Schizencephaly Awareness

02/28/2026

For the 14th consecutive year, Friendship Circle is holding the Great Bike Giveaway, an annual campaign that strives to provide as many bikes as possible to children and teens with special needs. 

01/27/2026

01/10/2026

12/07/2025

“Don’t let your child’s diagnosis become your personality”

It is something that is said often, given as advice.

That advice is unrealistic.

Hearing your child’s diagnosis is life altering, it changes everything you thought you knew before you heard those words.

It changes how you view the world and what you once thought was important.

It changes how you carry yourself through unimaginable obstacles.

And it causes you to live in fight mode because flight mode isn’t an option.

That diagnosis,

It made you feel such an indescribable pain that you don’t allow anything less than to break you.

That diagnosis,

It is a part of you.

You couldn’t stop it from changing your personality if you tried.

And you shouldn’t.

That diagnosis made you unstoppable,

It made you love harder than you knew possible,

And it made you strong.

The type of strong you envied in others,

the type of strong you never could have imagined yourself capable of.

That diagnosis,

It made you everything that you needed to be for your child.

So, let it.

Let that diagnosis become a part of your personality.

Because that personality is the one that keeps you going every single day.

Written by: Carla Moore from Payton's Path

11/17/2025

11/15/2025

"He doesn't deserve what is happening to him now, but he deserves love from people."

Family seeks Christmas cards for terminally ill teen's final holiday. ⤵️

11/15/2025

I have to outlive my child.

I know it sounds dark.

It is dark.

But it’s my reality.

It’s the reality of most medically complex parents.

We don’t want to live forever.

We just want to live longer than our child.

We have to.

Because nobody else knows them the way we do.

No one else knows their sounds, their cues, or those tiny signals that mean something’s wrong.

No one else knows the meds, the machines or the day to day routines.

No one else knows them like we do.

We know how complicated their care is.

We know how easily the world would fail them.

They need us.
They need our love.
They need our level of care.

A world without my child should be my biggest fear,

But the truth is a world where she is without me is far more terrifying.

So…taking care of myself isn’t about self care.

It’s about survival.
Because I HAVE to be here.
For as long as I possibly can.

It’s a heavy thing to carry, loving someone so deeply that your biggest fear isn’t your own death… it’s dying before them.

This is, by far…the hardest reality I carry as a medically complex parent.

Written by: Carla Moore from Payton's Path

11/08/2025

09/10/2025

Just my two cents.....

Caregivers deserve more than survival mode.

You may not agree, but you also probably have never experienced this life.

Be thankful you have no idea what survival mode is.

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A Journey For Avery

09/08/2025

09/07/2025

09/05/2025