Team Dallas - Our Canavan Disease Warrior

03/24/2026

Please send prayers of peace and strength to the Landry family.

Our bestest buddy Warriors for Lane has gone to heaven. And I am absolutely devastated.

We are close friends with Lane and his mama. We both have terminally ill children of the same age. We have grown...and broken together. We have reached out to each other when times get tough. We have shared laughter when other people would share tears. I called Lanes mom on my hardest days because I knew she "got it" and she "understood". We often laughed about how people would confuse Lane and Dallas because they look so much alike. But we never corrected anyone because we were okay with people accidentally praying for the wrong child. We love each other! But now my baby Dallas is still here and Lane is in heaven 💔💔💔

His passing was intentionally peaceful. But nothing can prepare you for the pain that follows... They need our love and our support through the unimaginable.

I love you forever Lane 😇
You are Dallas' superhero.
Your mom is mine 😭

03/21/2026

Took Ryan to to the ER today. The wound on his leg was debrided on Tues and yesterday it was looking really ugly. It also smelled really really bad. So vascular surgery who is managing his wound care told us to take him to the ER. All of his labs were really reassuring. His WBC was within normal range and his inflammatory markers were only slightly above normal. All great news! They put him on two different antibiotics to get us by until our wound vac supplies get here. And we will follow up with the vascular team next week. If infection is starting we caught it plenty early.

I am going to share pictures of his wounds in the comments, but I will hide them under the Nest. They are incredibly graphic so please do not look if you don't have a strong stomach for gross stuff. Its bad.

Dallas had a good week. He was a little uncomfortable today but we got him feeling better. Cheeks are super rosy but no fever! We are ready for some Live on Patrol tonight!

ETA: The wound photos are of Dallas' dad, NOT Dallas' leg.

03/15/2026

The kids are having a blast! The weather is getting bad fast so I already extended our stay by 1 day. I just do not feel like the roads will be safe enough to drive on tomorrow with all these young ladies I am responsible for. Needless to say the girls and Deputy Dallas are THRILLED to be snowed in at a hotel instead of their own houses. Stay safe everyone!!!

03/14/2026

03/14/2026

What do you do when there is a Blizzard Warning and a birthday party on the same day? PARTYYY!

03/08/2026

Dallas is looking so fresh and ready for a nap after his haircut, bubble bath, and massage 🥰🥰

03/08/2026

Haircut day and Deputy Dallas is THRILLED 😂🥰

03/03/2026

This is why Deputy Dallas and I are proud be Live on Patrol backseaters. We love and support our friends at the Ramsey County Sheriffs Office 💙

These are humans
We as society have to be better
We all bleed red
How would you want your loved ones to be treated?

Spread kindness and respect. You never know what someone else is going through.

02/26/2026

Dallas is having a better day today! It wasn't off to a great start. He did throw up this morning and needed an outfit change but has been much better overall than he was yesterday. Still some shaking and high tone/clonus, but he hasn't needed any rescue meds so far.

And we have smiles!

Gaaaah.... he is SO extreme 🙄
Day to day you never know which version of Dallas you are going to get!

Also because I saw a lot of comments asking yesterday....Ryan is doing better! The wound on his leg is gnarly. Its starting to weep and drain a lot more now which i think is part of the healing process. Or just swelling in his leg having nowhere else to go? Its not infected, just dead. We will see plastic surgery In about 4-6 weeks to discuss skingraft. He is still sore but has weaned back a lot on pain management so he can do more. Trying to make sure he doesn't OVER do it has been a bigger challenge lol.

Emma is doing great! She has been helping me with Dallas when she isn't at school or church or racing. YES Emma is still racing! She is doing snow drags instead of ice ovals now. Her big sister Bre has been racing this year too! They were at Triplefest Last weekend with our race family while I took care of our boys from home.

They will be racing in Hugo this Saturday 🏁

02/26/2026

Today has been a terrible day for Dallas. He has been battling dysautonomia tone, clonus, mini cluster seizures, and pain alll day. His suspected seizures episodes are intermittent, brief, but fairly frequent. The more painful episodes are far worse. Something is changing. His doctors have been consulted and arent quite sure what this is or what to do. "Try this, try that, if it gets worse or persists through the day tomorrow, bring him in"

He just finally fell asleep after his 5th dose of rescue meds. Please just pray that he has a better day tomorrow.

He was SO HAPPY yesterday!!!

This life is such a rollercoaster ride ...