UC San Diego Acoustic Neuroma Program

UC San Diego Acoustic Neuroma Program The unparalleled UC San Diego Health Acoustic Neuroma Program offers the finest care for Acoustic Neuromas & NF2

One in a Million: UC San Diego Alum Runs the Chicago Marathon 25 Months After Acoustic Neuroma Surgery"On October 13, 20...
10/01/2025

One in a Million: UC San Diego Alum Runs the Chicago Marathon 25 Months After Acoustic Neuroma Surgery

"On October 13, 2024, I crossed the finish line of the Chicago Marathon. For me, it wasn’t just about running 26.2 miles; it was the fulfillment of a lifelong goal, one I wasn’t sure I’d ever get the chance to achieve.

Marathons have always fascinated me. They’re a test of physical endurance, mental toughness, and human resilience. Statistically, only about 1 in 100,000 people will ever run a marathon. Coincidentally, about 1 in 100,000 people are diagnosed with an acoustic neuroma, a rare benign brain tumor. I had both realities intersect in my life. Running the Chicago Marathon after surviving acoustic neuroma surgery felt like the universe’s way of making me “one in a million.”

On September 13, 2022, I underwent surgery at UC San Diego Health to remove my acoustic neuroma. My surgeons, Dr. Rick Friedman and Dr. Marc Schwartz gave me not just their expertise but also the confidence that I could come out the other side of this diagnosis with my life and my dreams still intact. The tumor left me with permanent single-sided deafness and challenges with balance, and in those first days post-op, running wasn’t even on the horizon. Standing for the first time was an achievement. Taking my first steps was a milestone. Each moment was about learning how to live again in a new body with new limitations. But through it all, the idea of running the Chicago Marathon never left me. It was more than a race. It was a symbol of possibility. Many people told me I shouldn’t even think about running a marathon after brain surgery. That doubt only fueled my determination.

Training was grueling. My hearing loss made running near traffic and in unfamiliar areas difficult, even dangerous. I had to adapt where and how I trained, staying alert in ways most runners don’t have to think about. The long runs tested more than just endurance; they tested patience, resilience, and the ability to quiet the doubts that crept in.

Still, every mile felt like progress. Each step forward reminded me of how far I’d come—from the uncertainty of waking up after surgery, to the shaky first steps in recovery, to the moment I laced up for my first tentative run again.

Crossing the finish line in Chicago was a wave of emotions all at once: joy, gratitude, disbelief, pride. In that moment, I carried with me not only the 26.2 miles of the marathon, but also the 25 months of recovery, determination, and perseverance that had led me there.

Running the Chicago Marathon was never just about checking a box on a bucket list. It was about reclaiming a dream and proving, to myself most of all, that life after a brain tumor could still hold extraordinary possibilities.

I may be just one person but having both run a marathon and lived through acoustic neuroma surgery, I can say this with certainty: sometimes being “one in a million” isn’t just a statistic. It’s a story of resilience. And I am deeply grateful to UC San Diego Health and to Dr. Friedman and Dr. Schwartz for making that story possible."

Thank you, Dr. Sharma, for sharing your incredible recovery story with us!

"I was diagnosed with a brain tumor...and I took that personally"

06/16/2025

At just 13, Lexi faced hearing loss from a rare brain tumor. Discover how expert surgeons at UC San Diego Health preserved her hearing and changed her life.

Our UC San Diego Health Acoustic Neuroma Program is made up of so many caring individuals across multiple specialties - ...
06/11/2025

Our UC San Diego Health Acoustic Neuroma Program is made up of so many caring individuals across multiple specialties - all committed to best-in-class care for our patients. We were excited to design and wear our very own shirt this year to show our support and create awareness throughout our campus and community! We 💙 our patients! Acoustic Neuroma Association

  week is here!  Informed decisions.  Better Outcomes.    All week the Acoustic Neuroma Association will be sharing info...
06/10/2025

week is here! Informed decisions. Better Outcomes.

All week the Acoustic Neuroma Association will be sharing information and presentations on various topics. You can catch Dr Friedman and Dr Schwartz presenting "Overview of AN Surgical Options and What to Expect" tomorrow at 2pm EST. It will be released on Facebook, their website and in their video libraries.

Week 2025 - Informed decisions. Better outcomes.
Be sure to visit ANAUSA.org/awareness for a full schedule, registration, our AN Warrior Gallery, and information about World Vestibular Schwannoma Awareness Day.

May is Brain Tumor Awareness Month 🩶🧠!
05/01/2025

May is Brain Tumor Awareness Month 🩶🧠!

The March issue of the ANA's Newsletter, Notes, is now available in the ANA member section at https://www.anausa.org/mem...
03/14/2025

The March issue of the ANA's Newsletter, Notes, is now available in the ANA member section at https://www.anausa.org/member-login

Our team is proud to share our research grant update!

"Genetic Analysis of VS uncovers new mutations and proteins potentially impacting symptoms and treatment"

Thank you to the Acoustic Neuroma Association for supporting this important research!

