SPLIT PFEP - Patients, Families & Engaged Partners

19/01/2026

01/01/2026

Happy New Year!! Here's to showing 2026 who's boss! 🎉🥂💕♻️

25/12/2025

Merry Christmas from all of us at The Society of Pediatric Liver Transplantation! 🎄🕯️☃️

07/11/2025

Giving Tuesday is December 2nd this year, and SPLIT PFEP now has a way to donate directly to our initiatives online on our website! As we look forward to 2026 and creating more resources and support for our Liver Community, we ask you to consider donating and partnering with us in our advocacy work. Together we can make a dark diagnosis so much brighter for everyone affected. ♻️💕🎉

05/10/2025

Today is PFIC Awareness day, and we have recently teamed up with and to create a children's book that helps better explain Progressive Familial Intrahepatic Cholestasis to children and their families. A HUGE thank you to for sponsoring the creation and initial distribution of this book! Please be on the lookout, we will be releasing it SOON!! 🎉🙌🏼🎉

01/10/2025

October is National Liver Disease Awareness and Liver Cancer Awareness Month. Pediatric Liver Disease affects approximately 10% of all the children in the USA. Liver Disease in infancy makes up the largest group of pediatric liver disease. Know some of the signs:

-Prolonged Jaundice
-Pale Stools
-Distended Belly
-Itching
-Poor Weight Gain
-Dark Urine
-Loss in Appetite

08/09/2025

It was a great day on Capitol Hill with our members meeting with their representatives!

07/09/2025

Super proud of our PFEP members representing SPLIT and pediatric patients at the Global Liver Institute - Advanced Advocacy Academy 🙌🏼🎉

28/08/2025

As Patient & Family Advocates, we know how painful it is to receive a diagnosis that changes the trajectory of you and your child's future. For our group of advocates, when the dust settled, we turned our pain into purpose. We determined the climb doesn't have to be as hard, and we started to build ladders that help future families climb a bit easier. We also realized how important it is to have support from other families in your time of grief.

A pediatric liver diagnosis doesn't have to define you or your child, and transplant doesn't have to be the final chapter of your pediatric liver journey. Join our cause!

Our aspirations as an advocacy group are:

1) To be able to provide doctor led, family focused, educational materials on rare diseases affecting our liver community.

2) Create better community support systems, and network together.

3) Help local communities become more aware of pediatric liver disease and its warning signs encouraging an earlier diagnosis.

4) Advocate for a better health system overall within our governing bodies.

If you are interested in joining our group to help future families afflicted with liver disease, please visit our webpage and reach out! We'd love to have you join our efforts! Let's work together to be a group that helps heal people 💕

13/08/2025

World Organ Donation Day - August 13th, 2025 ♻️🌎♻️🌏♻️

One donor can save up to 8 lives! Register to be an organ donor today 💕

05/08/2025

Some of our SPLIT professionals are at the WTC this week representing! 🙌🏼🎉♻️ It's an honor to support all of these amazing, hard working individuals as they focus on improving care for our pediatric liver kids.

30/07/2025

Sign up to attend our Multi-D Committee Webinar on September 8th! Our very own PFEP member, Sean Eiles, will be speaking on the topic about "Caring for the Transplant Caregiver." www.tts.org/split-september-8-2025