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No, Thanks Endo

No, Thanks Endo is a blog created by Maya Rodda in order to help those with Endometriosis go through their journey with a helping hand.

No, Thanks Endo also includes a shop with Endo Warrior products and other items to spread awareness for Endometriosis.

28/06/2022

I will be taking a much needed Instagram break for my mental health. There’s been a lot going on and I just feel like it’s too much to handle. Since I am open about everything, I shared these things above in images 2-4.
Also, I have deactivated and the website is currently offline. The site has been down for a while anyways so there wasn’t much going on and there’s been hardly any posting. If you had purchased from me in the past, thank you so much! It means so much to me. I was so proud of No, Thanks Endo when I started it and I still am. And now you have a limited edition T-shirt or accessory!
And if anyone needs to reach me or wants to check in, my email is still on my profile so you can send me one. Or if you have my phone number then feel free to shoot me a text.
Thank you all so much for being on this journey with me and for all the amazing words of encouragement while I deal with my health issues. Farewell, for now.
Maya 🤍

05/03/2022

Reposting my annual Endometriosis Awareness Flyer! This flyer has been updated to be gender inclusive and so has the downloadable one in my bio! 💓

Let’s share this graphic so we can spread awareness about this bitch of a disease! 🎗
Please tag me when sharing to your stories or reposting it. I really want to see how far this post gets! 💛
Also, if you are interested in printing out this flyer and posting it up in a public area (after asking for permission of course), then you can find the link to the PDF version in my bio! 🖨
If you do post it up in an area, take a picture and tag me! I’d love to see the awesome work you’re doing this month! 🥰

21/02/2021

Healing isn’t pretty. It isn’t some trendy spiritual journey that movies and celebrities make it out to be. Healing is hard as hell and I’m no where near done yet. I don’t think I ever will.
•
This surgery kicked my ass. I woke up ready to scream and cry. The pain was the worst I’ve ever felt when awakening from surgery. Luckily it got better the next day and even the next few days after that. But I kept feeling a dark cloud over me and each day it was getting even more stormy.
•
For some reason, this surgery triggered a pretty bad depressive episode. At first I thought I was feverish or had an infection because I felt so bad. And it turned out to be my depression creeping up on me.
•
Once I realized, I was even more upset because I was finally starting to come around a few weeks prior to my surgery. My anti-depressant dose was raised in December and I was finally feeling myself again. All to have it taken away from a surgery that was supposed to make me feel better?
•
Even after finding out that I was right about something being wrong with my gallbladder, I still didn’t feel like me. The pathology report showed I actually had polyps in my gallbladder which was causing me so much pain and it was also inflamed. So to the ER doctors that told me it shouldn’t hurt, I was right. And I even had some Endo lesions excised from my uterine wall. So that was good too, even though it hasn’t helped my pain at all.
•
But no, nothing made me feel good. Just sad and lonely and broken inside.
•
Healing from the inside and the outside is so hard. Especially since this isn’t my first rodeo. Look at the scars and stretch marks my body has accumulated. This was my 8th surgery. And I know it’s not my last.
•
I still have other health issues I need to fix. I found out I was having Estrogen Dominance this past year and now other hormone issues to follow. I have bleeding within my stomach and need an Endoscopy. I have to do nerve blocks and pelvic floor botox. I need to get my breast implants removed. I need to see a therapist. I have a long to-do list.
•
So add healing (mentally and physically) to that list and it seems like I have mountains to climb before I can get any relief.

08/01/2021

I figured I would give a little update since I’ve had many people asking how the New Year has been treating me so far. And honestly, not great. But c’mon, I didn’t expect anything else.
2 weeks ago I started having these severe right-upper quadrant pain attacks. I went to the ER and they told me that it’s my gallbladder and I have an appointment to meet with a general surgeon on January 21st. It’s not too far away but as my symptoms and pain get so much worse each day, it sure feels like it.
The pain is very severe on my side radiating to my back and right shoulder, and then it’s also right under my breast bone. I’ve lost my appetite for the most part, have nausea, swelling near my liver/gallbladder, pain when the area is touched, and have Bilirubin in my urine. Bilirubin in the urine or in your blood is common with gallbladder or liver issues.
I keep debating to go to the ER to see if they will be able to find out if I’m getting worse and can have surgery sooner. The best way to figure out what’s really going on with the gallbladder is with a HIDA scan but needs to be ordered by a GI doc. But of course I need to go to a primary doc, get referred, get an appointment and then they could order it.
Besides this annoying new issue, I have officially been diagnosed with Cushings Syndrome. Now we are doing blood tests and then will move on to imaging. Hopefully we find the very tiny benign tumor that is causing all of my terrible symptoms and can get it removed.
I also am hoping to get my Pelvic Botox Injections in February or March once my Pelvic Pain specialist is able to start up surgeries again.
And finally, I really hope to remove my breast implants this year. I believe I’m also suffering from Breast Implant Illness and want to get them removed to see if my mystery autoimmune symptoms improve.
So basically, if this year goes how I hope, I’ll be having 4 surgeries. But of course, not everything goes as we hope. Therefore, I’m taking it one step at time starting with my gallbladder. I may go to the ER next week if my pain and attacks keep worsening and hope for some answers or even emergency surgery... Quite an eventful year for only 7 days into 2021.

29/11/2020

Right now I’m sitting on my toilet contemplating if I am able to take a shower or not.
Thanksgiving KICKED MY ASS. I really don’t do anything especially since Covid started. So now my only trips out of my house are to go to the grocery store or walk my dogs.
But each time I have had to actually go out to appointments, shopping, errands, etc. I’ve noticed that I’m becoming less and less capable. And this long trip to the grocery store and helping cooking multiple foods took everything out of me. Every last drop.
My body and pelvis are so sore for multiple days after I do anything like this and then I’m having severe flare ups that make me want to me in the ER. And it makes me so frustrated.
I’m frustrated I can’t do a “normal day” of errands or even fun things without being punished by my body.
I’m frustrated I have been having severe flare ups for 4 days straight and have to be put into bed by someone else.
I’m frustrated my pain medication isn’t helping enough and I will have to ask my doctor for a higher dose.
I’m frustrated that when I’m finally hungry enough to eat something that I don’t have the strength to make it myself.
I’m frustrated that my tension from my pelvic floor is building up in every single part of my body. (Today I was squeezing my phone so hard while watching tv and didn’t even realize...)
I’m frustrated that I’m sick. And that is okay. Its okay to be frustrated with your health or your pain. It’s okay not to be okay sometimes.

14/11/2020

Every year I have been toning down my birthday celebrations. They become more and more laid back. And honestly, I’m happy about it. I’ve come to terms with my pain and I’ve accepted it. I’ve accepted that sometimes I have to do things differently in order for my body to be happy.
🤍
Yesterday I stayed home all day with Cris and my mom joined us. We watched tv, took naps, had great food and desserts. Nothing is wrong with that and nothing is wrong with the fact that sounds like a perfect day to me.
🤍
The only upsetting part is that I hardly did anything yesterday and I’m paying for it today. I’m laying on the couch with my heating pad, took my pain meds, been relaxing, and it’s still not helping. Even with my low-key birthday, I’m still suffering the consequences.
🤍
But in the end of the day, I’m still happy. I’m happy I got to spend my birthday with my two favorite people. I’m happy I got to stay in my pjs. I’m happy I stayed home which can benefit the pandemic. I’m happy that I’ve accepted my disease(s) and the pain that comes along with them. And I’m happy that acceptance has helped me have better days.
🤍
P.S. Coco is licking my toes because, well, they’re ✨tasty✨

23/07/2020

If you could see my eyes and my smile, you’d probably notice that it’s forced and a little fake.
The world has been in crisis mode these past months and I’m sure everyone is feeling it. But for me, the added stress of my health is really pushing me to the edge.
I’m still awaiting bloodwork to get answers from my Endocrinologist. He believes I have Pre-Diabetes or Diabetes but doesn’t know exactly where I fall. Since it’s the beginining stages, that explains my low blood sugar drops. But luckily I have started dieting and it has helped the drops drastically. And hopefully it will help with some of the weight gain. (Orlissa has caused a total of 45 lbs of weight gain)
I also have really bad bone and joint pain in my wrists, ankles, fingers, legs, etc. If I do the dishes or anything with my hands, I have to wear a brace afterwards. The doctor is checking for another disease caused Hyperparathyroidism which causes SO many symptoms I have, right down to the kidney stones. I’ve always suspected I’ve had it but my PTH level has only been borderline high so I hope it’s actually abnormal this time.
I also went to San Diego on a road trip with Cristian’s family and although it was fun and beautiful, I have never been so happy to be back home. (Don’t worry we followed protocols and wore our masks the whole time) I threw up from the car ride due to my extreme nausea multiple times and even stayed home one of the days when everyone else went sight-seeing. It was so exhausting that I needed almost a full week to recover from it.
Everything feels so abnormal to me right now. Yes, it’s a little weird to stay home even more than usual and feel the darkness that is in the world right now but I also can’t even be a normal human anymore. I can’t clean without needing a brace and a few days of rest. I can’t enjoy “vacation” because it feels more like a chore. And even though we were so careful on the trip, I’ve had some mild Covid symptoms and have been self quarantining. My immune system is not strong right now.
I guess I haven’t wanted to do an update because things haven’t gotten better but only worse... but that’s just life sometimes.
📸:

15/05/2020

Note: Photo is old because I can’t even take a photo of myself
I am beyond frustrated. So not only am I dealing with so many terrible symptoms (which are symptoms of Cushing’s) but now I’m dealing with another one that is getting worse by the day. Reactive Hypoglycemia.
I’ve been breaking down in tears because I can’t handle feeling so terrible anymore. Unbearable Nausea. Headaches. Sweats. Loss of vision. More than half of the day I feel like I got off a rollercoaster then decided to do a boot camp workout. I feel sick. Why? Because my blood sugar is spiking then dropping by 70mg+ after I eat anything and dropping if I don’t eat. Keep in mind I’ve been eating very healthy meals plus snacks and it’s not helping.
And then tonight I hadn’t eaten for 2 hours and decided to do the dishes. I started sweating a lot as if I did a workout. I didn’t think too much of it until I started sweating more and getting nauseous. Then I tested it and my blood sugar dropped to 61. I ate some food but it got worse before it got better. I was throwing up and crying. I thought I was going to pass out which I hate.
So tomorrow I’m going to try and see a doctor or go to urgent care. I can’t take it anymore and I’m worried I’m going to start fainting. I need answers now. I can’t wait any longer. My health is deteriorating and it’s even showing in my recent blood work results.
I’m crossing my fingers that these symptoms I’ve been having for months, that are rapidly getting worse, will have a reason behind them. I know with all my heart what is going on with me. I have done extensive research, read countless case studies, and just know in my bones. But I need a doctor to see me, listen to me, test me, and help me.
It also doesn’t help that I‘ve been flaring up for over a week, have a UTI (or possible infected stone), and kidney stone spasms. I’m really at my wits end and the depression is starting to sink in. I don’t think I’ve felt this overwhelmed in a long time. I’ve been taking naps in the middle of the day just so I don’t have to feel so miserable from the blood sugar drops and pain.
I’m praying for answers. Thank you all for supporting me.

08/05/2020

Wearing no bra, my No, Thanks Endo shirt, and doing stretches for the first time in MONTHS. This week keeps pushing me and my limits, but I have actually had more wins this week than I’ve had in the last 6 months.💁🏼‍♀️
REMEMBER to celebrate the small wins! Don’t overdo yourself, don’t push yourself too hard, don’t have crazy expectations, and most importantly, don’t be so hard on yourself! Take it ONE step at a time. Make small goals. And you will get to those bigger goals by doing so. Just don’t try and do it all at once. 💖
Yes, Endometriosis sucks. Yes, pain sucks even more. Yes, all our symptoms are literally from hell itself. But I’m going to challenge you.
Do 1 thing that’s good for your mind and/or body this week. It could be exercising, it could be eating a healthy meal, yoga, meditation, journaling, having your first therapy session, anything! The options are endless. And then tell me in the comments what it is! You could have already done it too. I just want to hear about the small wins you’re having and I want to congratulate you! 💛

05/05/2020

Feeling pretty defeated today...
I was really hoping to give Uterine Artery Embolization a try in order to find some pain relief. But unfortunately, the Interventional Radiologist isn’t able to see any obvious signs of Adenomyosis on my MRI so he can’t do the procedure or really do anything about it. He also had no suggestions on what I do next.
I could still have mild Adenomyosis but it can’t be confirmed unless I had a hysterectomy which isn’t something I want to do right now. So now I’m back to square 1 and the drawing board. My pain is getting worse and worse and I have no answers.
Could it be endo that grew back? Possibly, my last surgery showed no endo growth since my last ablation surgery which has been almost a year ago now. So it’s possible it’s starting to grow back and I would need to get excision surgery. (My last surgery was excision but she didn’t have any endo to remove)
Could it be pelvic floor dysfunction? Possibly, but PFD is probably responsible for some of the pain, not all. I need to go to Pelvic Floor therapy but honestly I’ve been terrified of the pain that it will cause and then Covid happened so that got in the way. But hopefully I can make an appointment soon.
Could it a combination of those things? Most likely.
I’m also in the middle of getting referred to a Rheumatologist since I have developed severe bone and muscle pain which could be related to Fibromylagia or an autoimmune disease, which could worsen my pelvic pain.
And I’m also in the middle of getting tested for Cushing’s Syndrome. I have every single symptom, it’s as if the symptoms describe my life. Weight gain in the stomach but not arms and legs, depression, heart palpitations, night sweats, bone loss/pain, high blood pressure, headaches, round face and even more symptoms I have. Oh AND STRETCH MARKS.
So here’s to getting answers!
Here’s to learning to be okay WITHOUT some answers when you’ve tried your best.
And here’s to all the women who feel unheard by doctors.
Stay strong ladies, I believe in us. 💪🏼

28/04/2020

In high school, I used to miss a lot of school. It was mainly due to constant strep throat infections or going to the doctors. But there was one year where I was missing every other day for about 2-3 months. Kids were constantly giving me a hard time as if I was doing it all for fun. It made me so sad and not a single one of them would have understood what I was dealing with.
So I figured I would share this because I know so many people deal with anxiety especially as they grow older and especially in the chronic illness realm. So I’m going to talk about my own experience with anxiety even though I don’t talk about it a lot since it was very traumatic for me. I still have mild anxiety and take medication for it but it’s never gotten as bad as it was since then.
So back in January 2013, I had fainting episode in the middle of the night when I was trying to p*e. I couldn’t p*e and it freaked me out, so I passed out on the toilet and found myself leaning against the shower as my mom tried to wake me up. It turned out I had a UTI, hence why I couldn’t p*e. And having the feeling of being stuck and that I couldn’t p*e, it put me into shock. I went to the ER, got antibiotics, rested for a day or so and was fine.
Then a few weeks later, I felt weird. I felt sad. I didn’t feel like I was in my own body. This lead to me having what I now know as panic attacks. But at the time, I was 100% sure I was going to die. I remember having a panic attack in my bathroom and I started having a fear of taking a shower. I was sure that if I showered, I would pass out again. I even went to the ER once because my mom and I thought I was having a heart attack. I had every symptom and my resting heart rate was 160 bpm.
So since I couldn’t bear the shower, started to take 10 second showers then wash my hair in the sink, just because I couldn’t do it. I would be trembling with fear, heart rate rocketed, and so sad and scared of passing out again. My mom would have to be in the bathroom with me every time I took a shower or my best friend was. My best friend even came in the shower with me at one point because it had gotten so bad.
⬇️ CONTINUED IN COMMENTS ⬇️

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No, Thanks Endo Blog and Shop

Maya Rodda created No, Thanks Endo as a blog to help other Endo Warriors through their journey. The blog includes articles about the similar things that someone with Endometriosis goes through and her tips on how to get through it. “No, Thanks Endo” is basically the polite way of saying “F**k Endo”. Even though many of us are filled with rage when it comes to this disease, I believe we can spread more awareness and information if we try to have a positive attitude.

No, Thanks Endo also has a shop which includes products for Endo Supports and Endo Warriors alike. Most of the products are to spread awareness about Endometriosis. 1 in 10 women have Endometriosis and it is the 15th most painful disease. But sadly, it is extremely under-researched and many doctors as well as people are misinformed on the illness. Therefore, Maya feels that it is important so spread awareness and what’s better than a shirt or hoodie that you can show off. When someone asks you “Whats No, Thanks Endo?” You are able to inform 1 more person on Endometriosis.

If you would like to support Maya and No, Thanks Endo, there are a few ways to do so.

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