Jake's Journey

19/01/2025

08/08/2023

A couple weeks ago we found a used recumbent trike for Jake. Tonight we went to an adaptive cycling event at the raceway and Jake just finished lap 5. That’s 10 miles, and he would keep going if it wasn’t time to wrap up. This kid is unstoppable!

08/04/2023

To those following Jake’s latest adventure.

First - We are home and Jake is feeling nearly 100% better.

He had multiple seizures Monday Morning between 4:30 and 11am

Prior to Monday he had no history of seizures and no major precipitating factors.

I went into his room to rouse him for breakfast and found him face down in a puddle of bodily fluids, non responsive. He was breathing and making eye contact but no words.

A quick 911 call later his chariot arrived to take him to the local ER. He was stabilized and observed there until a room could be confirmed for him at Doernbecher’s Children’s Hospital in Portland, then he went for a second ambulance ride to see the pro’s.

Everyone at Doernbecher is fantastic, every time. I’m so happy to have them as our “home” hospital.

After an EEG, an EKG, A slew of IV meds and blood draws - we were still unable to uncover what had caused the seizures. Apparently they are likely a result of his prematurity and the brain bleeds that caused his CP and Hydrocephalus. As he grows and develops, as his brain changes/matures, seizures are an inherent risk because of his prior brain injury.

He is now on a twice daily anti-seizure medication and we have rescue meds on hand just in case a big one breaks through.

Seizures will most certainly happen again, and will continue throughout his life, but having the right tools and knowledge on how to react will be key.

I’m looking for resources on getting him a trained service dog. If you have any leads, let me know!

Life with you is a roller coaster kid, we’ve got this.

03/04/2023

Jake got to ride in an ambulance today, hes been having seizures all morning. We’ve never dealt with seizures before.

I’m completely out of my realm of knowledge.

I’ll update when I know anything.

30/01/2019

It's one mistake parents make frequently in the winter. And it can be a deadly one.

28/01/2019

12/10/2018

Runner Justin Gallegos became the first professional athlete with cerebral palsy to sign a contract with Nike.

20/09/2018

Jade had SDR with Dr Park in July 💕

12/01/2018

Outlook magazine published an article about Dr. Park and SDR. Check out the link!

As a baby, Alexa Reed seemed to be hitting all her developmental milestones. When it came time to walk, however, she started having trouble. Her right foot turned inward and she had a tendency to rise up on her tiptoes. “For two years I asked her pediatrician if this was normal and if I should...

03/01/2018

Jake has Cerebral Palsy, but he doesn't let it slow him down. He is a happy-go-lucky unstoppable daredevil of a 4 year old boy. At his young age, he has spent nearly 150 days in a hospital, has had 14 surgeries, and is currently attending physical therapy 3 days per week.

Unfortunately, Jake has some permanent contractures (muscle tightness) in his legs which limits his range of motion and causes him pain. He has surgery scheduled in St Louis that will eliminate those contractures and allow him to run & play with his friends without the constant pain in his legs. We are fundraising to help pay for his trip to St Louis, his new leg braces that will be needed after surgery, and his required 5-days-per-week physical therapy over the next 6 months. Insurance covers their fair share, but as you probably know, it doesn't cover everything and travel isn't cheap. Plane tickets, hotel stays, and rental cars add up quick. If you can help in any way we would be truly appreciative.

Much Love, Jake & Family

Jake has Cerebral Palsy, but he doesn't let it slow him down. He is a happy-go-lucky unstoppable daredevil of a 4 year old boy. At his young age, he has spent nearly 150 days in a hospital, has had 14 surgeries, and is currently attending physical therapy 3 days per week. Jake had a life altering su...