02/14/2025

Tammie Warren had hearing loss in one ear and an acoustic neuroma in the other. Surgery at UC San Diego Health prevented her from going deaf.

Lexi Jo's Journey: From Uncertainty to HopeIn March, our vibrant 13-year-old daughter, Lexi, began experiencing some ala...
02/12/2025

Lexi Jo's Journey: From Uncertainty to Hope

In March, our vibrant 13-year-old daughter, Lexi, began experiencing some alarming symptoms—hearing loss, dizziness, and tingling in her face. We went to several doctors, searching for answers, and eventually discovered she had an acoustic neuroma.
The diagnosis was overwhelming, and navigating her care in our home state left us feeling lost, with no clear path forward. That’s when a friend of a friend recommended Dr. Friedman and his team in San Diego. From the very first conversation, Dr. Friedman and his team offered us a lifeline, guiding us through difficult decisions and helping us overcome every hurdle with expertise and compassion.
At the time of her diagnosis, Lexi had lost about 60% of her hearing. We prepared ourselves for the possibility of losing more. However, thanks to the incredible work of Dr. Friedman and Dr. Schwartz, Lexi’s surgery was a resounding success. Not only did they remove the tumor, but they also preserved 100% of her hearing.

Lexi is a bright light in our lives and in her community. She’s active in school, softball, volleyball, and everything she loves. Thanks to this amazing team, she’s back to doing what she does best—spreading joy and living her life to the fullest.

We can’t express our gratitude enough to Dr. Friedman, Dr. Schwartz, and their incredible team for giving Lexi her spark back. Their care and dedication made all the difference in her journey, and we are forever thankful. ❤️ - Laci (Lexi's mom)

Wise and brave beyond her years, no doubt.  Honored to share her incredible story (in 2 posts) this week.My name is Lexi...
02/11/2025

Wise and brave beyond her years, no doubt. Honored to share her incredible story (in 2 posts) this week.

My name is Lexi Jo, and I’m 14 years old. A little while ago, I had to go through something really scary—a brain tumor called an acoustic neuroma. It wasn’t easy, and there were days I felt afraid and unsure of what was ahead. But I want to share something with you that helped me through it all: hope.

I know it might feel like this is the hardest thing ever (and honestly, it’s okay to feel that way sometimes), but I want you to know there’s a light at the end of this tunnel. You are so much stronger than you realize. Even on the days when you feel like giving up, remember that every small step forward is a big victory.

I am incredibly thankful for the doctors and team at UCSD. Before my surgery, I was able to talk to someone who had been through the same thing. They understood what I was feeling and could answer my questions because they had walked this road themselves. It made such a difference for me to know I wasn’t alone. That experience inspired me to strive to be an advocate for others who might be going through something similar. If sharing my story can help even one person feel less scared or more prepared, I want to do that.

You’re not alone in this fight. There are people who love you, who are cheering for you, and who will walk this path with you every step of the way. Hold on to that hope. Take it one day at a time, and don’t be afraid to let people help you.

I want you to know that brighter days are coming. There’s a whole world waiting for you after this battle—a world filled with laughter, love, and all the things you dream of doing. You’ve got this, and I believe in you.

Stay strong, stay brave, and keep believing in the light that’s ahead.

In case you missed our webinar earlier this week, you can still view it in the ANA video library!
01/16/2025

In case you missed our webinar earlier this week, you can still view it in the ANA video library!

Thank you to Dr. Marc Schwartz and Dr. Rick Friedman of UC San Diego Acoustic Neuroma Program for your time and expertise! The recording of this webinar, as well as the Q&A, are now available in our video library - anausa.org/video-library.

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Our Program

Each year, one out of every 100,000 Americans develop an acoustic neuroma, according to the National Institutes of Health. At the world-renowned UC San Diego Acoustic Neuroma Program, we have the means and commitment to offer exceptional, comprehensive care for this condition. The program’s faculty have successfully treated thousands of acoustic-neuroma patients. We are driven to help patients maintain and improve the quality of their lives, with an emphasis on preservation of facial nerve function and hearing.

Our highly skilled and experienced professionals are dedicated to providing patients with the most effective, up-to-date, and compassionate care for acoustic neuroma, beginning at the initial consultation and extending long after care has been given. Led by Co-Directors Rick A. Friedman, MD, PhD and Marc Schwartz, MD, the multidisciplinary team includes physicians and surgeons from numerous specialties, nurses, rehabilitation specialists and forward-thinking researchers.

At the program’s new and modern facility, Jacobs Medical Center, we tailor care to each patient’s condition. This includes watch and wait and non-invasive radiosurgery, which delivers precise beams of radiation to the tumor, while preserving healthy tissue. When the team recommends surgical removal as the best option, we are one of the few centers able to offer the full range of current microsurgical procedures.

The team focuses on giving each patient a seamless, supportive experience, from assessment and pre-treatment care through treatment and long-term care and follow-up. In the process, we maintain ongoing communication with patients and their primary care doctors, and coordinate appropriate post-treatment care. In short, we help patients to feel secure at every stage of their care.