St. Petersburg MG Support Group

St. Petersburg MG Support Group This page has been transitioned to a more user friendly group page. Please join MG Group of St. Petersburg. The St. Be nice. Use nice words.

This page is for people looking to connect with individuals, families, friends, and medical professionals affected by Myasthenia Gravis in the Tampa Bay area of Florida. Petersburg MG Support Group is affiliated with the Myasthenia Gravis Foundation of America (MGFA) and meets the 1st Thursday of each month in the Auditorium of St. Anthony's Hospital at 7pm (Our meetings are happening via ZOOM for now). For more information on our support group please visit myasthenia.org or email our support group co-leaders at stpetemggroup@gmail.com

Always consult your doctor for medical advice. This page is not intended to provide medical advice. Questions regarding MG such as medications and symptoms are allowed, however note that comments are intended as personal experience and your doctor should always be consulted. Respect that others may have a different experience. Rude and insulting comments, disrespectful language, bullying and shaming are strictly forbidden. Posts informing the page of booster projects or sales that benefit MG support efforts are allowed, however sales of items unrelated to MG are not allowed. If you are unsure if a post is allowed- please contact the administrators for approval. The administrators reserve the right to remove any post and/or member which violates any of these guidelines. The administrators are volunteers who do their best to monitor the activity on this page on their own time, please feel free to send them a direct message if you feel a post or member has violated guidelines.

10/19/2023

Join us for a webinar discussing Rystiggo, a new treatment for AChR and MuSK myasthenia gravis, just approved by the FDA this summer. Bring your questions! Our speaker is Dr. Gil I. Wolfe, MD, Irvin and Rosemary Smith Professor and Chairman of the Dept. of Neurology at Jacobs School of Medicine and Biomedical Sciences at the Univ. at Buffalo/SUNY.

Register today: https://myasthenia.org/Webinars/Whats-New-in-MG-Research

07/30/2023

Hi everybody!! The meeting invites have gone out for Thursday night’s support group meeting. Jim Sliney Jr. from Patient Rising will be presenting the plethora of information and resources available to us. It will be an informative meeting for sure.
If you did not get the email and want it, please comment below.
See you Thursday!

Great article about a common complaint many of us have. I know I feel validated after reading this.
05/11/2023

Great article about a common complaint many of us have. I know I feel validated after reading this.

Is there a connection?

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