Beyond Celiac

Beyond Celiac Beyond Celiac unites with patients and partners to drive celiac disease diagnosis, advance research and accelerate the discovery of new treatments and a cure.
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www.BeyondCeliac.org For more than 15 years, Beyond Celiac has been the leading patient advocacy and research-driven celiac disease organization working to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. By engaging with the top scientists in the field, awarding research grants, and supporting the community, Beyond Celiac envisions a world in which people with celiac disease can live healthy lives and eat without fear – a world Beyond Celiac.

This is what fighting for accessibility looks like.Yesterday, the Beyond Celiac Coalition met with the FDA to talk about...
02/20/2026

This is what fighting for accessibility looks like.

Yesterday, the Beyond Celiac Coalition met with the FDA to talk about how to run safe and effective pediatric clinical trials for celiac disease treatments.

Although there have not been trials for kids yet, this early collaboration is a key part of developing new treatments and therapies for young patients—and one that signals real treatments for celiac disease are on the horizon.

As always, we incorporated the patient perspective—of both parents and adolescents living with celiac disease—into the conversation by inviting Ambassadors to speak to stakeholders.

When we say “together for a cure,” we mean everyone. Every patient deserves options for treatment that best suit their needs and lifestyle!

Learn more about the coaltion: https://hubs.li/Q0441tFT0

We are honored to share that two of our abstracts were accepted to Digestive Disease Week® (DDW®) this year! Dr. Deb Si...
02/20/2026

We are honored to share that two of our abstracts were accepted to Digestive Disease Week® (DDW®) this year! Dr. Deb Silberg, Beyond Celiac Chief Scientific Officer, will be presenting the following:

“Patterns in prior iron deficiency anemia among patients with celiac disease”

“Barriers to child and adolescent participation in celiac disease clinical trials”, created in collaboration with Jackie Jossen of Columbia University.

Join us at May 2-5!

02/18/2026

Getting diagnosed for celiac disease can be time-consuming and difficult, and at Beyond Celiac, we’re trying to make it easier. ⚠️ If you suspect you have celiac disease and have not been tested, we recommend NOT starting the gluten-free diet until you can see a doctor, because current diagnostic practices involve ingesting gluten for accurate testing.

We have a guide for talking to your doctor about celiac disease: find it at https://hubs.li/Q043DLsD0, linked in our bio! 🧡

If you’ve been diagnosed with celiac disease, what was your diagnosis journey like? Tell us in the comments! 💬

🌟 NEWS IN CELIAC RESEARCH 🌟Forte Biosciences is launching their new Phase 2 clinical trial in the United States. FB102-3...
02/16/2026

🌟 NEWS IN CELIAC RESEARCH 🌟

Forte Biosciences is launching their new Phase 2 clinical trial in the United States. FB102-301 is a clinical trial assessing FB102, a new potential celiac disease treatment. The trial is enrolling approximately 100 participants and will have up to 30 sites across the United States.

When someone with celiac disease ingests gluten, the immune system releases cytokines, which create inflammation and damage in the small intestine. Disrupting the immune reaction to gluten is one of the approaches to treatment in the drug development pipeline.

If you are interested in learning more about the study and to see if you may qualify, visit the study website: https://hubs.li/Q043dxyW0 ➡️➡️➡️

Beyond Celiac is helping to recruit for this study as part of our mission to accelerate research. 💚

Happy Valentine’s Day from us at Beyond Celiac! We’ve CURE-ated some memes for you and yours 💗💚Share the love! Donate th...
02/14/2026

Happy Valentine’s Day from us at Beyond Celiac! We’ve CURE-ated some memes for you and yours 💗💚

Share the love! Donate this February, and thanks to generous friends in our community, a $15,000 matching fund is available through February 28th. This means every single dollar you give this month will be doubled to accelerate initiatives for treatments and a cure – and expand Beyond Celiac resources to navigate daily life.

