Danielle's Fight Against Leukemia

21/10/2024

06/08/2024

CHILDHOOD CANCER TREATMENT AWARENESS
We need more options!!

Check out Dawn Danielle’s video.

07/06/2024

FYI Posting again because shared earlier didn't go through on Danielle's Fight Against Leukemia Page...

Hello again... Friends, family, prayer warriors, strangers, loved ones and everyone else in between!
I do apologize for being gone for a bit...
But we have been adjusting to life how it is, now.

It's been 4 months since I've posted anything.... it's been 4 months since our Dear Danielle's passing. 😇😥
We had to, of course, adjust to coming home without her, to planning her services- which was absolutely perfect 🥰 💞 and beautiful by the way...
( Disclaimer....While We always knew obviously, we had a child with cancer, and knew it was a possibility that she would die--- It just wasn't expected, that way or that day...)
We had to adjust to someone who plays with toys, requiring medical attention 24/7 (while we would absolutely do all over again if only possible) , still learning elementary things in life, still not minding being with Mom and Dad lol...
To no longer being physically present! 😭
That was also something sometimes life just doesn't prepare you for...

Well, We know where Danielle is and it was God's will to take her home that day. 🙏
We are reminded of 2 Corinthians 5:8
We are confident, I say, and willing rather to be absent from the body, and to be present with the Lord.

Well, we know Danielle loved Jesus and she's right there in Heaven now, playing on streets of Gold in her whole healed body ✨️ no longer suffering from pain and is cancer free. Hallelujah!! 🙌🙌🙌🙏🙏🙏😇😇😇
While we have had a few bumps in the road since her passing- we are doing pretty well considering. We rest in knowing by Faith, we will be reunited again with Danielle in eternity.
1 Thessalonians 4:13-17 says...
"Brothers and sisters, we do not want you to be uninformed about those who sleep in death, so that you do not grieve like the rest of mankind, who have no hope. For we believe that Jesus died and rose again, and so we believe that God will bring with Jesus those who have fallen asleep in him. According to the Lord’s word, we tell you that we who are still alive, who are left until the coming of the Lord, will certainly not precede those who have fallen asleep. For the Lord himself will come down from heaven, with a loud command, with the voice of the archangel and with the trumpet call of God, and the dead in Christ will rise first. After that, we who are still alive and are left will be caught up together with them in the clouds to meet the Lord in the air. And so we will be with the Lord forever."

Along with everyone else who has been praying for our family, we too pray 🙏 for strength and the Lord has been Faithful in getting us through. Amen! We absolutely appreciate everyone's prayers 🙏 ❤️ from the bottom of our hearts 💕

We not only think about her all the time, but we are given certain little, "God Whispers" or signs from above, if you will...
I'll include a picture of a butterfly 🦋 that landed on Vincent Jr. in our backyard soon after we got Danielle's Urn ⚱️ home....
Backstory....My mom passed while I was pregnant with Danielle. My mom loved butterflies, Monarch butterflies to be specific. Everytime we'd see one Danielle would say look mom- it's your Mom....
Well the butterfly that landed wasn't a Monarch butterfly... this one was a Black Swallowtail... her favorite color was yellow 💛
It landed right on him.... 😇 👼 😇
Thank you God 😊 💓 for that Whisper.... 🙏

Also, before writing this post, looked in my camera to see what we were doing a year ago today... this is the video from a year ago today. I remember recording this... 💕
I didn't remember we were watching the K-Love awards at home while I was recording.
Danielle would watch this repeatedly at MD Anderson... Now I understand why... 🏡 ❤️

I'd like to include we feel very grateful and blessed to not only to have been entrusted by God with Danielle's 9 short years here on earth , for the beautiful memories that will forever be precious 💖 but also for the promises of God that we will one day, see her again 😊 ❤️

Thank you everyone 😊 for all you have done for us!
We couldn't have done it without you ❤️ 💙 💕
God bless 🙌 🙏 ❤️

15/02/2024

Please Join us in celebrating the life of our beloved Danielle Brooke Fabro on March 2, 2024 🙏🙏🙏
God bless 🙌 🙏 ❤️

View Danielle Brooke Fabro's obituary, find service dates, and sign the guestbook.

07/02/2024

***Update on Danielle***
Day 222 at MD Anderson was yesterday....

And with the heaviest of hearts 💔💔💔... Danielle lost her fight yesterday at 12:12 PM as the Adenovirus overcame her and multiplied by the millions. 😭😭😭 She fought long and hard and she is now eternally at rest wrapped in the Loving Arms of our Lord and Savior Jesus Christ! 🙏

She will be so very missed and brought such joy and light to this world 🌎 ✨️ 💛

We would like to thank everyone for their fervent prayers love and support and always cheering Danielle on! ❤️ She really appreciated it and always felt the love ---just as she gave it! ❤️

I am just getting back home and will make funeral arrangements soon. I will post about her services when we get them arranged.

