The TBCK Foundation

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Chicago, IL
The TBCK Foundation

We are a non-profit dedicated to advancing research, advocacy, and education for TBCK Syndrome.

04/06/2026

TBCK may be rare… but these kids are anything but small 💗
They are strong.
They are resilient.
They are living proof that joy exists even in the hardest places.
And the more people who understand TBCK, the more support these families receive 🤍

04/01/2026

$26 for 2026 💜
A small gift can make a life-changing impact for families affected by TBCK.
Research only moves forward because of people like you.
Give hope. Give today.

03/31/2026

New York, here we come! 🇵🇷🗽
Our TBCK Warriors are taking on the National Puerto Rican Day Parade—walking with strength, pride, and purpose. 💜
Come cheer them on, celebrate with us, and help us spread awareness for TBCK!

03/30/2026

❄️ Snowflakes in July is coming! ❄️
Mark your calendars for July 17–19, 2026 for the Black Ties for Rare Gala, hosted by the TBCK Foundation.
This unforgettable weekend will bring together the rare disease community to raise awareness, support research, and celebrate the strength and resilience of rare families.
🔗 More info:
https://www.eventbrite.com/e/black-ties-for-rare-gala-2026-tickets-1983497714057?aff=oddtdtcreator

📩 DM us if you're interested!

03/24/2026

TBCK is rare… but these warriors are unforgettable 💚
Awareness matters. Knowledge matters.
Share to help more people understand TBCK.

03/20/2026

Looking forward to hearing more and putting our plans into action!

Come and Join our zoom meeting! Bring your ideas or come hang out and prepare with us!

We are official registered for the parade!

En nuestra última reunión, tuvimos grandes ideas. ¡Estoy deseando saber más y poner en marcha nuestros planes!

¡Ven y únete a nuestra reunión de zoom! ¡Trae tus ideas o ven a pasar el rato y prepárate con nosotros!

¡Estamos oficialmente registrados para el desfile!

Join Zoom Meeting
https://us02web.zoom.us/j/84533843934

Meeting ID:

Thank you again for all who made it happen this past summer and Thank you for everyone’s support!

¡Gracias de nuevo por todos los que lo hicieron realidad el verano pasado y gracias por el apoyo de todos!

03/17/2026

💜 Meet Joline 💜
Joline is a bright and joyful warrior who was diagnosed with TBCK in 2023 after genetic testing. She is incredibly strong, positive, and almost always happy and content — her sweet spirit brings so much joy to everyone around her.
Joline attends preschool three days a week with the help of wonderful assistants who support her throughout the day.
She lives out in the country with her loving family — mom, dad, her little sister, and their two cats.
Joline loves pancakes, music, going for walks in her wheelchair, and driving.
We’re so grateful to have Joline and her family as part of the TBCK community. 💜

03/16/2026

These faces are why we fight. 💜
Our TBCK warriors deserve answers, treatments, and a future full of possibilities.
We are READY FOR RESEARCH.
Help us move science forward by giving $26 in 2026 to support TBCK research.

📲 Scan the QR code and donate today.

03/11/2026

We reached our goal! 🎉
$26,446 raised thanks to this amazing TBCK community. Your generosity brings hope to our warriors and helps push research forward. Thank you for standing with rare families and making this possible. 💙🧬

03/10/2026

Give $26 in 2026 to support TBCK warriors. 💙
Every donation helps fund research and bring hope to families around the world.

Address

Chicago, IL

Telephone

+12699213455

Website

http://www.tbckfoundation.org/

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