Besides that she’s doing well, finally slept a little bit last night, and despite being a little grouchy she’s still loving her life outside the hospital 🥰

Small update on Millie Lou:She has not been tolerating any of her feeds lately and still has not been sleeping at all! W...
12/17/2025

Small update on Millie Lou:
She has not been tolerating any of her feeds lately and still has not been sleeping at all! We are scheduled to meet with a surgeon on December 22nd to get Millie scheduled in to get a G-tube placed so we no longer have to mess with the NG! We are hoping that when her NG is out and her G-tube is placed she will be more interested in eating and tolerate her feeds better. Also, miss Millie got approved for a day at home! She did very well in the car and took good nap 😴 🚗

12/16/2025

Millie’s first time playing outside 🥰

Appointment day so far has been hectic, Millie Lou threw up her entire feed and the meds she was given. She also had no ...
12/15/2025

Appointment day so far has been hectic, Millie Lou threw up her entire feed and the meds she was given. She also had no NG tube due to it flying out while vomitting, but heart failure said all her labs came back great from a heart standpoint,and prescribed her medication to help her sleep due to her not sleeping since leaving the hospital from some night terrors. We are now back at the Ronald mccdonalds house with a new NG and she’s happy as ever 🥰

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Neosho, MO
65850

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+15802775136

Website

https://cash.app/$Bpotter88, https://venmo.com/u/Becky-Potter-20

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