10/18/2025
Sorry for making everyone wait so long for an update. Dallas was discharged from the hospital a week ago and it has just not been easy. So much has changed. He is still having a hard time from a respiratory standpoint. Dallas has chronic respiratory failure and Adenovirus really did a number on him. It always takes SOOO long for him to get over any sickness. Since getting home we have managed get a few smiles. But we are still having a hard time keeping his oxygen up without LOTS of extra suctioning, respiratory treatments, bipap, and Oxygen. All the same stuff we were doing in the hospital, we do here at home. He is also coughing a lot (which is actually a good thing) But it sounds terrible. I do think the botox in his saliva glands helped, but it is not what I expected.
Then mid week he started crying in pain and running fevers. So Ryan and I took him to Urgent Care because things just aren't getting better. His lungs looked good but he does have a UTI and we are still waiting for culture results to find out what kind of bacteria is growing. He is on Antibiotics and hopefully we don't have to switch. Sometimes he gets resistant bugs that need different treatment.
So hopefully resolving the UTI will help things get better. He does seem to be less uncomfortable today but still just tons of coughing. We also n checked to see if he had any new viruses and he was all clear there. So getting over the virus he had is just going to take time.
Oh and switching from G-tube to a GJ feeding tube is the only reason we are even able to be home right now. Anything goes in his stomach he still throws it up. So thank God for an alternate way to give him hydration, nutrition, and medication. But it means he is constantly hooked up to a feeding pump which is no fun.
I did have to postpone my Knee surgery because Dallas has been so sick. It is now scheduled for October 28th.
Lots of changes, TONS of extra work, sleepless days and nights, but I am blessed and thankful we made it home and are still able to be here despite him still being sick. Because there is no place like home 💙
