The Aneurysm and AVM Foundation

The Aneurysm and AVM Foundation Dedicated to bettering the lives, medical care, and support networks of those affected by aneurysm, AVM, and other vascular malformations of the brain.

Learn More: https://linktr.ee/TAAF15

Where you live can shape your health—from access to care, to clean air, to information.Health equity shouldn’t start in ...
04/22/2026

Where you live can shape your health—
from access to care, to clean air, to information.

Health equity shouldn’t start in the hospital.
It starts in our communities.

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Anxiety and depression are linked to higher rupture risk and mortality — how you feel after a brain aneurysm diagnosis r...
04/20/2026

Anxiety and depression are linked to higher rupture risk and mortality — how you feel after a brain aneurysm diagnosis really matters.

Read more: bit.ly/TAAFNewsletter

Here's to less Dr. Google! 🤪👌
04/18/2026

Here's to less Dr. Google! 🤪👌

You’re not lazy.You’re not unmotivated.You’re not “just tired.”If you’ve survived a brain aneurysm or AVM…and you feel e...
04/17/2026

You’re not lazy.
You’re not unmotivated.
You’re not “just tired.”
If you’ve survived a brain aneurysm or AVM…
and you feel exhausted in a way you can’t explain—this is why.
What looks like “doing nothing” on the outside
can feel like running a marathon inside your brain.
Processing conversations.
Managing noise and light.
Trying to focus.
Remembering what you were just doing.
Holding yourself together emotionally.
It all takes energy now.
A lot of it.
And most people will never see that part.
So if you’ve been hard on yourself…
or wondering why things feel so much harder than they used to…
This is your reminder:
Your energy isn’t gone.
It’s being used differently.
Your brain is healing.
And healing takes work.
—
If this helped you understand your own experience, save it.
If it helped you understand someone you love, share it with them. ❤️

You survived.But no one talks about what comes next.We do.
04/15/2026

You survived.
But no one talks about what comes next.

We do.

Racial bias still affects how pain is heard and treated. For aneurysm and AVM patients, those delays can be life-threate...
04/13/2026

Racial bias still affects how pain is heard and treated. For aneurysm and AVM patients, those delays can be life-threatening.

Learn the warning signs. Speak up if something feels wrong.

Fridays are for cool beans only 😎
04/10/2026

Fridays are for cool beans only 😎

When race and ethnicity aren’t reported, they can’t be reflected in care. The details matter.—
04/09/2026

When race and ethnicity aren’t reported, they can’t be reflected in care. The details matter.

—

TAAF encourages members of the rare disease community to apply for the Scholarship Fund.Powered by the EveryLife Found...
04/08/2026

TAAF encourages members of the rare disease community to apply for the Scholarship Fund.

Powered by the EveryLife Foundation for Rare Diseases, this program will award 58 scholarships of $5,000 to individuals pursuing higher education for Fall 2026.

Learn more and apply at RareScholarship.org by April 28 at 2 PM ET.

All members encouraged to join this special session at 6PM BST (regular groups at 6PM BST, 6PM EDT, and 6PM PDT are also...
04/07/2026

All members encouraged to join this special session at 6PM BST (regular groups at 6PM BST, 6PM EDT, and 6PM PDT are also still scheduled) 💙

We’re honored to welcome special guest Dr. Sepide Kashefiolasl from the Department of Neurosurgery at University Hospital Frankfurt, Germany.

**Topic:** Understanding Brain Aneurysms: What We Learn from Children and Why It Matters for All Patients
📅 April 9, 2026
🕕 6:00 PM BST | 1:00 PM EDT | 10:00 AM PDT

This international-friendly session is a unique opportunity to learn from a global expert and gain insights that impact patients of all ages.

🔗 bit.ly/JoinTAAFsg
*Must be registered to attend*

It’s all in the details. In brain aneurysms and AVMs, those details shape care. But we don’t always know who is being st...
04/06/2026

It’s all in the details. In brain aneurysms and AVMs, those details shape care. But we don’t always know who is being studied.

This month, we’re taking a closer look at what’s missing.

Address

28 Geary Street, Suite 650 #2529
San Francisco, CA
94108

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+15104644540

Website

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Serving each facet of the Aneurysm and AVM community!

The Aneurysm and AVM Foundation (TAAF) is dedicated to bettering the lives, support networks, and medical care of those affected by aneurysm and other types of vascular malformation of the brain. And we do it with a with a personal touch. We’re medical professionals, survivors, family of those who’ve been lost and advocates of this great community. Call us, email or reach out via social media. Visit TAAFonline.org today. We're here to serve YOU!