Team Dallas - Our Canavan Disease Warrior

Team Dallas - Our Canavan Disease Warrior This page is to highlight the life of "Deputy" Dallas. A beautiful and brave little boy spreading kindness and Canavan Disease awareness!
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Dallas says HAPPY VALENTINES DAYYYY 😘😘😘
02/14/2026

Dallas says HAPPY VALENTINES DAYYYY 😘😘😘

There is nothing more child-proof, adult proof, human-proof, or frustrating than the aluminum foil seal on the top of a ...
02/13/2026

There is nothing more child-proof, adult proof, human-proof, or frustrating than the aluminum foil seal on the top of a damn Pedialyte bottle!! 🤬 🤬

End Rant.

For those of you interested in how Dallas' dad is doing after his snowmobile accident, I have been sharing those updates...
02/13/2026

For those of you interested in how Dallas' dad is doing after his snowmobile accident, I have been sharing those updates on my personal page Kianna McBride. He had to be airlifted to a trauma center on Saturday after the right A-Arm broke on the ski of his snowmibile during a radar run while he was at top speed.

Between Dallas and Ryan I have been so SO busy. Dallas has not exactly been on his best behavior either.

Ryan's injuries include a complete tear of his MCL in his right knee, 4 different fractures in the bones within his right knee, a fibula fracture in 2 places in his left leg, very likely injuries to his left knee and ankle as well but we haven't been able to MRI yet due to swelling, a torn left bicep, a fractured vertebrae at T1, injuries to his butt/tailbone, bad road/ice rash, and a large area on his left leg that bruised so badly the tissue has died and may need debridement and skin graft. We will learn more next week when we see his primary care doctor on Monday and the Orthopedic Surgeon on Thursday. He has in home nursing that is coming 2x/week for his wounds. I have to re-dress them daily. We also had an incidental finding on his CT that requires biopsy and follow up with Gastroenterology. Lots of things!

We are all home now and have a lot we still don't know. Like what injuries will and will not require surgery. But I do know it is going to be a very long and difficult recovery.

I now have 2 patients.... and zero patience 😅

Also, use caution if you decide to go through all of the pictures. Some of them are pretty ouchie.

Today we took Dallas out to the lake to watch his cousin Kory race with our old race club Kids Pro Ice! But they are all...
02/01/2026

Today we took Dallas out to the lake to watch his cousin Kory race with our old race club Kids Pro Ice! But they are all still family 🩵

Kory got better and better and she finished her day with a 1sh place win in stock 120! 💪🏆🏁

Dallas loved getting back at the track and I loved getting of the house with family! But now Dallas and I are snuggling in my big comfy bed waiting for our Walmart delivery to arrive 😊

The happiest little Buzz there ever was!Busy day today! But Dallas did awesome and had a great time cruising around in t...
01/27/2026

The happiest little Buzz there ever was!

Busy day today! But Dallas did awesome and had a great time cruising around in the cold with mommy. We went to the doctor for my knee, she said I need to increase how often I do PT and that the next 3 months will be harder. PT has been quite painful. Not thrilled about that 😩

After the doc we went and found Darryl F Spence Sr and our friends at Ramsey County Sheriff Office to deliver toe warmers, hats/gloves, and more coats that were donated! Dallas was VERY happy to see them. Rev got a BIG ole smile😁🥰

I had a therapy appointment after we got home and those always help me feel better about the stresses of life. Stopped at the pharmacy, made a delicious dinner, did some laundry, gave Dallas a bath.

Where in the world did the day go?!?

Deputy Dallas is out and about with mommy today! I have my 12 week follow up on my ACL replacement. Then we are going to...
01/26/2026

Deputy Dallas is out and about with mommy today! I have my 12 week follow up on my ACL replacement. Then we are going to find Rev Darryl F Spence Sr and bring him more coats!

Deputy Dallas has been such a stinker lately! One minute he is laughing and happy and full of smiles. The next he is sob...
01/21/2026

Deputy Dallas has been such a stinker lately! One minute he is laughing and happy and full of smiles. The next he is sobbing in severe pain! Some days we have had beautiful vitals, the next he is giving me a heart attack by smiling while his oxygen is sitting at 78-79%. Then there is the sleep! Or lack thereof. Every other night he thinks he should just party till 12am! Even on a work night! NEW YEARS IS OVER BUDDY!

We had an appointment with his Palliative doctor yesterday and are going to try some new ways of keeping him comfortable without completely knocking him out on his bad days. Over the last month, I feel like things are kindof going in the wrong direction for him. More pain/discomfort, tone, clonus, sleep pattern changes, sporadic fevers that are gone by bed time. And some days we are seeing a decrease in his urine output, even though his input is the same. We follow up with Palliative again in 2 weeks to see if the changes we made have helped.

I don't think he is sick with an acute illness. Things don't add up and aren't consistent. I am thinking this is all just related to his Canavan Disease.

We have seen him go through bad weeks (even bad months) then rebound and get back to himself over time. But every time we see regression like this it makes me nervous. What if he doesn't rebound? Is this our new normal?

In my heart, I believe we will get this sorted out. He has been very happy today and that always gives me hope. But we could use some extra prayers.

Here is another photo dump of the sweetest and bravest little Deputy there ever was!

Deputy Dallas 💙

We made it home safely and everyone is happy!Dallas was SUCH a trooper waiting around in the hospital with us all day. H...
01/09/2026

We made it home safely and everyone is happy!

Dallas was SUCH a trooper waiting around in the hospital with us all day. He handed out citations to several recovery nurses. And some of our nurse friends even came to visit us when they heard we were in the building!

And EMMA FINALLY SMILED FOR A PICTURE!!! 😁😍 But the catheter sites are definitely sore. She said the one on the right bothers her a lot more than the one on the left. Take it easy for 3 days. No lifting over 10lbs for 5 days. No pools or baths for 7 days, and follow up with her cardiologist in 6-8 weeks!

So thankful to have this behind us! 💙💪🫀

Emma did great! She still feels funny and is drowsy but we are cleared to head home! Ryan had to leave after we saw her ...
01/08/2026

Emma did great! She still feels funny and is drowsy but we are cleared to head home! Ryan had to leave after we saw her in recovery so I am headed home with both my babies!! Thank you for the love and prayers everyone!!!

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North Branch, MN

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