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The USA Patient Network consists of patients, caregivers, and their friends and family members that are united by a common goal: to make sure that medical treatments are as safe, effective, and as affordable as possible. The USA Patient Network is a network of trained patient advocates ready and willing to provide patient perspectives and feedback on research design and strategy issues to federal agencies and researchers whose work determines which outcome measures provide adequate evidence of the safety and effectiveness of treatments. We focus on on the clinical research designs and criteria needed to prove the safety and effectiveness of medical products as a way of introducing patients to the scientific and statistical concepts that are especially important to patients. Because of the relatively small number of patient partners independently participating in FDA public forums, meetings, and other stakeholder events, the opportunities to do so will be a major focus of the proposed project. however, the Network and training will be very useful to patient partners who want to share their perspectives with other federal public health agencies as well as with university researchers.

🌍🏭 How Tariffs, Trade Tensions & Global Disruptions Are Reshaping MedTech Manufacturing — and What It Means for Patients...
08/12/2025

🌍🏭 How Tariffs, Trade Tensions & Global Disruptions Are Reshaping MedTech Manufacturing — and What It Means for Patients

Ongoing tariffs, geopolitical instability, shipping delays, and pandemic-era supply shocks are accelerating a major shift in the medical-device industry: nearshoring — moving manufacturing closer to where products are used.

For medtech companies, nearshoring offers:
• Greater control over production and quality systems
• Reduced dependence on fragile overseas supply chains
• Faster turnaround for critical devices and components
• Improved communication between engineers, manufacturers, and regulators

But for patients, this shift carries even deeper implications:
âś… Fewer shortages of life-sustaining devices
âś… Better quality oversight and traceability
âś… Stronger regulatory accountability
âś… Reduced risk of counterfeit or substandard components entering the system

However, nearshoring also raises important patient-safety questions:
⚠️ Will cost pressures lead to corner-cutting?
⚠️ Will workforce standards and training keep pace with demand?
⚠️ Will patients see higher prices passed down the line?

At USAPN, we believe manufacturing decisions are patient-safety decisions. Where and how medical devices are made directly impacts outcomes, trust, and lives. As the industry rapidly restructures, patients must have a seat at the table — not as an afterthought, but as a priority.



https://www.mpo-mag.com/exclusives/how-tariffs-and-turbulence-are-accelerating-nearshoring-in-medtech-manufacturing/

🔍 New Resource for Patients: Medical Research at Your FingertipsAccess to reliable medical information can be life-chang...
07/12/2025

🔍 New Resource for Patients: Medical Research at Your Fingertips

Access to reliable medical information can be life-changing. A new website, Inciteful Med, (incitefulmed.com) is making peer-reviewed medical research accessible and understandable for everyone — no medical degree required.

The platform allows patients to:

Search for research on specific conditions or treatments.

Upload medical records to get relevant studies (while keeping privacy in mind).

Prepare for informed discussions with doctors.

This tool is not a replacement for professional care, but it empowers patients to ask questions, understand options, and make safer, evidence-based decisions.

At USAPN, we believe informed patients are safer patients. Tools like this help patients advocate for themselves and cut through the confusion, hype, and misinformation that too often surround healthcare.

Patient advocacy starts with knowledge — and knowledge is power.



https://www.dailyherald.com/20251128/health-and-fitness/patient-advocate-new-website-is-a-medical-library-at-your-fingertips/

⚠️ New Medicaid Work Rules — What “Medically Frail” Really Means (And Why So Much Is Still Unclear)A new federal law wil...
06/12/2025

⚠️ New Medicaid Work Rules — What “Medically Frail” Really Means (And Why So Much Is Still Unclear)

A new federal law will soon require most able-bodied adults on Medicaid to work, volunteer, or attend school for 80 hours a month — or risk losing coverage.

But the law also carves out an exemption for those labeled “medically frail.”” What does that mean — and who will it protect?

Here’s what we know (and what’s still uncertain):

“Medically frail” includes people who are blind or disabled, those with serious physical or developmental conditions, or individuals with significant mental-health issues or substance-use disorders.

States can also exempt people with “serious or complex medical conditions.” That phrase is vague, leaving states to define it themselves.

Millions are at risk. People living with chronic illness, disability, or injury — who may struggle to work reliably — could be forced off Medicaid if states interpret “frail” too narrowly.

Even if someone qualifies, they may have to repeatedly prove their status — creating red tape, stress, and risk of losing coverage, especially if medical documentation is hard to access.

At USAPN, we believe:
Healthcare must not be conditional on your ability to work. For people with serious health conditions — disabilities, chronic illness, mental health struggles — access to care shouldn’t be a gamble.

We call on states and federal lawmakers to:

Adopt broad, inclusive definitions of “medically frail.”

Make exemptions automatic and avoid burdensome re-verification procedures.

Ensure that no one is stripped of Medicaid simply because they cannot meet arbitrary work quotas.

