A page created to give hope to anyone receiving a diagnosis of Bilateral CDH or CDH. Please, don't give up! There is hope!
10/31/2025
Today, we believe that Yeshua comes down from Heaven to visit us.
We feel his presence in the light, in the breeze, and in every memory that still embraces us.
We find it fitting to remember his story — for all the parents who are now walking through the challenge of congenital diaphragmatic hernia (CDH) with their little ones.
Please, don’t lose hope. Many children overcome this battle through faith, love, and medical care.
And to the parents of the children who did not survive, we send a heartfelt embrace.
You are not alone — our children live in Heaven, but also within us, in every act of love and in every story we share to keep their light alive.
💙
yeshua ...the first baby to survive bilateral CDH without the lung ballon!
11/01/2023
Mexican tradition dictates that today all the little angels from heaven visit their families…welcome little CDH cherubs !
02/27/2023
10 years since you left this earth. Legacy was brought up at church today & all we could think about is your legacy you left for us. Not to mention the purpose & platform/foundation for us to give back to others. The impact you embedded on our hearts is profound little lady 💜 We miss you & I will never stop speaking your name.
11/10/2022
Three years in heaven with the satisfaction of defeating bilateral CDH and bringing hope to other little ones
05/10/2022
Yeshi waited two months to be in his mom's arms. Both of them cried when they finally could hug each other. Yeshua was extremely strong no doubt; but we also believe that he felt loved since the moment he was born and that gave him an extra boost for the miracle he became. Moms in NICUS hold on !!!! Its ok to feel tired, sad, anxious, depressed. Find support in your family and in the hope of a better future. You can be the difference in the fight of your little ones!!! The rest is in the hands of God.
11/27/2021
Stetson is a fellow baby warrior.
He and his parents have shown courage, will and happiness to all of those that were lucky to know their story. He is in heaven now where his smile will be brighter than the sun. Please support his family in this moments.
Thanks !!
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11/20/2021
7 years ago Sofi was born and taken to heaven. In her short stay in this world she made us aware and ready. She prepare us to help Yeshua. She was the beginning of the miracle that we would witness later. Our first CDH angel
11/10/2021
Two years ago Yeshi was scheduled to leave the hospital. Against all the odds he had defeated Bilateral CDH with the marvelous help of Dr. Kays and his team.
God has his ways and a couple of days before his exit, an infection hit him and took him from us on the midnight of November 10, 2019.
We are sure that each stage he passed, each step he did, each milestone he achieved and even the events of his last week of life have left lessons to every one that met him. His journey and story help other kids to have a chance, to survive.
He lives in the hearts of everyone that saw his smile. He is in heaven, where pure souls belong.
11/01/2021
According to Mexican tradition, the souls of the little ones come to visit our home today.
We make an altar in their honor with the food that they used to like.
Sofi and Yeshi are our family Cdh angels and we always welcome them back for this day. The altar though is open to any baby that lives in heaven.
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We created this page to bring awareness to a condition known as Bilateral Congenital Diaphragmatic Hernia. Our son, Yeshua Mateo, or “Yeshi” as we call him, was diagnosed in utero at 15 weeks with this condition and is now receiving treatment at John Hopkins All Children’s Hospital in Saint Petersburg, Florida. We sought treatment here under a highly skilled and highly recommended pediatric surgeon known as Dr. David William Kays.
A Congenital Diaphragmatic Hernia, or CDH, is a rare birth defect in which the diaphragm (the muscle that separates the abdomen from the chest) does not fully develop and thus a hole (or holes) become(s) evident. As the pregnancy progresses abdominal organs, such as the intestines, liver, spleen and possibly other organs migrate up into the baby’s chest cavity and remain trapped there until birth. This in and of itself is not the main concern for CDH doctors like Dr. Kays. What’s most alarming is the overwhelming amount of pressure created by these organs on the baby’s lungs, as they do not have the space to fully expand and form in utero. As such, these newborns from birth are left without normal lung capacity and usually cannot take their first breaths without assistance. Therefore, the proper added support is required usually by way of a ventilator to even survive, some even need the help of an ECMO machine amongst others to get through this great ordeal.
This condition affects 1 in every 2,000 – 3,000 pregnancies with many of these mother’s told to abort or to be ready to say goodbye once their child is born. Yeshi was expected to have only 11% total lung volume and close to zero percent chance of survival.
So far Yeshi has beat all the odds and is going strong! He has gone through: 29 days of ECMO treatment with continuous ventilator support, two times intubation (intubated when on ECMO, extubated, then intubated again) with the help of Nitric Oxide, a final extubation (or so we hope), a gastronomy tube placement and currently on CPAP support via his ventilator.
Finally, we wanted to create this page to track Yeshi’s progress and to bring hope to others who have received this same diagnosis… a diagnosis that most doctors claim as terminal. We know that we scoured the internet day after day looking for bilateral survivors and for quite a while and didn’t find any, now we can only find a few. Thus, if you are a parent or parent-to-be and you have received this heartbreaking diagnosis, please know that there is hope, there is a chance for survival!
Dr. Kays and his team of doctors and staff are amazing. They each truly deserve a reward for what they do. Dr. Kays has over 30 years of experience and has completely dedicated his life to this cause. As such, he has created the only full-on CDH unit in the world where fellow doctors and staff only tend to babies with CDH. We are a family here at John Hopkins in Saint Petersburg, Florida. We collaborate together to help others find hope. We know our babies are strong and yours is too… Please don’t for a second give up on your little one! If you are here because your baby-to-be has been recently diagnosed with CDH or Bilateral CDH and you want the very best care, please call Joy Perkins at John Hopkins All Children’s Hospital at (727) 898-7451. Joy is the Program Coordinator for the CDH program at John Hopkins and is Dr. Kays’ right hand. I can’t stress enough how grateful we are to have found Dr. Kays and his staff. He has an over 95% success rate for his kiddos and gives hope to all those he has saved even parents like us and Yeshua.
Please support babies like Yeshua by liking this page and sharing it with others. Also, please feel free to contact us here for any advice we can provide. We support nonprofit organizations like Tiny Heroand CDHSG who help CDH families like ours find hope. Please know that you are not alone out there and there are real survivors and families that can help.
Click here for more information about Dr. Kays and his team at John Hopkins All Children’s:
