Beyond Celiac

11/15/2025

Celiac disease can lead to nutritional deficiencies, and research shows that some deficiencies persist through a strict gluten-free diet.

It’s important to talk to your doctor about regular testing to manage vitamin levels through food and supplements.

To learn more about research being conducted about celiac disease, check out https://hubs.li/Q03SxrN40 !

Thank you to Takeda for their continued partnership with Beyond Celiac and their support of the gluten-free community.

11/13/2025

Only 1 in 10 children with high-risk symptoms and conditions are being tested for celiac disease, according to new research by Beyond Celiac and Weill Cornell Medicine. 📝

An analysis of private payer health insurance claims of nearly 224,000 children found that when compared to other children, non-Hispanic Black children were the least likely to be tested, while non-Hispanic white children were the most likely.

The data analysis also found disparities in testing based on age, with children 11 to 20 years old twice as likely to be tested compared to those one to 10 years old.

The study findings highlight gaps in following testing guidelines, underscoring the need for improved awareness and implementation of screening practices, the study concludes. 🌟

The study is thought to be the largest assessment of celiac disease testing in US children!

Read all about the study and the data the authors found: https://hubs.li/Q03SxzCs0

11/11/2025

“I was going from doctor to doctor, but no one ever thought to order a celiac blood test. I wish someone had, because if I had known I had celiac disease earlier, I could’ve avoided so much damage to my gut.” —Sara R.

Tell us your celiac disease story! Fill out our Voices of Celiac Q&A here:
https://hubs.li/Q03Sxs2l0

​​Thank you to Takeda for their continued support and partnership with Beyond Celiac.

11/08/2025

November is National Diabetes Awareness Month! Celiac disease and T1D are comorbid, meaning they can occur together. In fact, around 6% of patients with T1D also have celiac disease. 🤔

For more information about celiac disease and T1D, check out https://hubs.li/Q03SfQpV0 💚

For resources specifically related to T1D, find our friends at Breakthrough T1D at https://hubs.li/Q03SfQR10 🌟

11/06/2025

The Celiac Disease Program at Children’s National Hospital is currently enrolling for the Gluten-Free Resilience and Overall Wellness (GROW) Project, a behavioral research study led by Dr. Shayna Coburn.

This study is a randomized controlled trial, which means that you will be randomly assigned to one of three groups: a care-as-usual group, a skill-building group, or a skill-building group with weekly GlutenDetect testing.

Parents and teens will receive up to $120 (teens) and $90 for (parents) over the course of the study.

Space is limited, and enrollment is on a first-come, first-served basis.

See if you and your teen are eligible: https://hubs.li/Q03Q4GPH0

11/04/2025

Testing for Transgluminase 6 (TG6) antibodies can help identify patients with worse neurological complications related to gluten consumption, according to a new study from the University of Sheffield.

This study was funded by a Beyond Celiac Early Investigator grant—we are very proud of the work Dr. Iain Croall and his colleagues are doing in the UK, and we are grateful for YOUR contributions to celiac disease research!

Together, we can keep learning about the effects gluten has on the body, and move closer towards treatments and a cure for celiac disease.

11/02/2025

Check out our newest episode of Celiac Straight Talk, where Beyond Celiac Chief Scientific Officer Dr. Debra Silberg debunks some myths and misconceptions about celiac disease. 🤔

Thank you so much to Takeda for sponsoring this episode, and for their commitment to celiac disease awareness!

Listen wherever you get your podcasts! 🎧💚 https://hubs.li/Q03R9x_X0

10/31/2025

Halloween should be fun for everyone, and full of treats, laughter, and memories. But for people, especially children, living with celiac disease, it can also be a reminder of how easily their experience is misunderstood.

Celiac disease isn’t about a diet trend or preference — it’s an autoimmune condition that requires strict gluten avoidance for health and safety.

The good news is, anyone can eat gluten-free! So this Halloween, let’s make inclusion part of the celebration. Understanding what celiac disease really means helps create a world where everyone can take part—safely and fully. 🎃

Find our gluten-free candy list here: https://hubs.li/Q03R9zzS0

Some candies are gluten-free and others are not. Some may be unsafe due to manufacturing lines. View a list of gluten-free candies.

10/31/2025

🎃 HAPPY HALLOWEEN FROM BEYOND CELIAC 🎃

Getting glutened can be spooky, but we have a handy candy list for you to double-check your tricks and treats! Enjoy a gluten-free Halloween… without fear of food! 🧡👻
https://hubs.li/Q03R8tJG0

10/29/2025

Celiac disease is often invisible, until it rears its head. Taking off the “mask” of invisible illness is vulnerable and you don’t always get to decide when it happens—but we want to empower people with celiac disease to have these conversations and raise awareness of the autoimmune experience.

What do you wish people knew about celiac disease today? Tell us in the comments ⬇️💬

10/27/2025

“I want to do my part to raise awareness in minority communities: highlighting the symptoms to watch for, how to advocate for yourself in medical settings, and what questions to ask your healthcare provider.” —Malik R.

Read Malik’s full story—and tell us yours!
https://hubs.li/Q03Q4LtY0

Fill out our Voices of Celiac Q&A:
https://hubs.li/Q03Q4L200

​​Thank you to Takeda for their continued support and partnership with Beyond Celiac.

10/25/2025

According to a new study conducted by UK researchers at the University of Sheffield funded by a Beyond Celiac Early Investigator grant, testing for Transgluminase 6 (TG6) antibodies can help identify patients with worse neurological complications related to gluten consumption.

The study was published in the Annals of Neurology and investigated whether brain atrophy, symptom severity, anxiety, depression, and physical functioning were related to the level of TG6-IGA antibodies found in study participants.

Read our full patient-friendly report on the study: https://hubs.li/Q03Q5BNk0