Thank you all so much for all your support ❤️
God Bless

30/01/2024

***Update on Danielle***
Day 215 here at MD Anderson

Thank you all for your patience with my updates...
It's been a rough couple of weeks and we are still in the thick of it!! 😫 Often times very scary to say the least!! 😰

Danielle is currently still in PICU. It's been almost 3 weeks that we've been here. She's is still on oxygen 24/7 and having still a great deal of pain. Her whole back is the chief complaint about the source of her pain. She has been sleeping 😴 most of the days. She was getting up and playing a week ago but that has declined a lot since. 😢

We are supposed to get an MRI tomorrow to better see what's going on there. In addition to that, her CT scan last week suggested she has fluid on the left side of her brain 🧠 😳 We have been very distraught about that and will not know definitively what exactly is going on until this MRI - for now they are assuming it is Chronic Subdural Hematoma- which is very rare in children.
Please pray 🙏 it's nothing serious and that this MRI shows its minor and can be resolved easily!

She also has AKI or acute kidney injury caused by medication. Her kidney function was awful last week but seems to have improved since so praying that continues and she can recover from it 🙏

And the kicker.... the Adenovirus.
Danielle received the CTL'S (Cytotoxic T Lymphocytes) To combat the Adenovirus for her. It was part of a study. She was SUPPOSED to receive her 2nd dose on Friday. About 2 hours prior to the transfusion someone in that department decided she was no longer eligible for it?!?!?!?!?! What?!?!?!
She responded very well to it and the Adenovirus in her blood had went from 1.1 Million down to 44,000!!! So much progress and sounded like she would only need that last transfusion to rid it from her body.
It affects all your organs and is also found in her urine. Her urine count was down to less than 300 last week. Today it's back up to an astronomical 10 Million!! The highest in her urine prior was 1.2 Million.
We are still waiting for the latest results of her blood at this time - surely it's elevated as well since her urine has skyrocketed!!!

The doctors here are meeting with the Stem Cell team trying to get answers now. If she is ineligible now for the study, why? And she needs these CTL's or she will not be able to combat the Adenovirus on her own since she hasn't had an immune system for 8 months now.

Please pray 🙏 these people in charge of the CTL'S transfusion have compassion and get them to her even if she is no longer eligible for the study 🙏 😢 Otherwise, the outcome isn't going to be good. 😭

So, we need a LOT of prayers 🙏 right now and would greatly appreciate it if you would take a few minutes to do so. We believe in the power of prayer 🙏 ✨️ 🙌 ❤️ and believe that God can and will heal Danielle 🙏 🙌

Thank you and God bless 🙌 🙏 ❤️

20/01/2024

***Update on Danielle***
Day 205 at MD Anderson

Well, Danielle has been in the PICU for 8 days now. 😲

Initially her oxygen was not helpful and they put her on high flow again as the Adenovirus ran rampant in her system--- since she has no immune system to fight it.
Due to it replicating to over a 1.1 million, something had to be done ASAP!
The doctors said her only option was Cytotoxic T Lymphocytes. These cells are trained in a lab to combat certain viral infections.
They had to swab her DNA and then wait for the results to see if they had a donor that matched. All of this happened rather quickly by the Grace of God 😇😇😇 because from DNA swab to finding a perfectly matched donor and insurance approval for what is considered a trial to the actual transfusion was only 4 days!!!!! Hallelujah 🙌 🙌 🙌 🙏🙏🙏
So prayers 🙏 were definitely heard and we thank you all so very much!!! 🙌🙏🙌🙏🙌🙏🙌

We are forever grateful and blessed to have been here--as this could have been an entirely different outcome had we been at another hospital where they don't have these capabilities!!!! Seriously! 🥺

Please pray these CTL's continue to do their job as they are working 💪 currently! Her Adenovirus PCR went from 1.1 million down to 75,500 currently. 🙌🙌🙌🙌🙌🙌
She may need another CTL transfusion this Friday to get the count back down to 0 or NOT DETECTED. We will see this week if that's necessary.

We have to tackle this virus before further cancer treatment can be done. So that is paused for the time being.

Please keep Danielle in your prayers 🙏 and continue to pray the CTL'S combat this virus in its entirety and for her pain to subside as she is very, very inflamed and hurting pretty bad! 😪😪😪

We greatly appreciate each and every prayer 🙏 ❤️
God Bless 🙌 🙏 ❤️

11/01/2024

Happy Thursday yall 🥰
Warning ⚠️ this is a long post...

