Ezra’s Heart Adventure

Ezra’s Heart Adventure A look into Ezras adventures with HLHS and CDLS

01/20/2026

Look at this guy smashing it in PT today 💪🏼💜

01/12/2026

To have siblings and cousins who love you and include you has to be a great feeling. I can tell it makes ezra happy by his expression and the laughing.

01/08/2026

Ezra’s reel about physical therapy has gained a lot of traction randomly and idk where tf these people came from 😂 jfc lol

Look who’s SO happy to be back at school! 😍🥰 he loves his teachers, nurses, paras, and classmates!
01/06/2026

Look who’s SO happy to be back at school! 😍🥰 he loves his teachers, nurses, paras, and classmates!

01/05/2026

Ezra has been smashing it in physical therapy! We’re hoping he’ll be able to stand up on his own by the end of 2026 🙏🏽❤️

01/01/2026

We busted out of the picu! He is doing very well at home and has been in a great mood since leaving the hospital. No NYE festivities for our sleep deprived house, just sleep 😂
Thank you everybody for the well wishes and support. It means the world to us. ❤️

My typically blue baby is really pink after his cath! He’s doing well. He’s sedated and intubated until he’s safe to mov...
12/31/2025

My typically blue baby is really pink after his cath!
He’s doing well. He’s sedated and intubated until he’s safe to move around without risk of causing clotting or bleeding. As always, his team is great and I’m so thankful to be bedside with him again.

Alrighty guys, let's try this again. Ezra is the first case this morning! He's in here asleep on mama; it's way too earl...
12/30/2025

Alrighty guys, let's try this again. Ezra is the first case this morning! He's in here asleep on mama; it's way too early. 😴 me too, buddy, me too.

It’s the day for Ezra’s cardiac cath! Send good vibes or prayers for our sweet sugar to do great. He’s in such a good mo...
12/29/2025

It’s the day for Ezra’s cardiac cath! Send good vibes or prayers for our sweet sugar to do great.
He’s in such a good mood in pre-op. We’re just waiting for the first case before him to finish up, then he’ll go back 😭🙏🏽

Ezras 2025-2026 kindergarten pictures! 😍🥰 my handsome boy, I’m just overjoyed!
12/17/2025

Ezras 2025-2026 kindergarten pictures! 😍🥰 my handsome boy, I’m just overjoyed!

Sorry I haven’t posted in a while, guys. It’s been a very busy (and stressful) start to the school year. Back to back il...
11/19/2025

Sorry I haven’t posted in a while, guys. It’s been a very busy (and stressful) start to the school year. Back to back illnesses, mama went back to work, balancing appointments, therapies, ect!
Ezra is doing great, despite a week long stay in the hospital for pneumonia (we broke our 4 year admission free streak 😞 ) and he will have a cardiac procedure shortly after Christmas!
He LOVES the bus and school, he has so many friends. His teachers gush over him & he’s surrounded by love where ever he goes.
He’s also not a fan of being a big brother, but Micaiah is starting to grow on him… slowly 😂

Ezras (belated) birthday trip was great! He had an amazing time & got some one on one time with mom and dad a few times ...
06/01/2025

Ezras (belated) birthday trip was great! He had an amazing time & got some one on one time with mom and dad a few times while baby brother stayed behind at the motel with Nana.

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Portland, OR

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