Migrainiac

23/03/2024

Tuesday, March 19, 2024 was a dream come true for a girl who grew up in constant pain and was told by a Dr. that she’d never amount to anything more than a housewife due to her condition.

Tuesday was the 17th annual Headache on the Hill, a day I never thought possible. I advocated along with 275 patients, caregivers, providers and researchers representing all 50 states.

The largest and most diverse Headache on the Hill yet.

We spoke with our Congressional offices to share our personal experiences living with headache and migraine disease, highlighting their significant impact on our daily lives and to advocate for legislative support on the following asks:
1. The Safe Step Act
2. NIH Clinical Trial Diversity Act
3. Increased funding for the VA Headache Disorders Centers of Excellence

Wondering how you can help make an impact in just a few minutes?
Click the link below to send a pre-drafted message to your representatives:
https://secure.everyaction.com/vM031iL9DkW64SpZlHmfLA2?contactdata=zdnsX+rdaZhYw9Fa7EeBlF7QrtgBa3kjje0fLL5wu480s7dg9XMDtSUqD5G4ygkVqNicnBwdAvKCll6D0PUAIuWmMLdP6oc3jZVD4LQIJ7naNDGPbJxrN7v609QztZ+AtgG8gN0f7MDQioCRyd3syh4bR1HOI3Y9GPnGYZCivfJCWttMvUukeQVUFEbxNOQ5mGPfc1keqygV2spPhdgPjHhJ5VgGnK3TEBd5wPaB70kHmTOSeMSMr%2fwZTSVmdGIO&emci=883681d3-efe2-ee11-aaf0-002248223794&emdi=a446084d-f1e5-ee11-aaf0-002248223794&ceid=5114606

Any bit helps, and no it’s not just a headache and yes you can dream big no matter your condition or where you’re at.

💜💜💜💜

Alliance for Headache Disorders Advocacy Julienne Verdi Migraine Writer Ana Wright Vias

21/09/2022

Miles for Migraine NYC Walk/Run/Relax Event - Sept '22

Thank you for everyone who donated to Team Migrainiac! This event raised over $8,000 for medical research, headache specialists and advocacy in the NYC area!!

21/06/2021

Show you care, wear a pair! 😎💜

10/06/2021

In case no one’s told you yet today. You made it to the hump. I’m proud of you. You should be too 💜💪🏼

01/10/2020

Forever striving for this level of comfy-cozy

13/09/2020

Recently took a trip up to the mountains and got to escape for the first time in a long time for many obvious reasons. I took all precautions but the one I did not account for was altitude sickness which is amplified as a person living with migraine. I felt a shift from the second I arrived and didn’t sleep the first night I was in so much pain. I went to an oxygen therapy center where I was given an IV with B vitamins, magnesium and oxygen. I hydrated, I napped, I ate carbs. It helped lessen the intensity a bit but did not take away the intense migraine and nausea I was feeling. I was out of breathe simply walking. I was frustrated because there was so much beauty around me and I wanted to enjoy it. I had envisioned the trip going differently but had to alter my expectations. I didn’t handle it well at first. I had to remind myself of my limits and how lucky I was to even have the ability to be where I was. I still ended up getting to do and see some pretty great things. Amid a global pandemic. If that’s not a lesson learned I don’t know what is.

09/09/2020

Sry I’ve been MIA, been adjusting my altitude...

21/06/2020

Rocking my with my sister who has doubled as my caretaker, supporter, cheerleader, confidante and best friend. Who are you wearing a pair with today? 😎💜

16/06/2020

“The negative connotations surrounding the word ‘migraine’ are not going away unless those living with migraine take it upon themselves to clear its good name.” - A GUIDE TO ENDING STIGMA -
For you. 💜, Me.

16/06/2020

I wrote this for Guide to End Stigma for National Migraine and Headache Awareness month that can be used as a tool all year long 💜🤍 thanks CHAMP - Coalition For Headache And Migraine Patients for thinking of me

“The negative connotations surrounding the word ‘migraine’ are not going away unless those living with migraine take it upon themselves to clear its good name.” —Stacy Herman