Pediatric Palliative Care Coalition

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Pediatric Palliative Care Coalition

Working together for children with medical complexity
http://www.ppcc-pa.org/

11/20/2025

Today is Children's Grief Awareness Day, which serves a reminder that young hearts feel loss deeply, even when they cannot always put it into words. 💙

Let’s hold space for the children who are grieving, listen without judgment, and surround them with compassion, patience, and love. No child should feel alone in their grief and together, we can help them heal.

https://www.childrensgriefawarenessday.org/cgad2/index.shtml

https://nacg.org/awareness/ #:~:text=The%20NACG%20is%20the%20only,opportunities%20for%20connection%2C%20and%20resources.

awareness

11/19/2025

There is still time to register for the November 2025 PPC Webinar - The Father Experience in the Pediatric Healthcare System. Happening TOMORROW!

In this webinar, Dr. Chrissy Salley, from Courageous Parents Network will facilitate a panel discussion among a group of fathers where they will share their perspectives on navigating the pediatric healthcare system and on their unique needs as fathers to children with medical complexity and/or life-limiting illnesses.

This is the final webinar in the 2025 PPC Webinar Series.

https://mailchi.mp/ppcc-pa/register-now-for-the-novebmer-2025-ppc-webinar-5860949

11/11/2025

Registration for the 2026 PPC Webinar Series Opens December 1!

The PPC Webinar Series is designed to raise the visibility of pediatric palliative care to help families and caregivers and to build clinicians’ competencies and confidence in providing care to children. Register as an individual or group for one webinar or the entire series. Discounts apply for multiple webinars and group registration.

CE is available for Nurses and Social Workers.

https://mailchi.mp/ppcc-pa/2024-ppc-webinar-series-schedule-and-presenters-5859962

11/04/2025

Register now for the November 2025 PPC Webinar - The Father Experience in the Pediatric Healthcare System.

In this webinar, Dr. Chrissy Salley, from Courageous Parents Network will facilitate a panel discussion among a group of fathers where they will share their perspectives on navigating the pediatric healthcare system and on their unique needs as fathers to children with medical complexity and/or life-limiting illnesses.

This is the final webinar in the 2025 PPC Webinar Series.

https://mailchi.mp/ppcc-pa/register-now-for-the-novebmer-2025-ppc-webinar-5860949

11/03/2025

As a dad of a medically fragile child, I know firsthand how exhausting intense caregiving round-the-clock becomes. To have a short break for rest and sleep, we needed to trust that whoever we allowed to care for Ryan would do so safely and as we would. We realized that overnight children’s respite...

10/21/2025

There is still time to register for today's PPC Webinar - Using Photo-Narratives to Enhance Humanistic Care.

In this webinar, presenters will explore what photo-narratives are and how they have been used in serious illness care for children and families. They will also describe innovative work that is being done to incorporate photo-narratives into technology supports for patients and caregivers.

https://mailchi.mp/ppcc-pa/register-now-for-the-august-2025-ppc-webinar-5859988

10/14/2025

Prognostication in the neonatal period is uniquely complex—gestational age can be uncertain, predictive findings may not be as reliable as once thought, and adult-focused tools often don’t apply. Yet parents still need clarity and guidance during critical decision-making moments.

Join us for a webinar that will give you practical tools and perspectives to navigate prognostic uncertainty and support families with compassion and confidence.

What you’ll learn:
📌 Key sources of prognostic uncertainty in newborns
📌 Which predictive factors are reliable (and which aren’t)
📌 How to guide families and teams through tough conversations

Don’t miss this opportunity to strengthen your practice in neonatal care.

10/07/2025

Upcoming Webinar on October 10: Navigating Periviable Birth

Join us for an in-depth exploration of periviable birth—covering survival and neurodevelopment outcomes, practice variability, and anticipated NICU care for these fragile infants.

We'll dive into:
💡 Historical and current ethical controversies in the “grey zone” of viability
💡 Emerging treatments, including the artificial womb
💡 Opportunities for pediatric palliative care supporting families, pregnant women, and care teams
💡 Effective communication strategies for shared decision-making and compassionate care

Learning Objectives:
✅ Define periviable birth, neonatal viability, and extremely low gestational age in today’s clinical context
✅ Recognize the ethical challenges of caring for these infants and their families
✅ Explore models for integrating palliative care in the NICU

This is a must-attend for healthcare professionals navigating the complex, high-stakes world of periviable care.

Register at: https://www.tfaforms.com/5164780

09/30/2025

Join us for a new 3-part series which will take a Deeper Dive into Ethics in Perinatal and Neonatal Care with presenters, Dr. Brian Carter, Dr. Christopher Collura and Dr. Robert Macauley.

This program, created for healthcare professionals, will take place over 3 consecutive weeks: October 3rd, 10th and 17th. 9am PT/10am MT/11am CT/12pm ET.

Registration is Open - Discounts are available.

https://www.tfaforms.com/5164780

09/23/2025

PPCC is excited to announce the launch of the LANTERN Initiative, providing peer support to Pennsylvania families of children with medical complexity and intellectual/developmental disabilities as part of the new Resource Matching Program.

Learn more about it and get involved today!

https://www.ppcc-pa.org/resource-matching-program/lantern-introduction

09/16/2025

There is still time to register for the September 2025 PPC Webinar - Living in the Gray: A Case Series of "Everything But" for the Chronically, Critically Ill Child and Their Families.

In this webinar, presenters will discuss compassionate strategies for aligning with families and overcoming barriers where the provider team(s) doesn't agree or where the patient has a change from baseline making prior goals unachievable.

More information and registration at https://www.ppcwebinars.org/

08/27/2025

We are excited to share that Betsy Hawley, PPCC Exectutive Director, was recently featured on the Remembering a Life podcast.

We hope you will take some time out of your day to listen to this caring conversation between Betsy, Kristin James and Gail Marquardt about how to help ensure families have the resources and support they need while caring for a child at end of life and honoring the life of that child in meaningful ways.

Listen to the podcast here: https://www.rememberingalife.com/blogs/podcast/when-a-child-dies-navigating-the-grief-of-unfathomable-loss

Address

Pittsburgh, PA

Telephone

+14129638243

Website

http://www.ppcc-pa.org/

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