Because when Medicaid coverage becomes conditional on work, patients — not policymakers — pay the price.



https://kffhealthnews.org/news/article/medicaid-work-rules-exempt-medically-frail-who-qualifies/

🔮 2026 Healthcare Predictions — What Patients Need to KnowHealthcare is at a crossroads. Experts predict 2026 will bring...
05/12/2025

🔮 2026 Healthcare Predictions — What Patients Need to Know

Healthcare is at a crossroads. Experts predict 2026 will bring big changes — some promising, some risky. Here are 10 trends patients should watch:

AI in Healthcare: Adoption grows, but real benefits may be slowed by outdated systems.

Alternative Care & Wellness: More people turn to lifestyle medicine and direct-to-consumer testing — sometimes without proper guidance.

Weight & Metabolic Drugs: GLP‑1s and similar drugs boom, but safety risks remain as usage expands.

Medicare Advantage Growth: Seniors rely on these plans, even as costs rise.

Frustration Boiling Over: Medical debt, burnout, and surprise bills fuel patient and clinician stress.

Small Providers Struggle: Smaller insurers and clinics face closure or absorption, reducing patient choice.

Digital Health Reality Check: Startups must integrate with real-world care or risk failure.

Pharma & PBM Scrutiny: High drug prices draw growing public and regulatory attention.

Legislative Noise: Many bills will be proposed, but systemic change remains slow.

Health Equity Spotlight: Inequalities persist, but advocacy may push meaningful action for underserved communities.

What This Means for Patients:
Healthcare may offer more options, but risks, confusion, and instability are real. Rising costs and shifting coverage could leave vulnerable patients behind.

At USAPN, we believe patient safety, transparency, and equity must guide every change. Patients deserve stable, affordable, and high-quality care — not uncertainty or profit-driven decisions.

âś… Our call to action:

Protect access to affordable care.

Demand transparency in drug pricing, insurance practices, and care quality.

Center the voices of real patients, especially those most at risk.

Because when healthcare becomes volatile, it’s everyday people — families, seniors, and communities — who pay the price.



https://www.forbes.com/sites/sachinjain/2025/12/01/top-10-healthcare-industry-predictions-for-2026/

🩺 What Too Many Diabetes Patients Aren’t Being Told — Lessons from Dr. Otis KirkseyDr. Otis Kirksey — a pharmacist and d...
04/12/2025

🩺 What Too Many Diabetes Patients Aren’t Being Told — Lessons from Dr. Otis Kirksey

Dr. Otis Kirksey — a pharmacist and diabetes-care specialist — highlights some of the most common and dangerous mistakes people make when managing diabetes. These missteps aren’t just about lifestyle — they often stem from lack of guidance, systemic misunderstandings, and outdated assumptions.

⚠️ Common Mistakes & Real Risks

Treating diabetes as a one-size-fits-all condition. Medication, diet, and monitoring must fit each individual’s needs.

Over-reliance on quick fixes or “fad” interventions without proper supervision, which can lead to unstable blood sugar, complications, or emergencies.

Lack of proper education or support. Patients often don’t get enough guidance on managing diabetes safely over time.

âś… Key Takeaways:

Diabetes management must be personalized and flexible — there is no one-size-fits-all.

Patients deserve clear, consistent education and support — not generic or outdated advice.

Ongoing monitoring and communication with medical professionals is essential. Care plans need regular review as diabetes changes over time.

At USAPN, we believe patients have a right to safe, informed care. That includes diabetes care that respects individual needs, offers honest education, and centers on long-term safety — not quick fixes or one-time interventions.

If you or someone you know is living with diabetes, talk to your care team, ask questions, and never settle for a “standard plan” if it doesn’t feel right for you.



https://rollingout.com/2025/11/29/dr-otis-kirksey-talks-diabetes-mistakes/

🚨 URGENT DIABETES SAFETY ALERT 🚨If you — or someone you love — uses an Abbott FreeStyle Libre 3 or Libre 3 Plus glucose ...
04/12/2025

🚨 URGENT DIABETES SAFETY ALERT 🚨

If you — or someone you love — uses an Abbott FreeStyle Libre 3 or Libre 3 Plus glucose sensor, please check your device immediately.

Federal health officials have issued an alert warning that some of these sensors may give dangerously low glucose readings, even when blood sugar is actually high. This type of error can lead to incorrect insulin dosing and life-threatening outcomes.

What we know:
• 736 serious injuries have been reported worldwide.
• 7 deaths may be linked to these faulty sensors.
• Affected sensors were distributed globally, and patients are being urged to verify their serial numbers.

If your sensor is affected:
• Stop using it right away.
• Switch to a finger-stick glucose meter or the meter built into the Libre 3 reader for all insulin and treatment decisions.
• Contact Abbott for a free replacement sensor.

PLEASE SHARE — this alert could save a life. 💙

The FDA is warning people with diabetes about millions of faulty glucose sensors linked to multiple deaths.

💔 “Avoidable and Preventable” — One Family’s Fight for Healthcare JusticeIn November 2025, 20-year-old Rowan Hamilton we...
03/12/2025

💔 “Avoidable and Preventable” — One Family’s Fight for Healthcare Justice

In November 2025, 20-year-old Rowan Hamilton went to the ER at Surrey Memorial Hospital with severe shortness of breath and chest tightness. Instead of a thorough evaluation, he was sent home with antibiotics.

The next day, Rowan collapsed at work. When finally hospitalized, tests revealed life-threatening blood clots and an enlarged heart. Despite emergency care, Rowan suffered catastrophic brain failure and passed away.

His father, Justin Hamilton, calls it “avoidable and preventable.” Had proper diagnostic tests been done the first time, his son might still be alive.

On November 29, Rowan’s family and supporters rallied outside the hospital — not to blame staff, but to demand systemic change. They are calling for:

Better training and protocols to catch serious symptoms.

Clearer public guidance on patient rights and emergency care.

Independent reviews of preventable deaths to ensure accountability.

Rowan’s story is heartbreaking, but it reflects a larger reality: overworked hospitals, rushed assessments, and misdiagnoses that cost lives.

At USAPN, we stand with Rowan’s family and all patients harmed by preventable medical errors. Healthcare should never be a gamble.

We urge leaders to address staffing shortages, mandate independent investigations, and put patient safety first — because behind every preventable death is a life that should never have been lost.



https://cloverdalereporter.com/2025/11/29/surrey-family-rallies-for-health-care-reform-after-sons-death/

📢 Rural Health Under Threat — A Real Story, Not Just a WarningA recent report shows exactly what we feared: rural clinic...
02/12/2025

📢 Rural Health Under Threat — A Real Story, Not Just a Warning

A recent report shows exactly what we feared: rural clinics are already shutting down because of changes in the One Big Beautiful Bill Act.

Augusta Medical Group confirmed that three rural clinics in Virginia — including Churchville Primary Care — have now closed their doors due to the financial and regulatory pressures created by the new law.

Churchville is a tiny community of about 200 people. Before the closure, seniors could simply walk down the road to see their doctor. Now that option is gone.

One local patient, a 56-year-old woman with asthma, shared that after her clinic closed, she started calling around for a new doctor — and the soonest appointment she could get is late January. For patients with chronic conditions, that kind of wait isn’t an inconvenience — it’s a health risk.

Residents now face traveling long distances for even simple medical needs. What used to be a short drive or walk has become a major barrier to care.

Augusta Medical Group stated plainly that these closures are part of its “ongoing response” to the funding changes triggered by the One Big Beautiful Bill. This is not a hypothetical. It’s happening right now.

At USAPN, we’re sounding the alarm.

Healthcare is not a political talking point — it’s a lifeline. When laws like the One Big Beautiful Bill cut Medicaid funding and destabilize rural clinics, it’s everyday Americans who pay the price: seniors, caregivers, working families, and people managing chronic conditions.

🛑 We call on lawmakers to:

Reverse the cuts and policy changes that threaten rural access to care

Strengthen, not weaken, the safety net for Medicaid patients

Center real patient stories when shaping healthcare laws

When a clinic closes, it’s not just a building that disappears — it’s people’s access to care, and sometimes their only access.



https://www.cnn.com/2025/11/30/politics/trump-one-big-beautiful-bill-rural-healthcare

🌟 This Giving Tuesday, Stand With Patients.Every day, patients across the country face unsafe devices, rushed approvals,...
02/12/2025

🌟 This Giving Tuesday, Stand With Patients.
Every day, patients across the country face unsafe devices, rushed approvals, lack of informed consent, and profit-driven decisions that put their health at risk.

At USAPN, we fight for transparency, accountability, and patient safety — because no one should suffer harm from the very systems meant to protect them.

Your support helps us:
✔️ Elevate patient voices in policy conversations
✔️ Train advocates to navigate complex regulatory systems
✔️ Expose failures in oversight
✔️ Push for stronger protections and ethical healthcare standards
✔️ Support families fighting for justice after medical harm

Patients deserve to be heard. They deserve to be safe.
With your help, we can continue pushing for a healthcare system that values people over profit — where safety isn’t optional and harm isn’t written off as “anecdotal.”

đź’™ This Giving Tuesday, join our mission to protect patients nationwide.
Together, we can create the change patients have waited far too long for.


Donate on our website https://www.usapatientnetwork.org/

Cyber Monday Highlight: What Patients Really Need Discounts OnWhile big retailers slash prices today, patients across Am...
01/12/2025

Cyber Monday Highlight: What Patients Really Need Discounts On

While big retailers slash prices today, patients across America still face:
• sky-high prescription costs
• unchecked drug/device risks
• little transparency about side effects
• shrinking access to care

USAPN continues to push for policies that prioritize patients over profits — because safety should never depend on your ability to pay.

If you’re shopping today, consider supporting organizations advocating for:
✔️ drug/device regulation reform
✔️ ethical clinical research
✔️ protection for patient whistleblowers
✔️ harm-reduction and informed consent

Real health equity doesn’t come from a sale — it comes from strong oversight and empowered patients.

01/12/2025

Not sure which birth control is right for you? These five tips can help you make an informed, confident decision.

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