Gunner’s Journey

04/30/2026

😂 …….but that’s what makes you cherish every moment.

04/30/2026

Reposting for those who are interested in joining our team! If you can’t make it and would like to donate, you can also do that through this link! Thank you all!!

In September, supporters in communities across the country will participate in the St. Jude Walk. This exciting, family-friendly event helps raise funds to support the lifesaving mission of St. Jude during Childhood Cancer Awareness Month.

04/25/2026

Listening to Roger Creager at the St. Jude Children’s Research Hospital – Texas crawfish for a cure event. Wish you were here……make it so next time!

04/25/2026

We’re out here with St. Jude Children’s Research Hospital – Texas and 93Q Houston having a blast! 💙

04/15/2026

🤞🏼

The Weill Medical College of Cornell University is currently enrolling participants in a phase 1 clinical trial of an investigational gene therapy for cardiac disease associated with Friedreich's ataxia.

Note: The eligible ages for this trial have recently been modified to ages 12-50 years old and the left ventricle ejection fraction (EF) measured by cardiac MRI updated to >/=35% to 75%.

The investigational gene therapy involves a single, intravenous administration of a modified adeno-associated virus that aims to deliver the normal FXN gene to the heart. The goal of this initial clinical study is to assess safety and initial estimates of efficacy in treating heart disease.

Visit https://ow.ly/AGVR50WAVSn for more information and eligibility requirements.

Anyone considering participating in a clinical trial should discuss the matter with their physician. FARA does not endorse or recommend any particular studies.

04/13/2026

We meet so many people in Gunner’s Journey and we are so grateful for every single one of you.

We met this sweet family during our last visit to the The Peabody Memphis. Claire and Destin had the most gorgeous hearts! Thank you for making Gunner’s week start a little easier. We are grateful our paths crossed, too!

04/05/2026

This boy was so nervous about taking pictures. Last year they told him to stand still. He just kept telling me “I can’t!” So with a quick text, his teacher helped make it a lot easier and it was knocked out of the park! 💙💙

03/29/2026

Gunner’s Journey Hats. $30each. This is what’s left.

3- red white and blue
2- gray/white

03/25/2026

Because of you who donate, Gunner has a shot at a cure! Because of you, children get the treatment they deserve. Thank you to everyone who believes in not just Gunner but all of the kids! 💙❤️

In September, supporters in communities across the country will participate in the St. Jude Walk. This exciting, family-friendly event helps raise funds to support the lifesaving mission of St. Jude during Childhood Cancer Awareness Month.

03/23/2026

This was the FARA event we attended and we will definitely be attending more. If you look closely you might see a shirt, then again dad makes a good billboard!

The first FA Research Reception of the year kicked off in Texas just two weekends ago, and Sam Dupre recapped the event in the latest Ambassador blog!

Read more about it at curefa.org/blog.