Passage Bio

03/31/2026

For many individuals and families affected by FTD, questions about genetics, testing, and inherited risk can feel overwhelming. Conversations with genetic counselors can help provide clarity, education, and guidance during what is often a complex journey.

We’re proud to support initiatives like this that connect the FTD community with trusted experts and meaningful resources.

Learn more and register: https://loom.ly/DeTHvmM

03/20/2026

Huntington's disease is caused by a genetic mutation in the huntingtin (HTT) gene and affects families across generations. In the United States, more than 200,000 people are estimated to be at risk.

Increasing awareness is an important step toward advancing research, supporting patients and caregivers, and driving progress toward meaningful treatment options.

03/13/2026

Thank you to The Association for Frontotemporal Degeneration for bringing together advocates, researchers, families, and industry partners united by a shared commitment to progress at the Hope Rising Benefit! We are so proud to stand alongside this community.

03/05/2026

The Passage Bio team recognizes that recent news regarding the discontinuation of a gene therapy clinical study in FTD caused by GRN mutations may feel discouraging for individuals and families who have been closely following this research.

Research in FTD-GRN is ongoing, and opportunities for participation remain. We encourage families to explore trusted resources such as Cure GRN-FTD and The Association for Frontotemporal Degeneration for up-to-date information. We remain deeply committed to the FTD community — to listening, learning, and supporting patients and families while advancing research with urgency and care.

Read more here: https://loom.ly/ZSK9cU8

Passage Bio affirms its commitment to the FTD-GRN community and highlights ongoing research and clinical trial options through trusted resources.

02/28/2026

In recognition of Rare Disease Day, Passage Bio employees are wearing stripes to show our support for patients and families impacted by rare CNS disorders, including frontotemporal dementia and Huntington’s disease.

02/23/2026

Learn how frontotemporal degeneration (FTD) research—from observational studies to clinical trials—drives understanding, treatments, and future cures.

02/20/2026

Caregivers are essential every day. This , we thank you for your unwavering dedication, compassion, and strength.

02/06/2026

Transforming lives is at the heart of our mission. This Patient Recognition Week, we honor and thank the patients who inspire our work every day and remind us that true success is measured by one thing: making a meaningful difference in their lives.

02/03/2026

Empowering families with information is an important part of our work. Learn how genetic testing and counseling can help guide informed decisions for people that might have frontotemporal dementia caused by a mutation in the GRN gene (FTD-GRN) by visiting our website: https://loom.ly/WlVc6rQ

01/19/2026

Today, we pause to reflect on Dr. King’s enduring message of compassion, courage, and service.

12/23/2025

Giving back to the community where we live and work is something we value at Passage Bio. Recently, our team spent time with Broad Street Love, supporting their mission to provide stabilizing services for those experiencing deep poverty. It was an inspiring day filled with teamwork and the chance to make a meaningful impact right here in Philadelphia.

12/09/2025

There is still time to register for tomorrow’s The Association for Frontotemporal Degeneration webinar reviewing key developments in FTD research. This session will offer valuable insights into the scientific advancements informing future therapeutic strategies.

We are proud to sponsor this event and support continued progress in the field: https://bit.ly/4rfNmOq