Parent Empowerment of Northern California

08/07/2024

I’m so glad this article was published because it’s so true. Our medical system and support transitioning from pediatrics to adults is very scary because our kiddo’s still need help, yet the support and services tend to drop off as they become an adult. It’s important to get a team in place prior to your kiddo becoming an adult. Lifelong disabilities don’t end when your kid becomes an adult. I can tell you that families get burnt out and need help. When your child is non-verbal and they can’t speak for themselves as an adult they are stuck in this loop hole between pediatrics and adults and finding a doctor who is willing to take this on is few and far between. Most kiddo’s with intellectual disabilities are developmentally delayed meaning they may be 9 years old but developmentally are really on 5 years old. This life can be hard to navigate but I appreciate this family sharing their story so families don’t have to navigate this alone.

Colin Farrell is launching a foundation in honor of his 20-year-old son who has Angelman syndrome. The actor opens up to PEOPLE about their life together, saying he thinks his son James is "magic."

03/26/2024

https://m.facebook.com/story.php?story_fbid=291049357353683&id=100093458629258&mibextid=cr9u03

03/26/2024

Do you have a medically complex child who needs services that will help him or her thrive but yet you make too much money to qualify for these services? This HCBS waiver program allowed us to qualify for state medical and waived our income for other programs like CCS AND IHSS. Reach out to FNRC and ask for an assessment and look up the manual for eligibility requirements. You must be an active regional client.

https://www.dds.ca.gov/wp-content/uploads/2019/02/HCBS_WaiverPrimerPolicy_20190212.pd

06/17/2023

STEP 3

Shasta Office of Education also know as SCOE

Don’t wait until your kid is three to take advantage of this service. The staff at SCOE are amazing, they helped me through the toughest three years from birth to three years of age. Take advantage of this Early Intervention Program.

https://www.shastacoe.org/instructional-services-division/early-childhood-services-department/early-intervention-program

06/16/2023

STEP 2

Connect with your local Regional Center…

Why is this important?

Far northern is like the central hub for services and supports for individuals with developmental disabilities. They contract with DDS (Department of Developmental Services) They provide early intervention services to eligible children under the age of three.

They also provide services after the age of three but certain eligibility requirements must be met. I will be talking about becoming a Far Northern Regional client after the age of three in great detail at a later date. I share this with you because my experience was not so easy and my hope is that this finds you when you need it.

Far Northern Regional Center offers a wide variety of services for eligible individuals and their families including: Early Intervention Services Services provided to eligible children under the age of three […]

06/15/2023

STEP 1 Trust your gut! Seek a diagnosis!

As a parent you know your child best, if something does not feel right trust your gut! Pay attention to developmental milestones, often times developmental disabilities are most often diagnosed as a result of concerns family members have about there child’s development.

Resources for Child Development. Development is the biological and behavioral growth and change that occurs during a lifetime.

06/15/2023

Welcome parents, this page is for you! Let this be a place you can seek guidance and get direction. Navigating this unexpected life is messy and overwhelming at times. You are not crazy or alone! I encourage you never to stop advocating for your child even when it seems impossible. In my experience we learn from other parents who have been through it. Not every child is the same but the steps to get help are. As parents we should be aware of all programs and services, it shouldn’t be some hidden secret, even though it may feel that way at times. Trust your gut, it’s worth it! If your struggling and don’t know where to start message me, I would be happpy to help!