10/12/2025
What a crazy 14 days! Drew’s longest stay in the hospital was very eventful to say the least. Going in with 76% pft and coming out with 110% ! Overall he did well, with more than 50 vest treatments and 42 iv antibiotics given through his picc line. He got that placed, while awake, within the first hour of being admitted. He handled it like a beast. On the 7th day he got sinus surgery, and the first three days after were brutal! He ended up with a bleed that the on call ent had to come in to stop. He was pretty miserable. His lung culture came back clear though, which is encouraging! He had lots of visitors who kept him entertained! Thank you to his friends for encouraging him to get through this! He got home late Friday night with lots of new meds, and is awaiting his new CF modulator, Alyftrek. We are praying his liver tolerates it! He will have to get blood work every week, then eventually every two weeks, then monthly, and so on to watch liver enzymes. We are hopeful that Altftrek keeps pseudomonas and B Cepacia from coming back. He’s very determined and chill at the same time. He’s more focused on his care, and back to using his vest after not using it for 5 years! His sinuses are feeling great! And now, we need him to gain weight! He’s very skinny, and his goal is to gain 10 pounds. Thank you to our family and friends for the calls, texts, gift cards, food, and thoughts and prayers. Drew’s Crew is so good to us! ❤️
