Zoey’s Journey

28/02/2026

27/02/2026

Behind every rare warrior is a tribe who loves them fiercely.

Today we show our stripes and our support. 🦓💙
Because rare deserves to be seen, heard, and understood.

In honor of rare disease awareness day (2/28) the kids are showing their support 🫶🏼

04/02/2026

🙏💜

This statistic stops people in their tracks every time.

The Sjögren’s Foundation reports that people with Sjögren’s may be up to 44x more likely to develop lymphoma.

Let that sink in.

This isn’t just dry eyes.
It isn’t just dry mouth.
It isn’t “being tired.”

But here’s the part that matters just as much:

Knowledge changes outcomes.
Monitoring works.
Early detection saves lives.

Many people with Sjögren’s never develop lymphoma — and when risks are recognized early, doctors can watch closely, run the right labs, and act quickly if something changes.

That’s why awareness matters.
That’s why being taken seriously matters.
That’s why sharing this matters.

Not to scare — but to protect.

Save this. Share it. Send it to someone who still thinks Sjögren’s is “just dryness.”

05/01/2026

STORY TIME ⏰👇

Christmas didn’t go the way we expected this year.

Zoey fainted and had seizures, and in that moment everything else disappeared. The fear, the confusion, the waiting—those are things I’ll never forget. We rushed her to the ER, hoping for answers, hoping for reassurance… and she was sent home.

Since then, it’s been a blur of watching closely, worrying quietly, and trying to stay calm while your mind runs through every possible scenario.

Today we finally followed up with a neurologist. We’re still waiting on results, but right now they’re leaning more toward cardiology and possibly POTS. So while we don’t have clear answers yet, we’re taking the next steps and advocating hard for her.

This journey for her has been exhausting and emotional in ways I wasn’t prepared for. There’s something incredibly helpless about not knowing what’s happening inside your child’s body—and still having to be strong for them, when all you want to do is breakdown.

If you’ve ever walked through unexplained medical episodes, especially with your child, you know how heavy the waiting can be. We’re hopeful, cautious, and taking it one appointment at a time.

Please keep Zoey in your thoughts as we wait for answers 🤍 And thank you to everyone who has checked in, prayed, and shown support—it means more than you will ever know.

09/12/2025

Let’s pray this is something Zoey can be apart of. 🙏 Next week holds some answers that will spark ALOT more questions and discussions on how we will be moving forward with her vision journey.

A groundbreaking study has brought scientists one step closer to regenerating retinal cells in humans, offering new hope for restoring vision lost to degenerative eye diseases. Conditions like macular degeneration and retinitis pigmentosa, which affect millions worldwide, have long been considered irreversible. Now, advances in regenerative medicine are challenging that notion.
Researchers have successfully stimulated retinal cells to regrow in laboratory models, demonstrating that damaged eye tissue can be repaired and potentially restore function. By harnessing stem cell technology and precise molecular signals, the study shows that the human retina may one day heal itself, reversing vision loss that was previously permanent.
This breakthrough is a significant milestone in ophthalmology, opening doors to innovative therapies that could dramatically improve quality of life for those affected by blindness or severe visual impairment. While human trials are still in early stages, the progress highlights the incredible potential of regenerative medicine to restore not just vision, but hope.
Experts say that continued research could soon make vision restoration a reality, transforming the future of eye care and offering millions the chance to see clearly again.

16/11/2025

Morning at the new Mote Marine in Sarasota 🦈🪼🐠

08/11/2025

Zoey’s first “house”coming dance! Such an unforgettable night with amazing people❤️
✨Makeup by Zoey herself💕
✨Hair by Aunt Ashley 🫶🏼 💚 ❤️

25/10/2025

Chapter 13 unlocked. 💫
Teen era starts now 😎✨
Vintage since 2012 🤪

21/09/2025

This is on Zoey’s bucket list. To visit Time Square during the “takeover” for Usher Syndrome Awareness Day. 💙🥹🥰

18/09/2025

In honor of Usher Syndrome Awareness Day our amazing school is celebrating/recognizing this special day tomorrow. 💙