***Update on Danielle ***
Day 196 here at MD Anderson 😬

Well, Danielle had a few days of improvement... then came the fevers 🤒 🙄 😒 so she's been down again these last 2 days, unfortunately 😕

She has quite a few issues brewing, still- mainly because she's been Neutropenic ( 0 immune system) for 7 months now.

1st ---she still has Adenovirus, which is a common cold--- but she has nothing to fight it. Her numbers on this virus keep climbing on her bloodwork, and she still has spots in her lungs 🫁 😳. She requires Oxygen still daily. 😥
The plan there to combat it is to get donors of CTL's ( Cytotoxic T Lymphocytes) which are trained for specific purposes- these are to be infused like a blood transfusion but they are supposed to begin fighting this Adenovirus for her. That should happen early next week should all go well there. 🙏🙏🙏
In doing this they had to ween her off a lot of steroids- in turn that may have been keeping her fevers at bay, but that's no longer the case as she's been running fevers every few hours since. 🤒🤒🤒

2nd ---She also still has Pneumonia, in which would be another reason for the Oxygen use. She's currently on a new regimen of antibiotics for coverage there. She also is getting 4 breathing treatments daily. Praying 🙏🙏🙏 it works quickly and that clears up soon as well!!

3rd--- She has a kidney stone and has been in some excruciating pain these last few days. Please pray 🙏 it passes soon and she's relieved 😌 of all that pain. She was doing so well and getting around better, then all this happened. 😩

4th--- She still has Colitis and some intestinal inflammation- it was causing her again to not want to eat because she felt full immediately and it was causing a lot of stomach pain to come back as soon as she ate anything. However, it has improved since her last CT in December when it was found. She seems to be doing a little better today with the stomach pain. 🙌🙌🙌 She is also very fragile and skinny now since she had the stomach pain for so long and was barely able to eat. She's been eating a little more here lately than before and pray 🙏 she's able to get her weight up soon so she's in less body pain from being so thin and laying in this bed!

5th--- Danielle is still requiring daily or twice daily Platelets transfusions. She gets RBCs at least once a week also. She's still on continuous LASIX drip to keep the fluid overload as low as possible.
Her bone marrow is crowded and until the cancer cells go down she will continue to need these daily transfusions. She hasn't received anymore WBC transfusions this year, yet. She may get some here in a few days again to also help fighting her infections. Working on that now...
As far as donations for the WBC'S-- I've had numerous people express their interest in donating. We've had quite a few donors over recent months and we're so blessed 🙌 to have such a large turnout. However, the criteria for her to receive them now has since changed. Before she could receive from anyone. Now due to antibodies, she can only receive from a person with either A+ or AB+ blood. So if I didn't reach out to you for donations, please know this is why. We truly appreciate everyone who was able before and wish you ALL were able again, but that's no longer the case. 😔

6th--- Lenalidomide will finish tomorrow. It was a 21 day regimen. Today her Blasts (cancer cells) are still at 96%. I'm not sure how long, or how many rounds of this medication it will take to work, or if we have to switch gears and go another route. Her doctor is out of the country and will discuss it with him when he returns.
She has a week off of the chemotherapy medication either way. We really had high hopes for this medication because it is more targeted specifically to Danielle-- but just don't see much progress thus far, 😕 unfortunately 😔.

Good news ---is the fluid around her heart has gone down in her last Echocardiogram... Hallelujah 🙌🙌🙌Praying 🙏 that continues as well!! ( They first thought her heart was enlarged- Praise the Lord 🙌 it was only fluid!!!
And she's not been sleeping all day like she had been before due to the Methadone.
Although, since the fevers 🤒 returned she has been napping a bit while they are brewing, to be expected.
But when she's up and not in pain she plays with her toys, crafts and IPAD as usual.

Prayer Warriors, Please say a few extra prayers 🙏 this week for Danielle to be fever free 🤒, get approved for the CTL's and have a donor, Adenovirus and Pneumonia improves or clears up, Kidney stone breaks down and passes, continues to eat without pain, requires less blood products and we are led to the next step in combating this stubborn Leukemia 😣 if it be the same medication or a new. 🙏🙏🙏
We greatly appreciate each and every prayer 🙏 ❤️ and are forever grateful for them!! She's really gotten such a following for prayers and it's such a wonderful blessing 🙌 🙏 💖 and such a God send!!

Pics are from yesterday and the day before 🤩

Thank you and God bless 🙌 🙏 ❤️