Care today, cure tomorrow! https://hubs.li/Q042n7nX0

🌟 Exciting Beyond Celiac news! 🌟 Beyond Celiac Founder and Chief Executive Officer Alice Bast will funnel her talents i...
02/12/2026

🌟 Exciting Beyond Celiac news! 🌟

Beyond Celiac Founder and Chief Executive Officer Alice Bast will funnel her talents into the new position of Executive Director, Impact and Innovation. In this specialized role, Alice will focus on shaping and executing high-level strategic priorities, securing major and transformational funding for the organization, and leading Beyond Celiac Investments (BCI)—the first-ever venture philanthropy program in celiac disease.

Beyond Celiac President Mary Kate Carofano will continue leading the organization’s internal operations and will now guide its strategic direction, partner with the Board of Directors, and oversee all aspects of Beyond Celiac.

We are thrilled to honor Alice’s 23-year legacy with a special Founder’s Award at the 2026 Evening Beyond Celiac event taking place on June 3.

Read the full announcement at https://hubs.li/Q042WS_H0

02/11/2026

Valentine’s Day would certainly be much sweeter with a cure for celiac disease! Until then, educating your partner on your gluten-free needs is simply a stepping stone to finding the right person for you. How do you talk to potential partners about celiac disease?

We’re excited to share some news! Beyond Celiac has been evaluated by Charity Navigator, the nation’s largest charity ev...
02/09/2026

We’re excited to share some news! Beyond Celiac has been evaluated by Charity Navigator, the nation’s largest charity evaluator, and earned a Four-Star Rating. This is the highest possible rating on Charity Navigator. 🌟🌟🌟🌟💚

Charity Navigator’s impartial, third-party evaluation validates our organization’s effectiveness and reliability.

This milestone achievement for Beyond Celiac couldn’t have happened without you and your support. Thank you for being part of our family as contributors, funders, and volunteers. Your trust and support are driving research for treatments and a cure for celiac disease.

You can learn more about Charity Navigator and our rating here: https://hubs.li/Q0427Mrb0
🧡

02/06/2026

We want to hear from you! Send us an email at communications@beyondceliac.org with a video of you answering the question, “how do you care for someone with celiac disease?” for a chance to be featured!

Fact: Celiac disease can occur in any demographic; any age, any race, any gender, any location. It’s a common misconcept...
02/04/2026

Fact: Celiac disease can occur in any demographic; any age, any race, any gender, any location. It’s a common misconception that celiac predominately affects white women, but that’s not true—it can impact anyone.

According to research published in the journal Gastro Hep Advances and presented at Digestive Disease Week 2022 by Dr. Amanda Cartee, Black people with biopsy-confirmed celiac disease were more likely than non-Hispanic whites to have had negative results on the most commonly used diagnostic blood test. Up to 80% of people living with celiac disease remain undiagnosed. The likelihood of being diagnosed could be influenced by race and ethnicity because of access to medical care, referral bias and other factors.

That’s why Beyond Celiac is driving research towards treatments and a cure for celiac disease—so that everyone can live in a world beyond celiac. 🌟

If you have symptoms of celiac disease or a first-degree relative who has been diagnosed, consider talking to your doctor about getting tested. Find our symptoms checklist at https://hubs.li/Q041CBX80.

Our Ambassadors answer the question: How do you take care of yourself when it comes to celiac disease? 💗💚 We want to hea...
02/02/2026

Our Ambassadors answer the question: How do you take care of yourself when it comes to celiac disease? 💗💚 We want to hear from YOU! Tell us in the comments how you take care of yourself or your loved one with celiac disease.

“[I] always making sure I bring snacks for myself when going somewhere where I feel unsure of my food options!” 💬—Reach Beyond Celiac Ambassador

Want to get involved with Beyond Celiac as an Ambassador? Learn more at https://hubs.li/Q041jfzv0 and reach out to vkraft@beyondceliac.org to learn more!

01/31/2026

What exactly is an autoimmune disease? Kate Avery, Senior Director of Coalition and Patient Engagement here at Beyond Celiac answers this Frequently Asked Question from our community.

Autoimmune diseases are often comorbid, which means they can occur together. What is your experience with comorbid autoimmune diseases? Tell us in the comments!

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Driving diagnosis, advancing research and accelerating discovery

Our vision is a world in which people with celiac disease can live healthy lives, free from social stigma and fear of gluten exposure – A world Beyond Celiac.