Finding a Kidney for Jenn

Finding a Kidney for Jenn Starting June 2018 I was searching for a kidney donor. May 2023 the search was over I got my transplant

12/01/2025

May 17th, 2025, was my two-year transplant anniversary. I didn't want to post again until my three-year anniversary, but so much has happened since May 17th of last year. Where do I start?
On June 30th of this year, I was heading to an appointment. Since it's close to home, I walked. I took one step down my apartment stairs and felt a pop. I kept going, thinking nothing of it. As I kept walking, it started to become painful, but, being the strong person I am, I kept going. I walked back home, and my foot was swollen. I went to the ER, and it was a Jones fracture—a break in the base of the fifth metatarsal bone on the outside of the foot. I saw an orthopedist and spent three months in a boot with no weight on my right foot, using crutches and a knee scooter to get around. Being me, I was only worried about not being able to work because I love working.

Let's go back to a month after the fracture, August 8. I was sent for a DEXA scan to measure my bone density because there was no way I could fracture my foot just by stepping down on it. Test results came in, and on August 27, I received the news that I have osteoporosis. I heard the doctor talk, but I wasn't listening. I was processing all of it, processing that my foot was not healing on its own and the news that I have osteoporosis. I felt defeated, tired of being strong, with emotions all over the place for a whole day. But I picked myself up, as I always do, and adjusted to everything. Anti-rejection medications help to keep your new organs working, but like with other medications, there are side effects or new diagnoses. On October 22, I was able to walk on my foot again with the boot for two weeks and then with regular shoes. I've been doing well with walking and am currently on a new medication for osteoporosis.

On November 23, I started seeing floaters in my right eye, which normally happens after my eye injections. However, I then began to experience blurriness or fogginess in my right eye. I'll keep this short since it has been a long couple of months. They think it's a vitreous hemorrhage/PVD (posterior vitreous detachment). I'm seeing my ophthalmologist in a couple of days to determine what can be done and to get an exact diagnosis. I am living, I am thankful, I am strong, I am determined, and I am blessed to be here on this earth, no matter the lows. I do not write these posts for pity or attention, as I have never been an attention seeker. I write these posts for others to know that they are not alone in whatever situation they are going through, so that they know to keep fighting, stay strong, and stay positive. It's okay to feel defeated at times, but it will be okay just keep going,do not give up.

05/17/2025

Two years ago, on May 17, 2023, I received a kidney-pancreas transplant. There have been ups and downs throughout these two years, but I remain thankful. I still remember that Tuesday, May 16, when I got the first call. Wednesday, May 17, I received the second call to come to the hospital; hours later, I had a kidney and pancreas transplant. I had support from family and friends, but one person I love, my partner Lori Koller , was there through it all—pre-transplant appointments, the day of the transplant, and afterward. I am very grateful and thankful for her. The transplant team, surgeon, and doctors are amazing at Lehigh Valley Hospital, even in the post-transplant period.

To that beautiful angel who decided to be a donor, thank you! I am deeply touched by your selfless act of giving. Your gift has renewed my life and hope. I am living a new life thanks to your generosity. I will always remember the impact you have had on me. I live life with a new perspective now. Here's to many years of a new chance at life.

12/17/2024

I haven't been here in a while. Time for an update. A year and seven months ago today, I received a kidney and pancreas transplant. There have been some small bumps in this transplant journey, but I'm staying positive. If I stayed positive through almost five years of waiting for a transplant, then I can definitely stay positive now. It's been a bit stressful, but other than that, I'm feeling well, even with some high numbers in some of my monthly lab tests.

Today I'm going for a biopsy to see what's going on. I'm feeling a bit nervous about the results, but if I'm feeling well health-wise, then maybe it's something minor. It's been a while, as I said earlier, but I'm enjoying being back to work. I've been back at work for a year and two months after not being able to work for five years, so I'm definitely excited to be back. Happy Holidays everyone.

08/17/2024

1 year and 3 months have passed since my kidney-pancreas transplant. I've been doing well. I had a small bump a couple of months ago when CMV was detected in one of my monthly blood tests. I'm taking medication for it and will soon be able to stop. So far, no more CMV has been detected in my last 3 labs. I've been working, keeping busy, and just living.

It has been a while since I last posted. I used to post every month, but after the one-year transplant anniversary, I wa...
07/06/2024

It has been a while since I last posted. I used to post every month, but after the one-year transplant anniversary, I was unsure about the posting frequency. I am doing well, though.I started weekly blood work in April due to detected CMV in my monthly lab results and was prescribed medication. I am now doing much better and soon will be going back to monthly labs.

05/17/2024

Today marks the one year of my kidney and pancreas transplant. I am filled with a mix of emotions as I reflect on my journey. I was a type one diabetic for 23 years and had end-stage kidney failure at the age of 27. I underwent 4 years and 10 months of dialysis, but remained positive, had patience,and I always appreciated life no matter what I was going through.

I received several calls for possible transplants, the first one was hard but not like the one I had that involved me heading to the hospital to hear that there was something wrong with the organs. I felt down for about 2 days. I got myself right back up. I also had the support of loved ones.I can't remember how many calls I had in those 4 years almost 5 years of dialysis,but I do remember that last call Wednesday, May 17 2023.

I am thankful for my transplant and honor the memory of the donor, promising to make the most of this healthy second chance at life. Organ donors are heroes.💚

04/17/2024

11 months since I got kidney and pancreas transplant. Wow! it will be a year next month. It does not feel like a year. Today I went for my monthly blood work,waiting for the results. So thankful for this healthier life.

03/18/2024

Yesterday March 17 was ten months since I got kidney and pancreas transplant. Been feeling good. Seen the nephrologist in Berks county two weeks ago and she says blood work looks really good. In May it will be my last visit to the nephrologist at Lehigh Valley,the one in Berks will be taking over. That's all the updates I have.

02/19/2024

Two days late but still updating. Nine months since I got kidney and pancreas transplant,wow almost a year! Feels like it just happened yesterday. I have been doing good. I go for blood work in the end of this month. I feel like I don't talk about the pancreas side of the story. I was diagnosed with type 1 diabetes when I was 10 years old. I had diabetes for 23 years,the reason I had end stage kidney failure was because of the diabetes. Tried to keep the story a bit short. It's such a difference not having to check blood glucose levels 4 times a day,getting insulin,and watching what I eat even though I still do because I had to do it for 23 years so the habbit is still there. I think that's it for this month. Donors are heroes!

01/18/2024

Had a busy day yesterday so I forgot to post on here. Yesterday January 17 was 8 months since my kidney and pancreas transplant. Had an appointment with the nephrologist yesterday and everything is looking great. Today is a special day not only because it's my birthday but because it's my first birthday with a healthier lifestyle. I am beyond thankful. See you guys next month with more updates.

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Reading, PA

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