Ezra’s Heart Adventure

02/08/2026

Ezra spent most of his 6th birthday yesterday in the ER. He’s come down with Adenovirus, gastroenteritis, and Rhinoentero virus 🦠 😭 a long heart felt post is coming, but we are sooo tired.

01/30/2026

❤️

Heart Month is around the corner and our voices matter. Like, follow, share, and comment to help us unite, educate, and raise awareness. 💙❤️

01/20/2026

Look at this guy smashing it in PT today 💪🏼💜

01/12/2026

To have siblings and cousins who love you and include you has to be a great feeling. I can tell it makes ezra happy by his expression and the laughing.

01/08/2026

Ezra’s reel about physical therapy has gained a lot of traction randomly and idk where tf these people came from 😂 jfc lol

01/06/2026

Look who’s SO happy to be back at school! 😍🥰 he loves his teachers, nurses, paras, and classmates!

01/05/2026

Ezra has been smashing it in physical therapy! We’re hoping he’ll be able to stand up on his own by the end of 2026 🙏🏽❤️

01/01/2026

We busted out of the picu! He is doing very well at home and has been in a great mood since leaving the hospital. No NYE festivities for our sleep deprived house, just sleep 😂
Thank you everybody for the well wishes and support. It means the world to us. ❤️

12/31/2025

My typically blue baby is really pink after his cath!
He’s doing well. He’s sedated and intubated until he’s safe to move around without risk of causing clotting or bleeding. As always, his team is great and I’m so thankful to be bedside with him again.

12/30/2025

Alrighty guys, let's try this again. Ezra is the first case this morning! He's in here asleep on mama; it's way too early. 😴 me too, buddy, me too.

12/29/2025

It’s the day for Ezra’s cardiac cath! Send good vibes or prayers for our sweet sugar to do great.
He’s in such a good mood in pre-op. We’re just waiting for the first case before him to finish up, then he’ll go back 😭🙏🏽

06/01/2025

Ezras (belated) birthday trip was great! He had an amazing time & got some one on one time with mom and dad a few times while baby brother stayed behind at the motel with Nana.