Pray for Brady

Pray for Brady After strokes, tests and brain biopsy, Brady has a rare vasculitis in his brain. Please pray!

11/01/2025

Leaving the ER with Brady here in a bit. He woke with nausea and stomach pains and had puked again, this time puking up his seizure medicine. He's also lost 2 pounds since mid September...

We come in concerned it was pneumonia (this is how he presented last time) however his X-ray shows everything is clear.

We've done ct scans (shows thickening and inflammation) bloodwork (inflammation markers are elevated) zofran (so he can take another dose of his seizure medicine and keep it down) and now ultimately they think he likely has Crohn's disease... we have to follow up with a GI doctor again and go from there. Apparently his scans showed some mild inflammation a year ago, but now it's moderate thickening of the illium wall and what appears to be lots of fluid. It is NOT his appendix... at least they don't think it is for now.

I just want him to feel good and be healthy.

Once again, I'll post more as soon as we know more.

😩

Pirate Brady is set up and ready to pass out candy! On a side note, his IgG levels are very low.. he will be getting hom...
10/31/2025

Pirate Brady is set up and ready to pass out candy!

On a side note, his IgG levels are very low.. he will be getting home administered replacement IG either weekly or biweekly once insurance approves it. Anyone out there been on hizentra?

In other news, Brady is getting his bioness braces soon! Updating more after we have them.

He's also going in for a sleep deprived eeg on the 1st of December. Stay tuned.

❤️

10/15/2025

Update:

Neuro is increasing his antiseizure dose to 1000mg per day.... we also have an appointment.

Today he does feel better, still has a headache and some nausea.

We head home tomorrow.

Small update on our guy after today's seizure. First, he says thank you for praying for him. He's struggled with nausea,...
10/15/2025

Small update on our guy after today's seizure. First, he says thank you for praying for him.

He's struggled with nausea, anxiety, fatigue, dizziness and a migraine like headache all day. Most of the day only tolerating very small bites of food. We are keeping him hydrated and watching him very closely.

This evening he was able to tolerate about 10 good sized fries.

Despite all that he is feeling, he's pushed through and done his best to have fun. He's wanted to stand multiple times for photos with his sisters.

He is looking forward to being "home" aka the condo here in a bit.

10/14/2025

Hey everyone..

We are currently in Florida at Epcot. Just got our day started and Brady's had another seizure.

We've put in a call to his neurologist.. waiting on the doctor to call us back.

Please send a prayer that he doesn't have another one today. This one was short, about a minute long.

09/26/2025

UPDATE:
Brady is doing fine. We were sent home last night. No life flights or anything bad this time. Upped his anti seizure meds. Hopefully this was just a one time thing. Prayer warriors were amazing. Thank you!! ❤️🙏🏽

09/26/2025

In the ER with Brady.

We believe he just had a seizure.

Will update in a bit.

Prayers appreciated.

UPDATE:
No further seizures so far. Waiting on Dr. and getting blood work at this point.

UPDATE:
ER Dr just come in, he is ordering his Keppra levels (takes a couple of days to get the results) and is going to consult with his neurologist in Louisville. He said the dose he is on is fairly low and it's his guess that he needs his dose increased.

UPDATE:
It was for sure a seizure. The ER doc is making contact with the Louisville docs now.

FINAL UPDATE:

They are sending him home tonight. They are raising his meds from 500mg 2x a day to 750mg 2x a day. Waiting on them to give him an dose here and remove the IV. We are to follow up with his neurologist.

This is an absolutely huge opportunity for Brady. He has not been able to be a part of and sports and physical group act...
08/12/2025

This is an absolutely huge opportunity for Brady. He has not been able to be a part of and sports and physical group activities for over 4 years. We are so thanks for a great friend Shane at Lewis Martial Arts for giving Braudy this chance. “Quality over quantity” and “we are all different in our abilities.” To say he is on cloud 9 tonight is an understatement.

He continues to strive to be better, stronger and wiser everyday of his life. There is more to this opportunity then anyone will ever know.

❤️❤️❤️❤️❤️

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