Behind the Capes Podcast

Behind the Capes Podcast We’re two longtime friends turned medical moms sharing what life really looks like behind the capes — real talk, raw moments, and big joy.

Because raising a medically complex child takes more than strength — it takes community, connection, and honesty.

This is amazing! I hope the rest of the states follow suite!
03/23/2026

This is amazing! I hope the rest of the states follow suite!

Parents in Colorado no longer have to choose between working and time in the NICU by their baby’s side. Here's why other states should follow suit. Tap the link in the first comment for more. ⬇️

03/21/2026
Together Against Loneliness 💙💛Loneliness doesn’t always look the way people expect it to.Sometimes it looks like sitting...
03/20/2026

Together Against Loneliness 💙💛

Loneliness doesn’t always look the way people expect it to.

Sometimes it looks like sitting next to your child’s hospital bed, surrounded by machines—but feeling completely alone.

Sometimes it’s being the only one in your circle who understands feeding tubes, oxygen levels, or what it means to celebrate a “small” win that feels huge.

Sometimes it’s smiling in public… while quietly carrying a world that most people don’t see.

This World Down Syndrome Day, the theme “Together Against Loneliness” reminds us of something we’ve learned the hard way:

✨ You were never meant to do this alone. ✨

Behind every diagnosis, every hospital stay, every therapy appointment—there is a parent who needs connection, understanding, and community.

That’s why Behind the Capes exists.

To say the things people don’t always say out loud.
To hold space for the hard, the beautiful, and everything in between.
To remind you that even on your most isolating days… someone else gets it.

If you’re in this life—medical parent, Down syndrome parent, or somewhere in between—you are not alone.

We’re right here with you. 💛

March 21st is 💛💙 World Down Syndrome Day 💛💙A day to celebrate the incredible individuals with Down syndrome and the fami...
03/19/2026

March 21st is 💛💙 World Down Syndrome Day 💛💙

A day to celebrate the incredible individuals with Down syndrome and the families, caregivers, and communities who walk alongside them every day.

🧦 Don’t forget to rock your mismatched socks this Saturday!

We’d LOVE to see how you celebrate — tag us or drop a photo so we can share and cheer you on 🫶

This week is 💛💙 World Down Syndrome Week 💛💙So we’re resharing a conversation that means a lot to us:🎙 Welcoming Down Syn...
03/19/2026

This week is 💛💙 World Down Syndrome Week 💛💙

So we’re resharing a conversation that means a lot to us:

🎙 Welcoming Down Syndrome with Love & Advocacy: A Medical Mom’s Perspective

https://podcasts.apple.com/us/podcast/behind-the-capes-podcast/id1823830629?i=1000729620996

This episode is honest, emotional, and rooted in what so many families experience—navigating the unexpected, finding strength, and learning to advocate along the way.

If you’re new here, or if this journey is part of your story too… this one’s for you 🫶

Podcast Episode · Behind the Capes Podcast · October 2, 2025 · 1h 22m

Today is Trisomy 18 Awareness Day.Trisomy 18, also known as Edwards syndrome, occurs when a child is born with an extra ...
03/18/2026

Today is Trisomy 18 Awareness Day.

Trisomy 18, also known as Edwards syndrome, occurs when a child is born with an extra copy of chromosome 18. It’s considered a rare genetic condition and many families face significant medical challenges along the way.

But behind every diagnosis is a child who is deeply loved and a family learning to navigate a journey they never expected.

Recently, a mom reached out to us and shared about her daughter who is almost 6 years old and living with Trisomy 18. Stories like hers are powerful reminders that these children are so much more than a diagnosis.

At Behind the Capes, we believe every medical journey deserves to be heard. Because the superheroes wear the capes — and their families are the voices standing behind them.

Today we’re holding space for Trisomy 18 families and the incredible kids who inspire them every day. 💛

Today is the day!Kayla from Behind the Capes will be appearing on New Day Northwest on KING 5 this morning to share a li...
03/17/2026

Today is the day!

Kayla from Behind the Capes will be appearing on New Day Northwest on KING 5 this morning to share a little about her family’s journey with Down syndrome and the work she does delivering Jack’s Baskets to families welcoming a baby with Down syndrome.

What started with receiving a Jack’s Basket during pregnancy has now come full circle — Kayla now gets to deliver those same baskets to other families, celebrating their babies and reminding them they are not alone.

This conversation feels especially meaningful as we approach World Down Syndrome Day on March 21.

If you're in the Seattle area, tune in around 11:00 AM!

World Down Syndrome Day isn’t just a day on the calendar for our families.Every day we celebrate our kids and the joy th...
03/16/2026

World Down Syndrome Day isn’t just a day on the calendar for our families.

Every day we celebrate our kids and the joy they bring into our lives. They are funny, curious, determined little humans who just happen to have Down syndrome.

But World Down Syndrome Day gives us a chance to do something bigger.

For Kayla’s family, it’s a chance to share Kyrian with the world and help people understand that individuals with Down syndrome are far more alike than they are different.

They deserve the same respect.
The same opportunities.
And the same chance to be seen for who they truly are.

Kyrian has taught us so much about love, resilience, and perspective. Sharing that with others is one small way we can help create a more inclusive world for him and for every person with Down syndrome.

💙💛

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