MIllies HEART Journey

MIllies HEART Journey This is Baby Millie! She’s on the search for a new heart! Sweet Baby’s fighting for her LIFE! ❤️‍🩹 Lets share her Story and show her all our Love!!! 🙏🏽❤️‍🩹

11/07/2025

Small update on Millie! She will be getting her heart catheter,piccline realignment, and her MRI done this Monday! Currently mom and brother both have strep throat, as well as brother has a double ear infection so we are all quarantined till hopefully Monday! The hospital is trying to get it approved for big brother to be up at the hospital atleast for a couple days a week too so we can all be up there together, so please pray that gets approved! On another note Millie has been slowly acting more like herself, starting to play and interact a bit more than she was before! Thank you to all for your continuous support and prayers always 🥰

11/05/2025

We have an update on Millie, but it’s not necessarily the news we were wanting to hear. Heart failure team and neurology said on Millie’s MRI they spotted the pseudomonas covering her brain, they also have no idea how long the infections been on the brain or what it can potentially look like for Millie long term. Her heart is thriving and doing great,all lab work looks great,but Millie herself was fairly lethargic today,hasn’t wanted to stand up,get out of bed, or really do anything for that matter. At this point we are just hoping and praying she can recover from this and get back to feeling like herself. Due to Millie’s immunity compromised, it’s a lot harder for her to fight off infections, especially one covering her brain. The team will let me know later whether or not they decide to change her antibiotics or not for the pseudomonas to try to help get it more under control. We will update as soon as we can. Thank you all for continued prayers. ♥️

11/04/2025

Please pray for all good news! Miss Millie has gone back for her MRI, so they had to sedate her and put in a breathing tube, and due to new restrictions for RSV and FLU season we are stuck home with older brother (no kids allowed). Hopefully within a couple weeks if Millie keeps improving we can be discharged and older brother will be allowed to stay at the RMHC with us all🤞🏼♥️

11/01/2025

Still not to baseline, but with the power of prayer Millie is acting way more like Millie 🥺. Baby girl is still not feeling good at all and has a lot of healing to do, but today she was able to walk 20 feet with a little bit of help due to a few cords on her and because she’s still in a lot of pain and she even got to try a popsicle!Hopefully soon we can get this wound vac off of her so she has more room to walk when she’s feeling stronger ♥️

11/01/2025

Small update on Millie today. Mom made a trip down just for the day to take older brother trick or treating, but we still have good news! Millie is still having neurological issues we don’t know the cause of entirely, but she was able to go up to the 4 Sutherland floor and out of CICU. For the first time ever last night as well we seen Millie smile. She hasn’t done it since that one time but it’s a step in the right direction. Thank you all for your continued prayers for Millie as always they’ve definitely been working! Sorry for the delayed updates it’s been hectic at the hospital and on today’s holiday. I’ll have more update’s on Tuesday mainly since she will receive her MRI on that day instead of this coming Monday! Happy Halloween & we love you all ♥️ 👻

Side note: Millie hated her costume and we were unable to get any pics of her in it today given her current condition. So sorry in advance for no Millie Halloween outfit pics 😅

Miss Millie had a very rough night last night. She has been crying and throwing up consistently,and has been in a lot of...
10/30/2025

Miss Millie had a very rough night last night. She has been crying and throwing up consistently,and has been in a lot of pain. She received her EEG last night and the neuro team said it looked normal. Originally Millie was supposed to get her heart catheter done on monday along with her MRI, but due to the pseudomonas the team decided to wait so they don’t risk getting the bacteria in her heart, though she will still get her MRI done that day. Millie’s biopsy came back as well with a bacteria called Panniculitis. This bacteria formed because of the pseudomonas and is what’s in the nodules Millie has covering her body. The team also believes Millie has ICU delirium and will start her on a medication tonight to try to help with that. We know for sure right now neurologically something’s wrong. Whether or not it’s physical or mental we have no idea but the team does think another possibility for Millie’s odd behavior and inability to speak is from encephalitis. The last update I have right now is Millie’s heart function was at 63% and she does have fluid surrounding her heart. Millie can use all prayers right now possible. Thank you all for the continued support for Millie 🥺❤️‍🩹

This morning Millie was taken down to OR to get a biopsy done on her nodules and due to neurological concerns she will b...
10/29/2025

This morning Millie was taken down to OR to get a biopsy done on her nodules and due to neurological concerns she will be getting a spinal tap done as well. Prayers for some answers on both please ♥️

Today Millie will be getting a biopsy done and she’s scheduled to get an MRI done on Monday. From a heart perspective Mi...
10/28/2025

Today Millie will be getting a biopsy done and she’s scheduled to get an MRI done on Monday. From a heart perspective Millie’s looking great, neurologically however there’s concerns. Millie will have her biopsy done for the nodules that have been forming all over her body. The MRI they have scheduled is to try and figure out why Millie isn’t neurologically even close to baseline yet 😣. Thank you all for prayers as always, we will give more updates when we can.❤️‍🩹

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Neosho, MO
65850

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+15802775136

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https://cash.app/$Bpotter88, https://venmo.com/u/Becky-Potter-20

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