Chronic HOPE

05/01/2026

May is Lyme Disease Awareness Month and I will be sharing some “Lyme Science” posts from PA Lyme Resource Network to educate you. This post explains why some people remain chronically ill with Lyme or its co-infection, including me. Grateful I’m currently in remission.💚

MAY IS LYME DISEASE AWARENESS MONTH

LYME SCIENCE - WHY AM I STILL SICK?

There are a number of reasons that Lyme symptoms persist. One reason is the bacteria that causes Lyme disease is a master of disguise. It can be hard for the body to find and destroy. So how does it stay hidden?

1. Your immune system looks for patterns in proteins. Bacteria have proteins on their surface, and your body creates antibodies that match those proteins.
2. When antibodies find a match, they attach to the bacteria and mark it for destruction. This signals the body to destroy it. In the image, the square shapes match.
3. The problem is that Borrelia can change its surface proteins. It can also release those proteins into nearby tissue. Now the bacteria have different, sphere-shaped proteins on its surface.
4. Antibodies are still looking for the old shape, but it is gone. Without being marked, the bacteria is not destroyed and your symptoms continue.

Please DARE 2 Share this post to help others understand the complexity of treating Lyme disease.

PA Lyme is dependent on your support - DONATE - https://www.palyme.org/donate-2

For more information:
a. Survival strategies of Borrelia burgdorferi, the etiologic agent of Lyme disease - https://pubmed.ncbi.nlm.nih.gov/15065567/
b. Borrelia burgdorferi Manipulates Innate and Adaptive Immunity to Establish Persistence in Rodent Reservoir Hosts-https://pmc.ncbi.nlm.nih.gov/articles/PMC5316537/

04/27/2026

Does the weather affect your outlook on the day? If it’s sunny outside, I find it easy to smile and be happy. When the cold wind blows or if a storm is brewing, my mood may not be as cheery. Dark days that are overcast can certainly creep into a mood, can’t they? Look upward and outward to lift the dreariness that tries to hide inward. You have to get outside of yourself.

What an amazing God; He never comes up short! Feeling meh? Turn to God. Angry? Pray. Worried, anxious, overthinking a problem? Talk to Him. Thank you, Lord, for reminding me always that You are here. Amen.

“Remember this: The larger your thoughts about God, the smaller your thoughts about your problem!” —Dr. Charles F. Stanley

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Hebrews 10:23

“He who promised is faithful.”

Luke 1:37

“For with God, nothing shall be impossible.”

04/21/2026

This was a TOTAL surprise at PA Lyme Resource Network’s Lyme patient conference! It’s a privilege to work alongside so many hardworking volunteers in this all-volunteer statewide organization. My primary role helps Lyme patients find Lyme Literate practitioners to properly test & treat them and hopefully bring them to remission.💚 I started volunteering in late 2023 & have given referrals to about 2,100 people. But we need MORE volunteers! Click on this link to see how you can help: https://www.palyme.org/volunteer

04/18/2026

So much great information and exhibits are being presented to Lyme patients at Lyme Resource Network’s Patient Lyme Conference in King of Prussia today!

04/18/2026

On my way to a Lyme Patient Conference sponsored by Lyme Resource Network. Looking forward to lots of great speakers & information!

04/16/2026

04/03/2026

https://www.facebook.com/share/p/1BB98qpUx1/
A Maundy Thursday Prayer

Will you take a moment to sit with Him tonight? 👇
Tonight is an invitation to slow down… To step away from the noise and sit in the quiet with Him. To remember a love that knelt, a Savior who served, and a heart that stayed faithful to the end. Not everything has to be seen to matter. Some of the most sacred moments happen in stillness. 🙏

“Stay here and keep watch with me.” — Matthew 26:38

Tonight, choose presence over pressure. Stillness over striving. Jesus over everything else. If you need help creating that quiet space, our daily devotionals and peaceful worship playlists are here to guide you into His presence. Link in our bio on page. ❤️

03/04/2026

Living with Lyme Disease and other chronic illness often feels like stepping into a role you never chose.

You become the researcher.
The symptom tracker.
The appointment scheduler.
The one explaining your symptoms over and over again.

You learn new medical terms.
You monitor reactions.
You adjust your routines.
You test what helps and what makes things worse.

All while trying to function in everyday life.

It’s exhausting.

And it often feels unfair.

But somewhere in that process, something shifts. You begin to transform.

Because while you never asked to become your own advocate, you start understanding your body in a way most people never have to.

You begin to recognize patterns.
You learn your limits.
You notice early warning signs.

And that awareness becomes power.

Healing is not just about eliminating symptoms.
It is also about rebuilding a relationship with your body.

You may not have chosen this path.
But the knowledge you gain along the way can become one of your strongest tools in life.

At Lyme And More, we believe informed patients are powerful patients. And even in the middle of the struggle, that matters.

Link: https://lymeandmore.com/

03/01/2026

I am 1 in 10 & still struggling with pelvic pain at age 70.

02/27/2026

I hope you’re having a healthy day!

Gentle reminder: God sees what others can’t. He knows the quiet strength it takes just to keep showing up when your body is tired and your heart is weary. You are not weak. You are carrying more than most can see. Rest is holy. Grace is sufficient. You are deeply known and deeply loved. 🙏❤️

01/17/2026

A perfect day for Batuonal Nothinv Day…with a few inches of snow!❄️☃️ What obligation might you be cancelling today?

National Nothing Day. No rituals. No tasks. If you could cancel one obligation today guilt‑free, what would it be? 🚫